Tag Archives: benefits

What is luxury to me?

I have always loved reading books about cosmic ordering and creating your own reality and yet still I haven’t mastered my own mind enough to make the realities I want – happen.  I am not at all surprised at my financial status for two reasons, I am sick and don’t work and therefore live on benefit handouts, I do try and do something to help change this, but sometimes it can become too much to handle with all the daily symptom managing – also I am not at all surprised at my financial predicament because of another matter… the fact that I find money one of the biggest evils in the world, so therefore, it keeps away from me because of that mind-set.  Well that is what cosmic ordering experts would say anyway.

So it is my own fault for two reasons.  One I believe that money is a source of evil and two I am too sick therefore can’t work, therefore the universe adds more sickness to keep me in that reality.  It is pretty screwy stuff, but I actually believe it to be true, which makes it all the worse for me I guess?

I am in what I call a ground-hog day of sickness and poverty and I have the knowledge that my own beliefs can change that.  So, why can’t I favour money in a more benign light?  Because I would be lying to myself, that is why and for me, lying to my-self is an even worse evil.

I have always been by nature a very philanthropic person, therefore I have tried to think about who could benefit from my future wealth, when I get it?  There is always someone in need and I always want to help, but I am not a sucker for a sob story unless there is evidence for it first.  So I have tried to concentrate on benevolence regarding money, because as evil as money is, in the current social climate it can be a blessing for many.  I have another belief about finances too, whether or not it contradicts my former belief that money is evil or not, remains to be seen.  But I have always lived by this financial code of conduct (before benefits came into my life) that 33.3% of my earnings go to me and my needs, this includes bills and essentials and fun, 33.3% goes into savings and 33.3% is invested in some way.  Now to me an investment doesn’t have to go towards a personal gain for me, it can be an investment for a charity of which I will not benefit from – to me, it is a social investment, bettering the society I live in, I deem an investment.  Not many people can understand where I come from stating this, but to me it is quite simple, the more money you put into your local charities and amenities, the more you will benefit and future generations will benefit.  It is a shame people recoil so much from taxation and donating, they just don’t see how it can benefit their local area, and they can only see what benefits them, unfortunately they don’t always see it as a positive circle which could include them eventually.

Currently we live in a world where the idea of a no money system is a non-starter; as much as I hate it, I have to come to terms with it and work out a system for my-self which will make me and others around me happy.

I have never really wanted huge extravagances, but I have wanted comfort and happiness – I mean, who doesn’t?

To me a luxurious life would come across very basic, plain and simple to a lot of people of today.  My main desires for a happy and indulgent life is determined by how big a piece of land is that I will personally own in order to grow my own food, raise my own chickens and geese, build an adventure playground for my children, entertain guests with lovely BBQs or alfresco dinner parties, a very large area for rewilding, as I love wildlife and want to save it.  I have thought if I ever became rich that I would buy woodlands just to make them a nature reserve, stopping logging companies and housing from using the land. 

For me a luxurious life means I would be able to afford natural fibres for my clothing, I dislike all the plastic in my clothes.  I would be able to afford a very healthy allergen free semi-paleo diet – why semi-paleo?  I like legumes; I like vegan cheeses and gluten free grains that’s why.

My idea of true happiness is the ability to care for animals too.  To have the pets that I desire, though I will not be one of these horrific pet hoarders like most people who know me personally think I could be if my finances were better, I am not like that; I will never take on more than I can manage.  Despite my dreams about running a small holding or a farm, I know and realise it is just a dream, even for when I am better off, because I know my physical limitations, and unless I can afford staff to help me run things, then I can’t live exactly how I want to.

For me, luxury is being able to go out to town and choose something to eat without worrying about the cost.  Without worrying that my trip to town on a bus and a lunch would actually take half of my week’s food bill away – which it currently does, hence why I rarely see the doctor, despite needing to see them more often than I do.

Luxury also means that a zoo trip won’t be negotiated with Henry about whether or not, if we go to the zoo, we may not be able to go to the Severn Valley this year or have a birthday party, and to me luxury would mean that we can do it all that year and go to other places too, such a beach – we’ve never been to a beach as a family before.  I haven’t been to a beach since I was fifteen years old!  I have only visited the beach twice in my entire life!

I have never had a proper holiday, the only thing that came close to it was a four day camping trip in Yorkshire with some spiritual friends, but that is the only real holiday I have ever had.  I am curious about a few places in the world, but I wouldn’t say I have a strong desire to travel; I am very boring regarding this.  I get home sick by day four; I can’t be away from home for more than four days at a time.  I am a home stayer and lover.  For some reason people think this makes me a recluse?

Unfortunately the places I would like to go to are so remote, it will take four days to get to them, I have researched, and so by the time that I would have got to those places, I would be pining for home again.  I find it a struggle to be in hospital for more than three days.  I know that isn’t exactly a holiday, or a hotel, but the ten day stay at hospital when I was having Henry was very emotionally difficult for me that they felt the depression was postpartum and very nearly kept me in longer because of it, until I had almost broken down and burst into tears explaining how I have never coped being away from home for too long.  Then they had to release me.

I think I know why I am like that.  In my past when I have been away from home for more than four days, I have come home to big changes that were always uncomfortable.  Also after around two weeks of being somewhere something strange happens mentally, where I feel like that new place is a new home and unless I leave that place quickly, I will start to pine for that too.  There are many places in the UK I pine for, even to this day, because of stays longer than four days.  Not holidays, family visits that were prolonged.  I don’t include a six week stay in Cheshire with an aunt as a holiday, funnily enough.  As a child being sent to this person and that all the time for varying lengths, I guess I have a nomadic heart, but I have always been bought back to base as it were.  I get itchy feet, but I don’t like to stay away for long.  It is all rather difficult to explain.

But generally the longer I stay somewhere the more I will pine for my actual home, then the longer I stay in that place, the more likely I will start to pine for that, like home.  Basically going somewhere new will be difficult for around ten to fifteen days, and then I readjust and think that this new place is another home.  I have homes everywhere in my head, but none of them are actually my homes.

Shrugs* I am mad I guess?

But yes, I miss a lot of places.  I miss a few places in London – Burnt Oak, Hammersmith, Hendon, Brent Cross, Wembley, Barnet, Finchley, Whetstone, Enfield, Northolt, Kingsbury, Edgware, Portobello Road, Camden Town, Kentish Town, Swiss Cottage and Kensington.  I miss Luton (I know who misses that?  Well – me), Dunstable, Aylesbury, Leighton Buzzard, Wickford, Basildon, Margate, Crewe, Leeds, Market Drayton, Telford, Manchester, Halifax, Sheffield, Sunderland, Scarborough, Derby, Seven Sisters, Maidstone, Barnstaple, Battle and whatever that little village on the Welsh border was (I never knew I was a kid when I was there for a while) same as a small village in the Scottish Highlands too, Crawley, Radlett and Slough.  Imagine if I did have houses in all those places, I would need to be rich just for them!  It would be ridiculous to purchase houses in places like these though and selfish.  But for me there would need to be three homes in specific locations, because of how long I know I would stay in specific areas for, because to me they are too much like home.  A house somewhere in Barnet or Hammersmith & Chelsea, London; and a house somewhere in West Yorkshire or Cheshire, as well as something suburban or semi-rural around Rugby, Warwickshire.  I could stay at either of these areas until I start pining for the other, then, instead of constantly pining for places I can’t even afford to visit for the day, like I do now.

