Tag Archives: benefits

Update November 2019 AKA I am still alive!

I didn’t continue Inktober from day 5 and I haven’t done anything towards NaNoWriMo this year either, my health has got quite bad in the past few weeks, for some reason or another I have developed something new where I am sleeping an average of 10 to 15 hours a day and when I am awake, I wished I was asleep and this is something strange for me, because I not a person who loves their bed (unless I am making love in it)!  I don’t find sleeping a productive venture, other than maintaining health (which I don’t have any more anyway).  I am living in constant pain too; painkillers aren’t cutting it anymore for me, not even the occasional co-codamol, I am having almost permanent nose bleeds and other strange bodily phenomena, such as the feeling that I have a glass splinter in my foot and my arms are going numb and losing strength at random unpredictable times.

My IBD markers have also risen and my rheumatic arthritis has decided to wake up again, it often goes away and comes back again, remission I think it’s called?

My depression had got better until last week I received a medical request which puts my ESA medical due around Christmas week again, just as I felt that Christmas might be financially impossible this year I get this as an added assurance, because I don’t think I will pass it this year due to the fact that my consultants are very laxed in actually giving me a name for some of the things that are wrong with me.  I knew my local NHS is struggling as it the NHS nationally, but yesterday on TV I finally learnt why my consultants are particularly lacking in their treatments of me – they are part of what the government consider the notorious Nuffield branch crisis.

I never heard of it before now.  I don’t really understand what it means, but there seems reason to be concerned according to the news I watched last night about being part of the Nuffield problem.

I don’t vouch any knowledge on the thing.

All I know is that someone advised me to take a certain person to my medical this year as it may help my claim, because I am a client of a specific charity and apparently this could give my claim some weight.  I just hope I don’t sink.

I haven’t been able to practise my recorder for a month either, because I have been getting a little chesty, I was expecting this, because every year between November and March I get bronchial issues – I have been given medication for asthma but the doctor declines calling me asthmatic, I don’t know what that is about, but there is no name for my breathing problems when I get them.  When they get really bad the doctors say I might need to stay in the hospital as I always seem to get bad enough that they feel I am borderline of pneumonia or pleurisy.  Hopefully that won’t happen this year; I am tired of the fact that I haven’t had a decent healthy Christmas in almost 7yrs.  It is starting to make an Ebenezer out of me. 

I haven’t written anything other than 9 poems since my last post and I don’t think I like them enough to share.  Some of them touch very delicate subjects.

I have also managed to list whilst in bed, all of the story ideas I have had had over the years and number them, 187, that is scary and I felt instantly depressed that more than half will likely never be started let alone finished.

I noticed that I shouldn’t really call myself a horror writer too, as most of my stories are comic fantasy or dystopian, I think all in all there are only 6 non-vampiric horror stories in the list, about 12 vampire stories in the list, but mostly comic fantasy.

I have an idea for a sequel of a top Broadway musical, but I know I wouldn’t rightfully be able to write it as it will be an infringement of copyright and it is a shame because I really think that this sequel would be amazing.  The musical has always been one of my favourites, Annie.  I love most musicals anyway, but that one is special to me as I remember watching it the first time when I came out of hospital for the first time aged 5.

I won’t say my plans, but if anyone needs a sequel to it, please let me know – I am not a dunce, I will know if you are of genuine sources or not.  I have often thought about writing a letter to the source of the musical or current copyright holders, but not sure when I will take the plunge – as I am embarrassed, because of my health I may not be able to deliver on a strict dead-line.

Another thing I need contact from is from anyone who knows how to get my Henry onto junior MasterChef, he really wants to be a chef when he grows up, he has decided – he also wants to do a baking marathon for Children in Need next year, but I have no idea how he can do that, I can’t afford to give him ingredients for 100k of cupcakes, ha-ha, he will be 10 at the time too.

Wasn’t it amazing what Rylan did as well this year?  Henry always thought the guy was awesome, but now he is inspired to do a 24 hour baking challenge because of it, I said he won’t be allowed he is too young!  So then he thought of a specific number of cakes – though he says they have to be gluten and lactose free so I can have a couple!  Isn’t that lovely?  He thinks of his mummy?