I make do with wherever I am put though.  I get on despite my pining’s.  I don’t mean to sound depressing or down-hearted, but I have got used to disappointments and discomfort, as my mother always made sure I never felt settled in any regard in life.  Therefore, she has made me resilient to change and adaptable to most hurtful and life changing situations – by making certain things happen so regularly I eventually became numb to certain types of sentimentality.  In a bad way too, in one particular thing; that I have learned that nothing is permanent, I must always expect things to change drastically and quickly, things such as people dying.  Don’t get too attached to organic things such as people or animals, because they can die.  I will mourn an animal more readily than a human, despite how much I may deeply love that human and I have always been afraid of losing Paul or Henry, because, I am not known to cry for human passing’s.  It could be because my mother was very aloof about it all when I was growing up and if I was to shed a tear she would berate me and make me feel humiliated for being sad about a person’s death.  It could also be because I am clairsentient, a strong clairvoyant.

I don’t usually talk about that part of me.  It weirds people out, but it is a true part of me.

Some people when they die can take ages to visit in the spirit world, some people don’t understand that.  There is a cleansing process for spirits when they first die, some can visit us literally within minutes of dying because they don’t have that much baggage, others can take years before they start visiting the living again.  My grandma, Dolly, took nearly nine years before she started visiting me, whereas grandad only took a few weeks.

But generally to me, luxury is comfortable natural fibre clothes, the ability to travel across the UK whenever I like without financial strain, to eat a healthy diet, to have a lot of family time, gardening organically and for wildlife on a large scale, the financial ability to fund continued learning in desired subjects, charities and pets.  That’s all I really want.

 

 

 

 

 

 

 

 

 

 

 

 

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Money free world

Money’s a problem all over the world

It’s a simple solution and not in a dream world

It used to be reality, for everyone around

But men fell in love with shiny rocks in the ground

It’s a funny old thing, love, but it does astound

We all have to have currency, the shiny tokens of gold

It’s to help everyone, or so I am told

But I just see greed and exploitation

Unfairness and hunger and lots of discrimination

It shouldn’t be like this, in a human world

We are smarter than this, our minds have been swirled

I have heard of a time where everything was free

Money is an illusion, you just can’t see

Warmth, food, water and a place to call home

Are all basic needs which everyone should own

You can’t put a price on good quality of life

So why has humanity invented this strife?

It’s a puzzle, it really is

I hope we’ll soon all work out the quiz

But suffering world over would end in a jiffy

If everyone thought that money was whiffy

Everyone all living a life they deserve

With food, warmth and water, what a learning curve

Imagine how far we could all progress if price wasn’t an issue we always had to address?

Money is a barrier in this modern world

Money needs to go now, a new system should unfurl

A system of voluntary work and good will

A system where people go to work still

But system where freedom is always a choice

A system where people in their lives could rejoice

A system with a world united where barriers should fade

A system where teamwork is always displayed

Yes there will be some who won’t do their share

But society is good at not keeping people there

People are good at motivating the herd

People who are lazy would be considered absurd

Even the sickest has their worth

But whilst there is still money, plenty resent their birth

It is a horrible fact, but it is quite true, whilst money is still around

It’s imprisoning you

Not just you but all of mankind

Money is very, very, unkind

Imagine your life without money there, what would you do?  What would be your cares?

How would you live?  Who would you help?

Please do think about this, it might self help

It will open your mind to what you can become

I wish more people thought that money was dumb

This poem was written quickly, I know it can come across a little uncomprehending but it was written at 5:45am on a cold foggy, frosty January morning and I have a bad chest infection and I tend to think about too many points at once and my brain gets scrambled at the best of times – but this is an important message I think.  One that really should be shouted as loud as climate change awareness, because I think, if money was eliminated and people worked together in teams and progressed without the need of money incentives, things like climate change would reserve rapidly – the cure for cancer found – the ability to terraform Mars would have already been done and so many other things.

I mean come on, think about it – do you really need the incentive of a few shiny coins a month to make you make this world a better place?  Do you really need the incentive of earning little fake tokens of your supposed value in the world in order to give you the life you want and deserve?  It is a belief system that you do need these tokens as an incentive to go to a job you hate, being stuck in situations you hate, that have you enslaved, slavery is never ever truly over, until the fat cats decide to change it.  Though how many fat cats are there in comparison to the slim?  I am talking money here not the supposed “obesity crisis”.  I have always struggled with the concept that I can’t do this, I can’t do that, basic little things that most people in the Western World take for granted, because of lack of money.  I have never ever had the ability to be extravagant – I can tell you what I think the most extravagant thing I have ever done financially has been outside of special occasions – bought, shock and horror a book that cost me £25 that to me is an extravagance!

I have never had the ability to afford to get my hair done at the hairdressers when I became an independent adult, living away from my parents, I cut my hair myself!

There are so many things that would change in my life, if money was removed from the social system.

I have been told several times by many doctors that they can treat my problems, it is easily treatable with basic surgery, however, it is too expensive for a struggling NHS right now, so therefore, until the illness infringes my life to the point it becomes life threatening, they will not help me.  Money, I am afraid to say, does determine how moral and humane a doctor will be and from my experience, it means that money makes them carefree, it makes them monsters; not just them, but everyone, people kill for money for fucks sake!

People need to learn that money is evil.  Yes, money saves lives and all of that too, but that is just an illusion – really many people would never have got to the extent of needing charitable donations if it weren’t for the problem that money exists in their world.  Most people’s relationships are affected by six core things; money tops it the other four things are, lying, political and sport debates, religious differences and general discrimination (racism, disability discriminate, age discrimination, fashion critics etc.) – people argue about those six core things a lot and that usually determines how well you get along with a person or not.  Money being the biggest factor because not only do families argue about the lack of it or the want of it, but people generally avoid creating relationships with new people in case they might become their victim in some way financially.  People become more uptight socially if they are wearing expensive clothing and have the latest mobile, than those who are poorer in the community towards strangers socially approaching them. 

People also judge you by your supposed wealth or lack of wealth.  I have been in situations of worse poverty than I have now and the general public; do treat you differently, either with sympathy or with contempt, especially if you are known to be unemployed due to chronic illness.  I have also been in a situation where I have been considered quite wealthy (though the money was never mine, I was dependent upon someone for a time) and again, society treated me differently.  I became more human the more I showed to others that I might actually be better off than them and I have had friends who are super rich or of celebrity status tell me that it gets worse the more you have, you become almost godlike and infallible and this particular person who told me this said that she hated it, because she just wanted to be recognised as plain old normal Sue; she adored me because I never treated her or anyone else any differently to anyone else.  I won’t tell you her whole name because I don’t like name dropping.  But I will say she is a very respected and talented British celebrity. 

Going back to complaining about the doctors again; When I have been too sick to dress properly or fuss over my hair, I get treated like a piece of fermented meat in which the doctor is even reluctant to physically examine.  I am clean, but I wear a baggy grey jumper and black leggings those days with trainers and my hair is in a messy bun. 

I go back to the same doctor a few months later after coming from a funeral in a dress suit with the same messy bun might I add and they treated me as though I had a brain and they spent ten more minutes with me than usual and examined me thoroughly.  Why the snobbery?  Same patient, same doctor, different clothes and class appearance!

I am going to number and list everything I can’t have because of my financial situation – then I am going to number and list what I would do and have in a world without money.