I don’t know if it is a sign, but I have nearly finished a novel, when I get the energy back to continue it I will have about three chapters to do before I consider it done and coupled with this, I have been getting dreams.  Those dreams are of me moving house, every night I am in a different house in a new dream, what is weird is I accidentally found a house that is identical to my dream in Derby with identical surroundings in the town, specific shops and maps, it has blown my mind away about how I found that.  Thing is, I don’t think I want to leave Rugby.    I think it’s a nice little town, the people know me well like I have always been here and it is really is in the centre of everything you need in the UK – an hour from London, 45 minutes from Birmingham, 90 minutes to Manchester, it’s just a great spot to be!

I have discovered after reading several books in bed over the weeks that one of my main problems creatively, is that I overthink things.  I play too many ideas into others and eventually lose their uniqueness, I have learned to let go.  I have learned that it is ok to repeat themes in my writing in order to make things more interesting in places, but also learned that various themes can be used only once and there shouldn’t be any regret.  I have also learned that mentally I use the excuse of not having much experience in anything in life as a way of holding me back from having a life.

I am on a big learning curve right now, my mentality is changing and it is growing me.  I am also changing on a personal level – I used to be a very meek and obedient person who was afraid to make people unhappy even at the expense of it making me unhappy, but that too has changed.  I have started to learn that if I am not happy with something I will tell that person and I will try to maintain kindness as I do, but ultimately I won’t suffer anymore, not for others, especially as it was never appreciated in the past or even recognised.  I do however insist that I maintain kindness as much as possible and maintain a positive attitude, I have an intolerance for misery still, that is innate within me and I think that is in part the reason behind why I am more of a comic/comedy writer.  I know this blog doesn’t show that, as my poetry is often very dark, but my stories, when I eventually release them for the world to see, will be quite light hearted and funny – well I hope so anyway.  My poetry may still be dark and bleak in a lot of respects, because it helps release what is soaking my insides up, bad things from the past, my deepest yearnings, my tears and fears, I have to release this emotional cancer somehow, don’t I?

I never intended to be a comedy writer, it just happened.  I always intended to be a horror writer but as funny as it sounds, writing horror is horrible and I don’t like to do it anymore.  I used to relish in making people scared and feel sick to the stomach, but only certain people and now they are gone from my life I realised how neurotic they made me and how horrid they were making me.  So now I only want to make people smile, laugh is even better, inspire would be a jewel, but I would be happy with a slight upturn of the mouth from my readers and nothing more if only to make the world a bit more brighter.

(was written on the 14th November but only just got around to copying it for this blog – I have not been well, in fact the whole house has had the flu this week on top of everything else).

Leave a comment

Filed under My life

time to start living

It is not unknown that I have a lot of health problems, in fact more often than not my ailments these days make me bed-bound with bacterial and viral infections and my left eardrum is collapsing, which could leave me totally deaf if it weren’t for the technology of hearing aids.
However, I had decided last week to restart doing my blog regularly and concentrating hard on writing, art and photography in general because I am tired of being dependent upon an insecure government; I am also bored of not being able to work away from home or volunteer anymore, but I can’t help that as I have auto-immune-inner-ear-disease aka AIIED, which means I get about a 2 to 5 days of normal health a month, not conducive to the workplace.
I will have several new sections coming up soon on this blog about Cosmic Ordering, because I am using this to turn my life around; I’ve always been a bit of a Pollyanna which is one of the main reasons I had a lot of problems as a child, so I just need to refocus a bit. I am especially interested in Cosmic Ordering and the methods behind Ho’Oponoopono because I have been told that it is likely I will need more surgery on my ear in the future, my roof is leaking, my health is getting ridiculously bad lately, I’m poor as a church mouse and… well, basically enough is enough and it’s time for a change.
I had another small pause to my blog from my previous post because I went down with a big bang with what my GP described as severe pharyngitis (diagnosed on the 3rd February) and was told that if this didn’t show signs of getting better in 48 hours I could find myself in hospital receiving treatment intravenously; scary, I am still ill as I am typing this – but not as bad as I was and I am thankful things are getting better.