  1. I can’t have an operation to remove unusually large adenoids which makes me long-term unable to breathe through my nose and smell, it also causes severe post nasal drip and breathing problems, it affects my voice and larynx and I get throat infections 8 times a year and living with constantly ear infections due to Eustachian tube blockages purely because of the adenoids. Because of this, I have severe insomnia and hypersomnia, depends on how much my body will let me sleep before I literally wake choking on the entire gunk in my body, this has gone on nearly eight years now.  One of the biggest factors of why I cannot work, because it affects my breathing, my voice and my hearing levels.  I also live with vertigo because of sinus and ear pressure and almost constant sinus migraines.  Because of the amount of antibiotics I need, I have been developing antibiotic resistance and my digestive system is collapsing as it is affecting my gut flora.  As an added bonus because of my health problems, I am self-conscious going out, because I have been accused of infecting everyone, because I come across as having perpetual flu like symptoms, cough and cold.  It is especially difficult to go out since this new Chinese virus is going around.
  2. I can’t have an operation to stretch my tendons in my left hand which renders three of my fingers almost immobile due to how tight they are, despite how twisted my fingers are that when I fall down I am constantly at risk of breaking my hand.
  3. I can’t afford to get rid of old furniture and broken televisions, computers, cookers and washing machines via a skip, so have to store them in a corner in the garden and I hate that, because I am extremely house proud and as far as the neighbours are concerned by our back garden, we must be pack rats in the house, the nasty hoarding sort – but we’re not. We don’t have a car or anyone who has a car who would be willing to help for a day.
  4. I can’t afford to get my son to socialise outside of school, because I can’t buy him the rugby kit he wants and I can’t afford the membership for the marathon club. Though there is light at the end of the tunnel for his marathon club, Henry has been seen doing so well at free running events around town that we have been told as soon as he is 10yrs old (which is May 2020) he will be eligible for sponsoring and free membership!
  5. I can’t have a balanced diet which meets my needs; even the food bank struggles with someone like me – gluten and lactose intolerant with a few other allergies thrown in like certain herbs and fruit allergies. At least once a week I have to consider eating something I am intolerant to, because our budget can’t stretch for the whole week.  It’s either that or having an entire day of just meat and potatoes with hardly any or no veg and maybe some sauce.  When money was better 2yrs ago I was having an 80% paleo diet and my health bloomed, I had more good days than not.  But when the government cut that evil thing – money, I had to cut the food and my body isn’t responding well to that.
  6. I can’t afford a fish tank and supplies, a dog or some chickens.
  7. I can’t afford certain gardening tools and supplies which will help me grow more food.
  8. I can’t afford to get a gardener to help me when I am on a run of bad health. I regularly get bed bound sick where I can’t do anything for 6 to 8 weeks at a time, by that time, my garden is ruined when I get back to it, by aggressive bindweed.  The bindweed in my garden are triffids – I was ill for 9 weeks last summer and it managed to pull down and break an entire 7ft cherry tree I had put in.
  9. My husband knows I need to get out more and see the doctor a lot more than I do, but I don’t go to see him more than once a month (though it is essential) because it costs us £12 a time in transport. Therefore, we can’t afford a car and we can’t afford to pay for me to go out, so unless I can walk somewhere, I can’t go out, so I am even more isolated now.  I am also not eligible for a disability scooter for free, because my problems are not mobile, it is mostly breathing problems due to enlarged adenoids so they don’t take that seriously at all mobility.
  10. I am struggling to be able to pay for the amount of tissues and symptom relief things I need. Such as throat lozenges, vic rub, Vaseline, sanitary towels because my coughing fits have weakened my bladder severely.
  11. I have lost a lot of weight since becoming very ill, losing weight because coughing fits have made me become involuntarily bulimic and with the lack of affordable food I can eat which fits into my dietary needs, it is hard. I have lost nearly 50 pounds in the past four months and I can’t afford to get smaller clothes, so I am wearing clothes that are ridiculously big on me.  I know there is gumtree and all of that, but really it is hard to travel to pick things up and the women getting rid of their clothes don’t like the idea of a man (my husband) picking it up for me without me present, tried.
  12. I need a wig because my trichotillomania has got worse, but I have to make do without one and tolerate the whispers behind my back when out.
  13. My bed is broken and needs to be replaced because the frame broke when Henry jumped and pulled on it last summer. I can’t afford it, so we are literally trying to hold it all together with planks of wood and gorilla tape.
  14. We’ve lived with a leaky roof in our biggest bedroom for eight years now, we can’t have the roof fixed that would be 4k, heavy rains with a northerly wind causes havoc. Also our utility room roof has caved in too.
  15. Our toilet is coming away at the wall, again we’ve had to resort to gorilla tape and sealant to try and make do until we can afford to replace that too.
  16. Henry needs new clothes too, he is growing fast, but he has my problem at the moment too – having to wear clothes too big, because he is wearing his father’s hand me downs to keep him warm this winter. Thankfully Paul is a stick and is the smallest man’s size in clothing and doubly thankful that Henry is taller than most for his age. 
  17. Our sofa is broken and that needs replacing, we don’t sit downstairs anymore because of it. Also because it is winter and we had our gas fire taken out and gas supply to the fireplace removed because it was unsafe four years ago, so we have no heating in the living room except for an electric fan heater and we can’t afford to use that more than an hour a day.  We put it on whilst we eat our dinner, we don’t eat dinner in the dining room anymore because that is even colder than the living room.
  18. I can’t afford my psoriasis shampoo and wash, so have to tolerate discomfort as the NHS has refused to prescribe me again for more, told me to buy it for myself if I need it. Also they don’t fix hearing aids in our hospital anymore; I have to go to boots, so I have a malfunctioned hearing aid now, which means I am completely deaf a lot of the time. 

Surprising isn’t it?  This is England.  This is the 21st century.  Bet you didn’t know people like me still live like that?  The funniest thing is, I am one of the better off ones – one of the least poor, there are others worse than me, I have known them.  If you think my situation is shocking, honestly, you are a very sheltered person who needs to get to know others outside of your social circle a bit better.  I have known people so poor, that despite sugar tax, it is cheaper for them to get more calories into their child with a packet of haribo sweets than to cook them a veggie dinner.   I am not that poor yet and thankfully Henry has manageable allergies.  My Henry does however, live on sausages, mash, cucumber, carrots and baked beans more often than I would like, but that is the cheapest food I can get him that he is guaranteed to eat in full.  Some of the nation’s poorest can’t even afford to give their kids beans on toast, so I really can’t moan that much I suppose!

I am not poor enough in the eyes of the government to need charity help or help from the council, because we own our home outright and therefore we must fix things ourselves.  We’ve been told that if things are so bad, why not sell up and rent?  Because our money will only last five years, I would lose benefits and security in one fair swoop and we have no means to pay the rent, it’s unlikely that I will ever get well enough to have a proper job and Paul retires in three years.

In a world of no money my life would be bearable, it would be happier, it would be easier and our needs would be met; because people are more humane to those in need when they are equal to them.

Here is my no money list.

  1. Even though I am sick, in a world of no money I would have to contribute to society like everyone else.  But society would be more understanding that not everyone can cope with long hours and hard labour.  I would help places grow food or advise people on gardening for food, even on my sickest days I could sit on the internet on live chat, helping some gardening in need with various issues.
  2. I can help the world with aesthetics, by giving people my artwork to decorate their homes with, giving people my poetry and stories in books for them to enjoy. I could even get a group of actors together and we can make plays and movies based on my ideas.
  3. I would go to a workshop on my good days and help teach people how to make preserves, jams, chutneys, allergy free cakes and breads.
  4. I could do motivational talks.
  5. I can help sew and repair local peoples clothing from home, if they deliver.
  6. I can teach people about which flowers are edible, to help broaden peoples diet.
  7. I can do the occasional arts and craft workshop to help people recycle and upcycle things.
  8. I can help people learn French.
  9. I am a good massager and manicurist.
  10. I am very good with people who are suicidal or going through a dark time. I have had several people say that if it weren’t for me they wouldn’t be around anymore.  I have often thought about becoming a therapist, but in the last five years it is debatable whether or not I will be a hearing person in the future or not.  In fact, I have been told to prepare myself for becoming profoundly deaf to becoming totally deaf with a deaf dog support.  So I gave up my course as soon as I heard this.
  11. All my household problems would be solved, no dangerous stuff, more respect from neighbours and warm living room that is comfortable.
  12. I would be able to live the diet that is optimal for me as an individual.
  13. My operations would have been done before my health got this far and I would probably be able to do more things than what I listed above.
  14. We would have an electric car.
  15. We would have a dog, a full fish tank and some chickens in the garden.
  16. We would have tools for the garden and help in the garden.
  17. I would be able to wear appropriate clothes and so would Henry.
  18. We would have a safe bed.
  19. I would probably need to apply for a house extension so I could have an extra room to use as a library.
  20. I would be able to get out more.
  21. I would shave my hair off entirely and get a wig, so I learn to stop pulling.
  22. I’d go to the cinema once a week.
  23. We’d go for a pub family meal on Sundays like we used to.
  24. I’d take Henry to the big televised rugby matches.
  25. I’d adopt four kids and concentrate on getting my body healthier, rather than push my body to get that second child I want.
  26. We’d go out on a big family day out once a month at least – a zoo, a museum, a steam train ride, a bowling day out etc.
  27. Because a world without money would be more cooperative and free, I would be free to lend my services to certain people. I would be able to assist the local elderly, cook for them, visit them to keep them socialising, take them out, play games with the playful ones, and do the same for the severely disabled. 

It is all just hearsay I know.  I am down to earth enough to realise that I may still be struggling day to day with my own needs, like I am today.  But even in a world of no money, I could manage to help society from home, in my bed with online talks.  I could go out for one half day a week doing any of those things above and still be a worthy member of society who does her bit.  Basically, I would have a better life than I do now.  But because of my current needs, ESA will not tolerate someone who can do half a day of something, without pulling the carpet from under them and saying “well in that case you can work, we will take your money from you henceforth”.  They don’t care that my illness is such that I can go out for one half day a week, but I will be bedbound for four days after it and so therefore will not function around my own home – that to them, doesn’t matter.  What matters is getting me off benefits at any cost!

I am saying, in a world of no money, I can volunteer to be present outside of the home every 4 to 7days, if society tolerates someone who has a permanent streaming nose and allergies when she does it – I often feel that people recoil from me a lot when I am out about and this leads to me thinking things such as “Well why not just euthanize me now, then?”.

I burden too many people with my presence, they make it all too obvious and people who work in benefits don’t help matters!

Money is evil, it makes us heartless.

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A plan, lost time and mindless jealousy

Going back to my post about social media from the other day, I have decided today to make a list of people to watch on social media to try and make me more social with the people I love speaking to and getting replies from.  It will help me manage things better, I am a person surrounded by endless lists for things because my illness can make me too preoccupied with trying to manage my symptoms such as coughing mucus several times an hour and that sort of thing, that I can often forget to do important things such as drinking fluids, eating and even socialising.   

Paul has suggested in saving up to get an Alexa for me, so that it can remind me every half an hour to take a sip of my drink because it is becoming a big problem for me and he thought as well that this can remind me to eat and even socialise.  I sometimes go two weeks between reading emails too, because on bad days (and I am getting more and more of them) two weeks can feel like two days to me, there are times where I haven’t spoken to my favourite cousin online for six months, but to me it feels like two weeks, when I look at the last time stamp I apologise profusely for the time span between our last chats and overcompensate by talking for three hours when I do finally get to contact them again.  It is bad to consider that I make more posts for my blog than I do in contacting people I know in reality.

I really do lose such big chunks of time because of my illness, I go into a groundhog day whilst the entire world moves on and have normal different days and they get to partake in the events of the future whilst I am still struggling to breath and thinking its Sunday.  Henry comes into my bedroom to shake me awake as I am too deaf to hear him say good morning until I put my hearing aids in and I ask him;

“Why are you wearing your uniform on Sunday”? 

“It’s Thursday mum” he says.

“Oh that happened quickly”, I say whilst trying not to fall back to sleep.

But a lot of the time I don’t go back to sleep for twenty minutes because my chest needs clearing and I have to go to pee, but it is a struggle to get there whilst choking and I have a bucket midway between the bedroom and the bathroom because I often choke so bad I vomit.

On bad days those coughing fits don’t calm down for nearly two hours before I can rest again.  It is difficult to be like this when my personal doctors surgery is only opened for 8am to 4pm every day and they prefer to use after 12pm as emergencies only – I never really had a planned appointment from the doctors because my personal GP rarely works the emergency shift and if I want to see him I need to wake up around 5am just to clear my chest, get dressed and eat then rest for an hour after eating just to get to see him for 10am, they are aware of this but I am sure they think I exaggerate!

If I get the flu it lasts for 4 to 8 weeks on me because by the 5th day it always turns into bronchitis and by 2 weeks it goes into borderline pneumonia or pleurisy, doctors are worried by this, it is happen too often and I am showing signs of antibiotic resistance too!  

To all those people who work full-time and hate on people like me who rely on benefits to live and often say venomously how they wished they had my life sitting back watching TV all day instead of working – well I beg your pardon, most of the time I am too deaf to watch too much TV because of severe ear infections and I can’t hear music either during my bad days, all I get to do is read or be online and sitting at a desk is tiring, so you want my life huh?  You can have it if I can have yours!  I’d love nothing better than to work if it means I get great health with it and a great social life!

Welcome to my life for the last seven years, pretty isn’t it?  Yes, please do be jealous of this so-called lazy fat bitch, because my life is great isn’t it?

 

 

 

 

 

 

 

 

 

 

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My lifestyle for food, skin and health (or what little there is of it)

A few people will be astounded to learn I am nearly forty as a few people believe that they think I am in my mid-twenties, I don’t look my age apparently.   Have been told by a lot of people that they believe me to be incredibly young, three or four years ago were the last time I tried to buy alcohol and was asked for ID because the seller felt I was seventeen, which wowed me.  Maybe he just fancied me?  But I have had straight female friends who are much younger than me have their mouths drop open when they realise I am fifteen years their senior.

I believe it has something to do with how I treat my skin and what I like to eat and drink.  I took Honour Blackman’s advice when she was on a show when I was around eleven years of age that she has never washed her face, she uses only moisturiser with some cotton which she dabs and never rubs.  I do indeed wash my face but never put soap on it ever, I wash with plain filtered water, hot first then ice cold, I do use a moisturiser about once a week which is Nivea crème, I use this crème on my face, elbows and knees, my elbows and knees are as smooth as a child’s.  I drink cranberry or raspberry juice twice a day, I drink a lot of water with very, very watered down fruit juice concentrates, I have never really been one for tea or coffee, I never grew up.  I drink around six pints of fluids a day if I am not having a bad day, on bad days my body can’t keep fluids down.  I drink green tea about three times a week and a hot honey and lemon most days.  I love berries and eat them daily, prunes, raisins, dates when I have sugar cravings.  Chicken and fish being my main meats with lamb once a week if I can afford it; lately lamb is a once a month treat.  I love pickles and sauerkraut and I aim to eat a whole cup full of green leafy vegetables per day.  My diet has to be gluten and lactose free because of intolerances which make my illnesses much worse, two years ago I was hospitalised with bronchitis only to find out that with other symptoms I had, I had severe intolerances and my health has improved vastly since shifting onto a free from diet.  I consider my diet to be a semi-paleo, Mediterranean and Asian diet these days.  I say semi-paleo because I like beans and pulses and I will eat gluten free rice, pasta, oats and potatoes, hard-core paleo dieters will slap my wrists for those.  Despite all of this I am very overweight still, though slowly losing the weight since the shift.  I am around forty pounds lighter than I was before the lifestyle change.

I will admit that temptations do set in and I often sneak in gluten and lactose into my diet with severe ramifications which affect me for three to five days after eating them, I have done this around once a month since the change.  I am getting tired of this and getting to the extent that if I don’t have enough fruit and vegetables in my day I actually feel really ill, so it has got to the extent that I need to eat around five pieces of vegetables and a fruit a day in order to feel relatively ok in comparison.  I am happy recently that I have found free from Paninis, hot dog rolls, burger buns, naans and tortillas which don’t take like cardboard, so the idea of becoming totally gluten free permanently is more doable.  I have found lactose free whipped cream and single cream, which also helps and the other day on TV I learned that Hotel Chocolat does lactose free options which is exciting, because I love truffles, which they do lactose free – I generally don’t like chocolate much though because it clogs my ears up sometimes, so chocolate is a once a month treat and it is usually only about three or four mouthfuls. 

I am impossible to cater for food wise because of my allergies.  I am intolerant to gluten and lactose, allergic to pineapple, flax/linseeds, camomile, thyme, shouldn’t really eat eggs as it gives me wind, should avoid binging on chocolate due to ear blockages, there is an unknown spice at the local take away which also causes my mouth to burn and swell, never knew what that was!  Beef can affect me in a bad way if I eat it more than once a week; I eat starchy foods but not too much because that affects my body too.  Certain candies can make me extremely hyperactive mentally and sometimes physically which can be dangerous when ill.  I am really difficult to cater for since discovering these allergies and reactions.  When explaining to a friend at Henry’s school a few months ago called Dee, she shook her head looked at me and asked “what do you eat”?  At the time I was good for seven months solid, without breaking my free from diet at all and I had 9 weeks of what I call, normal health, then I caught a cold and thought fuck it all!  I never did get that streak back.  Purely because the government cut our benefits by £200 a month, so the above diet I had is no longer possible!  At the time it was very strict, I only had gluten free products once a week to satisfy beans on toast cravings or ham and pickle sandwich cravings.  I still ate eggs a lot though, but it was a windy time.  I had health, but I stank, but that was OK for me, unless I was on a bumpy ride on a bus.  I ate fish, poultry and lamb, salads and vegetables, I made sauerkraut three times a week, I had lactose free cheese and omelettes with samphire and spinach.  It was tasty, but boring and predictive and being on benefits I can’t afford to eat as regularly as a normal person should.  I can’t afford it on a strict paleo diet, whether it benefits my health or not, I do not have the money for three prime optimum meals per day.  My doctor is concerned with the lack of certain vitamins my body isn’t having because of food cost.  In fact so much so, we’ve recently become members of a food bank, referred by my son’s young carers group.  They’ve recommended the only food I should buy is the food I need, the food for my son and Paul should come from the food bank.  It is a sorry arrangement, but something we can’t refuse at this stage. 

That’s my situation. 

It baffles me that I eat all these fruits and veg with a piece of meat or fish a day and yet I am still not getting enough nutrients.  I can’t afford nuts, I can’t afford to have meat more than once a day, I can’t afford, seeds, I can’t afford red meat, or canned fruit, or exotic fruits which are highest in vitamins.  I can’t afford avocados, or shrimps etc. 

What I can afford and have almost always in my kitchen available to me are chicken legs, cans of tuna, sweet potatoes, potatoes, gluten free pasta, gluten free rice, gluten free porridge, prunes, dates, apples, bananas, grapes, oranges, spinach, kale, carrots, peas, onions, ham for sandwiches, gluten free bread, sweet pickle (not entirely allergy free), mayonnaise, baked beans, parsnips and sweetcorn, swede and cod fillet.  That’s all we can afford for me.

I have eaten this diet and only this diet with the occasional food from Paul and Henry, such as crisps, biscuits and fish fingers (not allergen free) for about a year and it is sending me insane.

I could afford better food if my doctors were able to get a grip on many of my symptoms.  My illnesses dictate that I need tissues for my sinus problem and I need an average of 12 to 20 boxes a week just for the sinus and chest problem!  That is how much mucus I produce in a week, 20 boxes worth; I get no extra financial support for this.  I also need regular sprays for sore throat, Vaseline because my nose gets sore and dry, hay fever tablets because of my other allergies; I need approximately 12 to 20 painkillers a week.  I was told by my consultant that I need to have Canestan ear drops (as they do them as ear drops too) as often as possible but they said they won’t pay for more than a certain amount but you can buy them over the counter at £5 a week on average.  I need to have these drops all the time and I am not overusing them apparently, despite my fears.  Because my ears seem to have a permanent inner skin infection, which in layman’s terms means I have a permanent ear infection, try living with that!  Because of my digestive problems I was told to bulk up on specific vitamin pills which the NHS cannot provide, so again, I need vitamin C, calcium, for some reason kelp and zinc primarily and have been recommended to double doses per day.  I need a psoriasis medicated specific shampoo and body wash, again unavailable on the NHS and this costs me £12 a fortnight for the strength I need.

So when you look at all that, you can see how I can easily come into debt and cannot afford a better diet, whilst being on benefits.

If doctors got a handle on my symptoms I would instantly become £45 a week richer.  I was told recently that our local NHS is struggling to the extent they no longer do hearing aid repairs, so I was told to go to boots, so I guess I will be paying for that too?

Ho hum, there you go.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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Stifled writing and a look into my brain! (WARNING – it is not for the faint-hearted)

People who write can often get bogged down with the concept of finding that great idea which will earn them money and quite often when they do this, they lose themselves and in some cases, even lose the love for writing itself.

I am at fault of doing this as much as anyone, particularly in the past five years, this is because financially I am suffering to the extent that birthdays and Christmases have been disappointing and not as traditional as I am accustomed to.  In fact recently I found an old Christmas shopping list, which included food, presents, games and décor and basic normal food to last for two weeks over the festive period so we can focus on more family time and that list was five pages long with two sections on each page; this year it was only 3 pages long with only one section as when I write in an excited state, my letters get bigger than my usual handwriting – which is a bizarre idiosyncrasy that I have.  My lists are quite methodical, I will list food from Tesco, Food from ASDA and food from other places separately within the list; I will list where to buy certain presents too and for whom, which shops, so we kind of plan a shopping map in our minds whenever we go to town.  Along with this list will be a separate length of what kinds of decorations or traditional Christmas stuff we need, such as crackers from B&M and purple bauble at Wilko, you get the idea?  We usually do a massive buffet on an old pasting table in our living room and fill it to the brim with food and drinks as well as the coffee table, because Christmas Eve is the only time in the year where we can guarantee an influx of visitors and we like to feed them – this year it is a no go and I am embarrassed that this may come across as too inhospitable compared to what they are used to, as everyone usually got a bag of food to take with them either for snacks at home that night or jars of homemade stuff, which we just can’t afford to do this year.

I hate pleading poverty, but lately it is getting me to a state of breaking down.  I went for advice on my ESA benefits two weeks ago to a lady who is very kind and runs a charity, I was so embarrassed detailing my struggles to her as she was helping me fill out the forms that I was shaking and my teeth were chattering so badly with the humiliation of it all.  She thought I was freezing cold, but I told her, it’s just that I am so embarrassed by it all and she said that it was OK, but it really isn’t though is it?

Usually I am very good at being calm and self-composed, despite anxiety issues, but lately I just can’t keep it together, I am struggling to hide behind a façade like my normal self would.  Most people can’t tell that I have anxiety issues because I masked it so well, but lately I break out in tears over the smallest of things and what is worse is that I am getting short tempered with it, with people I feel are cold or unfeeling and I have this awful feeling that I will say something out of character at my next medical which will make me lose the benefit.  I am very scared about it.

If I could get a job I would, but no one is going to employ someone with the health issues I have.  I did struggle a few years to get a job, before it got too bad seven years ago.  All of this makes me try to push myself to create something just to get out of this mess, but it isn’t working, it is stunting my creative growth badly because I am not writing what I really want anymore.  I am writing the lesser ideas I have which are the most popular amongst my nearest and dearest and unfortunately what I love to write about, they hate immensely.

What I like writing about are dystopian stories similar to Mad Max, I am Legend and Tank Girl.  I enjoy writing about vampires and their sired offspring as I call them and histories as a massive saga dating back to the Ancient Sumerians and contemporary times too, how they live and how they lost loved ones.  I enjoy writing inane pun infested comedy fantasies where you meet mermaids and trolls with a very Monty Python meets Discworld air to them and I enjoy writing horror that touches taboo subjects.

According to those who are in the know, the only type of book up there I have mentioned that they can barely stomach is the comedy fantasy, not my main love of in depth vampire soap operas and dystopian tribal warfare.

Yes I love my fantasy comedies, but whenever I discuss my writing with those who are privy to them, they always get more excited about any updates on that genre than anything else and I feel if I don’t write this genre more than the others, I am failing to please this specific audience.  I am one of these people who find it really hard to talk to people about my work, those I do are precious to my motivation, if I don’t talk about my work, I can’t do the work.  But unfortunately my discussion circle seems far too niche and not entirely me.

I used to mix and mingle my genres a lot and had a wider circle I trusted to talk about them to, usually as dinner party discussions but since moving to Warwickshire, I don’t have that anymore.  London is a very different place, with very different people with mind-sets very different to Rugby’s.

I have mentioned vampires and horror to people up here I thought I could trust with my writing, but they recoil or give sideways glances to those next to them and simply state “Oh, right, not my cup of tea really”; Then I share my fantasy comedy ideas and they feel that fantasy is strictly for children, surely I should write something nicer for them?  Not drunken elves and mermaids who rip eyes out and swear profusely with such corny puns as well!

Apparently my personality must reflect my work and because I don’t lark around like some tomfool jokester all the time and I seem a pretty calm deadpan person in real life, I can’t be taken seriously in comedy surely?  Won’t I come across as some kind of fake?

Now that hurts, but it has been said to me before and I find it amusing that comedy must be serious… really?  I wonder how we all laugh at serious comedy!  Should we laugh at flippant tragedy then?  I don’t know what kind of world I have tripped into a hole of, but it is certainly quite different here to where I am from, I can tell you!

I think if I was to walk up to my favourite British comedian of today and say “Darling, you are not taking your comedy seriously” he would choke laughing and crying at how stupid that sounds.

*passes a dictionary to said people and points to the word “comedy” for reference*

So, though I am currently in quandary over my work, my main quander is this – “how can I develop a trusting relationship with people online so that they can become my beta readers and I can learn to trust the online community with my plans and outlines”? 

I’m not sure I can.  I am very protective of what I share with people because I have often had entire ideas stolen and published behind my back and that someone became very successful with my ideas and have not produced work since I eliminated them from my social circle a decade ago.

I have thought that maybe signing up to a free creative writing course with the OU would help me discuss work and improve my skills with an online tutor?  But not sure if that is really what I want – improved skills are always good, but not sure if I want straight laced professional opinions which are bias regardless of genre and content.

Meanwhile, I have been thinking about just writing whatever, whenever and go back to my scatty ways that were long lost a decade ago.  Paul tried to organise me too much I think?  Tried to get me to focus too much that I lost my way; I don’t really have a way.  I am higgledy-piggledy and mentally a mess when creating.  Paul often said if a hypnotist was to delve into my mind for just five minutes he would run out of the room screaming “get me out here, she is completely insane, she is such a mess, she is so confusing, help me, help me…. And oh, pass the paracetamol that gave me a headache!”

Why the drama?  Because I will have seven documents up at the same time, one is a horror about a cat, two are vampire novels concentrating on two entirely different characters, one is a comedy fantasy with tiny people, and one is a dystopian story based on a religious concept of the apocalypse and angels, the other document is writing notes to eventually put into any work in the future, along with research papers and notes, scribbled papers and notes off the computer, and Wikipedia up on the internet with another internet page looking for the history of Thracian warfare.  If that is not enough, I am also meddling with playlists on Amazon music flipping through them depending on which scene and novel I am working on in those few seconds, whilst daydreaming about food and what it might be like if I was the size of a peanut in my garden.

You get the idea?  That’s my brain in just five minutes.

I am like the dog who is in the garden playing fetch with you then all of a sudden I have ran away chasing squirrels, then coming back to you wondering where the ball is and oh look sausages!

With a mind like mine, it has been said by people before – is there any reason to wonder if I will ever find it possible to get anything finished?

I pass them some books I have indeed already finished and I do so quite proudly.  Then I announce, they are not for sale, they are not edited and they are not good enough.  The person looks through them, finds they do indeed need editing but are absolutely wonderful, why not publish them? 

Because they are mine!  Then I grab the books and hug them close to me with a snarl!

I am like this even with the art I paint too.

Thing is, there are ideas I do want to sell.  But I am scared that those private stories reveal too much about my inner workings.

I feel psychologically exposed, basically.  It brings about the kind of feeling in which I can only sit back and think, it would be better to be physically nakedly exposed than that, then Paul tells me to stop being weird and dramatic!

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Worrying about probably nonsense!

Other than the time back in 2003 I have never approached a publisher or an author’s agent, nor have I ever entered any kind of creative competition, whether it be for art or writing; I have never joined a writers circle either.  I have never had any real formal education on writing and not much schooling throughout my childhood.  Everything about me and my creativity is 100% self-taught and badly taught too in my opinion!

I have no idea where all these punctuation marks really should be, I have no idea about my grammar or where a paragraph should start and end, really it is all either dumb luck or a right mess, I don’t know which it is.

I don’t have much confidence in the idea of becoming a successful writer, I have said before and it is very true, I am scared that I will let people down a lot because of my health issues.  In my personal life, I let people down almost all the time.  I am afraid that I will have people wanting to publish my work but will have second thoughts about it because the writer will be a no show for at least 50% of the promotions, book signings and interviews.  In my personal life my health is so bad that a simple two hour shopping spree can set me physically back by three days.  I have more than one auto-immunity problem working against me.

I know in my heart of hearts it is unrealistic for me to have what many people would call a “real job”, writing is a real job if you get published isn’t it?  Despite publishers and agents alike stating they are working towards having more underrepresented writers, how ready are they for those who are bed bound for 10 – 16 weeks of the year?  How patient would they be in dealing with such a writer who is also deaf, too deaf to use a phone and relies heavily on face to face lip-reading, text messages or a representative to take telephone calls?

This is what holds me back in approaching publishers.  My own realism. 

I really don’t want to be told “you have a lot of talent but you are not working hard enough to promote yourself or take yourself seriously, it is a shame you are so sick, you could have gone far”.  This has happened before to me, not in the writing industry, but other forms of work, which is why I rely on benefits.

Is this something I should even put in my covering letter to an agent?  I mean, come on, if it really is like any other job, then who the blazes would ever look at my work twice if they knew that I am that sick most of the time?

Am I being too defeatist as well as a pragmatist, maybe there is light at the end of the tunnel – who knows?  Maybe there is an agent out there who can push someone like me into the limelight and support me in spite of the health problems?

I am writing this for two reasons today.  One is the fact that there has been quite a few people contacting me in the past five years in my email and on private messages on twitter and other social media, who support my work with all their heart and has asked me to send them some of the work and I have not done this.  Many have become active cheerleaders in trying to get me to write regularly and to state how my poetry amongst other things has helped them and other people through hard times in their lives.  The thing is I am too polite to verbally let people down and I don’t like dragging up my health as an excuse all the time, even though that is the primary thing.    So I let it all slide.  I don’t want to do this, I really don’t.  I really want my books out there, I really want people to enjoy my worlds, because I have put my heart and soul into my worlds for a very long time, in some of the series I have written, two decades of blood, sweat and tears have gone into them!  I need to see my characters come to life through actors and actresses on the television as this is the main motivation for me writing.  I have always written the things I have because I have always wanted to see them on TV.  They are things I want to watch.  I am a huge supporter for acting and have always wanted to get into theatre and television myself, as a writer/screenwriter and eventually producer and I know with my health problems that may never happen.  When I was younger I loved going to the drama classes during lunch break and playing with my friends various roles.  I love playing and I believe acting is the only way an adult can still play pretend with their peers and not be considered insane or childish.  The course I was doing back then was after I had a breakdown, my mother was really worried about me so signed me up for a general vocational skills course to boost what she thought was my confidence.  It wasn’t a confidence issue I had, it was severe depression due to something that had happened to me which was nasty and as usual swept under the carpet by her and never spoken about to the family.

When I went to those drama classes, my creativity ran riot.  I became a writer for short plays that we would do at the college together, I also wrote rap songs for my beat boxing friends and joined what was known as a rock choir with my gothic friends, I was a Goth back then too.

I find it really easy to write songs and poetry, it comes very quickly to me and this amazed my friends in the creative scene.  I would literally sit on the table with my legs up, write on my knees a song of any subject they chose and give it to them to sing within ten minutes max, never revised either.  I do this with all poetry even now.  It comes and in a few minutes it is posted or printed and ignored.

If I had someone tell me that I am now a full time poet, I would freak out about the ink and paper I would use daily, because I literally could throw out 5 to 10 poems an hour.

Similar things happening too since I took up my recorder practise; I can play by ear and I have composed several tunes since first starting out.  I can compose a new tune in around 90 minutes and lyrics to go with that within 10 minutes.  I am learning well in how to read and write the recorder music now.  It’s winter now and my chest is playing up, so it’s likely the recorder is going to be put away until April now, which is a shame.

The second reason I posted this, is that I am considering entering a writing competition for the first time in my life.  The Writing Magazine (which I am subscribed to) has a competition which has sparked six story ideas in my head – however, I can only afford one entry.  The competitions requires an opening line which is this “They weren’t like me”, closing date February 15th 2020.  It is a subscriber’s only competition. 

I am running short of money and I hope there is enough ink in the printer, as it is unlikely I can afford more ink before Christmas.  I know me, the story I will choose will be done and dusted within a weekend, then it will rest a week, then I will redo it and it will be sent a month in advance.

Thousands of people will be entering this contest so I know that my chances are slim, but though I am a pragmatist I am also an optimist and I have as good a chance as anyone.  But what I want to know is… is this the sort of thing I put into a writer’s CV when approaching an agent?  If I win, I mean?

Anyway, just some food for thought!

Merry Christmas everybody if I don’t post again beforehand!

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Update November 2019 AKA I am still alive!

I didn’t continue Inktober from day 5 and I haven’t done anything towards NaNoWriMo this year either, my health has got quite bad in the past few weeks, for some reason or another I have developed something new where I am sleeping an average of 10 to 15 hours a day and when I am awake, I wished I was asleep and this is something strange for me, because I not a person who loves their bed (unless I am making love in it)!  I don’t find sleeping a productive venture, other than maintaining health (which I don’t have any more anyway).  I am living in constant pain too; painkillers aren’t cutting it anymore for me, not even the occasional co-codamol, I am having almost permanent nose bleeds and other strange bodily phenomena, such as the feeling that I have a glass splinter in my foot and my arms are going numb and losing strength at random unpredictable times.

My IBD markers have also risen and my rheumatic arthritis has decided to wake up again, it often goes away and comes back again, remission I think it’s called?

My depression had got better until last week I received a medical request which puts my ESA medical due around Christmas week again, just as I felt that Christmas might be financially impossible this year I get this as an added assurance, because I don’t think I will pass it this year due to the fact that my consultants are very laxed in actually giving me a name for some of the things that are wrong with me.  I knew my local NHS is struggling as it the NHS nationally, but yesterday on TV I finally learnt why my consultants are particularly lacking in their treatments of me – they are part of what the government consider the notorious Nuffield branch crisis.

I never heard of it before now.  I don’t really understand what it means, but there seems reason to be concerned according to the news I watched last night about being part of the Nuffield problem.

I don’t vouch any knowledge on the thing.

All I know is that someone advised me to take a certain person to my medical this year as it may help my claim, because I am a client of a specific charity and apparently this could give my claim some weight.  I just hope I don’t sink.

I haven’t been able to practise my recorder for a month either, because I have been getting a little chesty, I was expecting this, because every year between November and March I get bronchial issues – I have been given medication for asthma but the doctor declines calling me asthmatic, I don’t know what that is about, but there is no name for my breathing problems when I get them.  When they get really bad the doctors say I might need to stay in the hospital as I always seem to get bad enough that they feel I am borderline of pneumonia or pleurisy.  Hopefully that won’t happen this year; I am tired of the fact that I haven’t had a decent healthy Christmas in almost 7yrs.  It is starting to make an Ebenezer out of me. 

I haven’t written anything other than 9 poems since my last post and I don’t think I like them enough to share.  Some of them touch very delicate subjects.

I have also managed to list whilst in bed, all of the story ideas I have had had over the years and number them, 187, that is scary and I felt instantly depressed that more than half will likely never be started let alone finished.

I noticed that I shouldn’t really call myself a horror writer too, as most of my stories are comic fantasy or dystopian, I think all in all there are only 6 non-vampiric horror stories in the list, about 12 vampire stories in the list, but mostly comic fantasy.

I have an idea for a sequel of a top Broadway musical, but I know I wouldn’t rightfully be able to write it as it will be an infringement of copyright and it is a shame because I really think that this sequel would be amazing.  The musical has always been one of my favourites, Annie.  I love most musicals anyway, but that one is special to me as I remember watching it the first time when I came out of hospital for the first time aged 5.

I won’t say my plans, but if anyone needs a sequel to it, please let me know – I am not a dunce, I will know if you are of genuine sources or not.  I have often thought about writing a letter to the source of the musical or current copyright holders, but not sure when I will take the plunge – as I am embarrassed, because of my health I may not be able to deliver on a strict dead-line.

Another thing I need contact from is from anyone who knows how to get my Henry onto junior MasterChef, he really wants to be a chef when he grows up, he has decided – he also wants to do a baking marathon for Children in Need next year, but I have no idea how he can do that, I can’t afford to give him ingredients for 100k of cupcakes, ha-ha, he will be 10 at the time too.

Wasn’t it amazing what Rylan did as well this year?  Henry always thought the guy was awesome, but now he is inspired to do a 24 hour baking challenge because of it, I said he won’t be allowed he is too young!  So then he thought of a specific number of cakes – though he says they have to be gluten and lactose free so I can have a couple!  Isn’t that lovely?  He thinks of his mummy?

I don’t know if it is a sign, but I have nearly finished a novel, when I get the energy back to continue it I will have about three chapters to do before I consider it done and coupled with this, I have been getting dreams.  Those dreams are of me moving house, every night I am in a different house in a new dream, what is weird is I accidentally found a house that is identical to my dream in Derby with identical surroundings in the town, specific shops and maps, it has blown my mind away about how I found that.  Thing is, I don’t think I want to leave Rugby.    I think it’s a nice little town, the people know me well like I have always been here and it is really is in the centre of everything you need in the UK – an hour from London, 45 minutes from Birmingham, 90 minutes to Manchester, it’s just a great spot to be!

I have discovered after reading several books in bed over the weeks that one of my main problems creatively, is that I overthink things.  I play too many ideas into others and eventually lose their uniqueness, I have learned to let go.  I have learned that it is ok to repeat themes in my writing in order to make things more interesting in places, but also learned that various themes can be used only once and there shouldn’t be any regret.  I have also learned that mentally I use the excuse of not having much experience in anything in life as a way of holding me back from having a life.

I am on a big learning curve right now, my mentality is changing and it is growing me.  I am also changing on a personal level – I used to be a very meek and obedient person who was afraid to make people unhappy even at the expense of it making me unhappy, but that too has changed.  I have started to learn that if I am not happy with something I will tell that person and I will try to maintain kindness as I do, but ultimately I won’t suffer anymore, not for others, especially as it was never appreciated in the past or even recognised.  I do however insist that I maintain kindness as much as possible and maintain a positive attitude, I have an intolerance for misery still, that is innate within me and I think that is in part the reason behind why I am more of a comic/comedy writer.  I know this blog doesn’t show that, as my poetry is often very dark, but my stories, when I eventually release them for the world to see, will be quite light hearted and funny – well I hope so anyway.  My poetry may still be dark and bleak in a lot of respects, because it helps release what is soaking my insides up, bad things from the past, my deepest yearnings, my tears and fears, I have to release this emotional cancer somehow, don’t I?

I never intended to be a comedy writer, it just happened.  I always intended to be a horror writer but as funny as it sounds, writing horror is horrible and I don’t like to do it anymore.  I used to relish in making people scared and feel sick to the stomach, but only certain people and now they are gone from my life I realised how neurotic they made me and how horrid they were making me.  So now I only want to make people smile, laugh is even better, inspire would be a jewel, but I would be happy with a slight upturn of the mouth from my readers and nothing more if only to make the world a bit more brighter.

(was written on the 14th November but only just got around to copying it for this blog – I have not been well, in fact the whole house has had the flu this week on top of everything else).

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time to start living

It is not unknown that I have a lot of health problems, in fact more often than not my ailments these days make me bed-bound with bacterial and viral infections and my left eardrum is collapsing, which could leave me totally deaf if it weren’t for the technology of hearing aids.
However, I had decided last week to restart doing my blog regularly and concentrating hard on writing, art and photography in general because I am tired of being dependent upon an insecure government; I am also bored of not being able to work away from home or volunteer anymore, but I can’t help that as I have auto-immune-inner-ear-disease aka AIIED, which means I get about a 2 to 5 days of normal health a month, not conducive to the workplace.
I will have several new sections coming up soon on this blog about Cosmic Ordering, because I am using this to turn my life around; I’ve always been a bit of a Pollyanna which is one of the main reasons I had a lot of problems as a child, so I just need to refocus a bit. I am especially interested in Cosmic Ordering and the methods behind Ho’Oponoopono because I have been told that it is likely I will need more surgery on my ear in the future, my roof is leaking, my health is getting ridiculously bad lately, I’m poor as a church mouse and… well, basically enough is enough and it’s time for a change.
I had another small pause to my blog from my previous post because I went down with a big bang with what my GP described as severe pharyngitis (diagnosed on the 3rd February) and was told that if this didn’t show signs of getting better in 48 hours I could find myself in hospital receiving treatment intravenously; scary, I am still ill as I am typing this – but not as bad as I was and I am thankful things are getting better.

 

I am trying my best to stick to my plans of the Ho’Oponoopono chant and the Cosmic Ordering guides from the Mohrs and various other people – especially my very good friend Richard Gentle who has written lots of material on the subject of Cosmic Ordering, negative miracles and crystal wand healing; in many respects it was he, who gave me the confidence to start doing this and he did this a few years ago, unfortunately my life back then was full of negative people who always undid whatever I tried to do to improve myself, that is no longer the case, in fact, quite the opposite.
One of the biggest steps to changing your life to a more positive stance and being your true self, is to leave the people who do not accept you, whether they are family or not.
So I will finish now with this post, to let you know I intend to get busy and post more often.
Thank you for reading
xxx

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Crystallaphones and plans

My plans for after Christmas are to find distance or online courses to learn how to read music and actually start becoming proficient in a musical instrument that’s not piano/keyboard based; this is because my interest in song writing and composing is becoming almost unbearable to ignore, particularly as I don’t have anyone in my life who’ll cause me stress anymore (other than a 3yr old son, but he’s sweet and easily worked around). 

I have found a new instrument that takes my interest and I hope I am lucky enough to do a part exchange with my electric guitar to get one, but I’ve heard to find one even in a music shop is rare, the instrument is… a crystallaphone, or as some people will know it as a glass xylophone; however it’s very likely that I’ll end up with a left handed electric guitar as a replacement (as I didn’t take my disability into consideration – my left hand has short tendons).

I am still heavily interested in watercolor painting and sketching, but I have put that on a back burner since I’ve been ill for the last three weeks, also the house needs organizing as I need to prepare a workspace for the art and the music I would like to take up.  I am slowly introducing myself to small chunks of work a week, roughly two hours a time, three days a week to settle into it because I am regularly ill, hence the unemployment I am in, I can’t hold a job down, not even a voluntary placement these days.  The mind and heart is willing but the body will not comply.

I need to find something that I can do from home but does not require me to use the telephone (not because I am unsocial, but because I have fluctuate hearing and regular ear infections that even an amplified phone is useless with) and despite this being the age of texting, not a lot of professionals or customers like communicating with staff via text only and most forget your hearing problems because when they talk to you face to face and you respond (because you’re an excellent lip reader) they think oh it’s not so bad.

Yes I know it’s strange that a person who has regular hearing problems wants to compose music, but there’s been others out there who have done it proficiently, so why can’t I?  I believe I am right in stating that Beethoven was stone deaf wasn’t he?  And one of the bee gees, he was like me, partially hearing, wasn’t he? And their music is great, isn’t it?

I don’t want to be a singer, I couldn’t take the commitment there because I never know when I am going to be sick and most of my sickness is based around practically all the aspects of the ear nose and throat, which doesn’t help for a singing life.  When I was younger I trained in opera but after the age of 12 I couldn’t sing it regularly enough to be considered talented in it, because I developed regular mastoid infections which needed regular operations etc. and singing became quite painful for me literally.

So with that said, I am trying my best to make myself a creative life and I hope that when things take off I find people who are sympathetic to those who have health problems and will help me work around them in a non-stressful manner.

 

 

 

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recent issues

Having second thoughts about taking up NaNoWriMo, I struggle with 250 words a day these days, let alone trying to squeeze in 50,000 in a month – reason?  Migraines, frequent for months now, also I’ve been told that I am showing mild signs of pneumonia which is a worry.  I’ve been ill for weeks now and I am getting progressively worse, been practically bed-bound though for two days, thankfully I have a new laptop so I can do things when I can semi-think.

My main concern is I am unsure how the job center will react to the fact I haven’t gone to the voluntary placement interview yet, particularly as it was supposed to be for the next day and they saw me happy and healthy, but I woke up really bad and it’s not left me for almost 3 weeks now.  I am worried; I wanted to do the voluntary work too as it focuses on a charity I never heard of before but on a subject close to my heart (mental illness and mental learning difficulties and brain injuries) – hope this won’t turn against me?

I am so used to London benefit offices that I worry about every visit.  Unfortunately my husband is unemployed since the National Wildlife Trust could no longer afford him and made him redundant, this is unfortunate because I’ve always had health problems which have made problems with me keeping a job down (auto-immune problems, operations, and rheumatoid arthritis, vertigo and anemia problems as well as panic attacks), needless to say as soon as he became unemployed we had no choice but to go on benefits and they wouldn’t allow him to go on it and support the family I have to go for the interviews too.  Unfortunately even voluntary placements get funny if you have too much time off (even if you’re known to be sick), so I don’t have much of a life as far as social commitments go.

On the positive note my husband is doing home-based voluntary work for seismologists, if at the end of a 9 month period they feel he knows what he is doing he could get employed by them – hopefully the job center will be considerate about this, meanwhile he is trying hard to find work in other places but being aged 57 he is struggling to find anyone who’ll take him seriously, despite his educational and employment history being, Naval engineer, art tutor, customer services, photographer, and having an ecological degree with engineering.

I think my health problems are one of the main contributors to why I am afraid of being published, I cannot commit to anything because of it and really will publishers sympathize with a sick/disabled writer, even if they seem extremely good at what they’re doing?  I doubt it, but I hope I am proven wrong in time.

 

 

 

 

 

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