 

I am trying my best to stick to my plans of the Ho’Oponoopono chant and the Cosmic Ordering guides from the Mohrs and various other people – especially my very good friend Richard Gentle who has written lots of material on the subject of Cosmic Ordering, negative miracles and crystal wand healing; in many respects it was he, who gave me the confidence to start doing this and he did this a few years ago, unfortunately my life back then was full of negative people who always undid whatever I tried to do to improve myself, that is no longer the case, in fact, quite the opposite.
One of the biggest steps to changing your life to a more positive stance and being your true self, is to leave the people who do not accept you, whether they are family or not.
So I will finish now with this post, to let you know I intend to get busy and post more often.
Thank you for reading
xxx

Leave a comment

Filed under My inspirations, My life

Crystallaphones and plans

My plans for after Christmas are to find distance or online courses to learn how to read music and actually start becoming proficient in a musical instrument that’s not piano/keyboard based; this is because my interest in song writing and composing is becoming almost unbearable to ignore, particularly as I don’t have anyone in my life who’ll cause me stress anymore (other than a 3yr old son, but he’s sweet and easily worked around). 

I have found a new instrument that takes my interest and I hope I am lucky enough to do a part exchange with my electric guitar to get one, but I’ve heard to find one even in a music shop is rare, the instrument is… a crystallaphone, or as some people will know it as a glass xylophone; however it’s very likely that I’ll end up with a left handed electric guitar as a replacement (as I didn’t take my disability into consideration – my left hand has short tendons).

I am still heavily interested in watercolor painting and sketching, but I have put that on a back burner since I’ve been ill for the last three weeks, also the house needs organizing as I need to prepare a workspace for the art and the music I would like to take up.  I am slowly introducing myself to small chunks of work a week, roughly two hours a time, three days a week to settle into it because I am regularly ill, hence the unemployment I am in, I can’t hold a job down, not even a voluntary placement these days.  The mind and heart is willing but the body will not comply.

I need to find something that I can do from home but does not require me to use the telephone (not because I am unsocial, but because I have fluctuate hearing and regular ear infections that even an amplified phone is useless with) and despite this being the age of texting, not a lot of professionals or customers like communicating with staff via text only and most forget your hearing problems because when they talk to you face to face and you respond (because you’re an excellent lip reader) they think oh it’s not so bad.

Yes I know it’s strange that a person who has regular hearing problems wants to compose music, but there’s been others out there who have done it proficiently, so why can’t I?  I believe I am right in stating that Beethoven was stone deaf wasn’t he?  And one of the bee gees, he was like me, partially hearing, wasn’t he? And their music is great, isn’t it?

I don’t want to be a singer, I couldn’t take the commitment there because I never know when I am going to be sick and most of my sickness is based around practically all the aspects of the ear nose and throat, which doesn’t help for a singing life.  When I was younger I trained in opera but after the age of 12 I couldn’t sing it regularly enough to be considered talented in it, because I developed regular mastoid infections which needed regular operations etc. and singing became quite painful for me literally.

So with that said, I am trying my best to make myself a creative life and I hope that when things take off I find people who are sympathetic to those who have health problems and will help me work around them in a non-stressful manner.

 

 

 

2 Comments

Filed under My life

recent issues

Having second thoughts about taking up NaNoWriMo, I struggle with 250 words a day these days, let alone trying to squeeze in 50,000 in a month – reason?  Migraines, frequent for months now, also I’ve been told that I am showing mild signs of pneumonia which is a worry.  I’ve been ill for weeks now and I am getting progressively worse, been practically bed-bound though for two days, thankfully I have a new laptop so I can do things when I can semi-think.

My main concern is I am unsure how the job center will react to the fact I haven’t gone to the voluntary placement interview yet, particularly as it was supposed to be for the next day and they saw me happy and healthy, but I woke up really bad and it’s not left me for almost 3 weeks now.  I am worried; I wanted to do the voluntary work too as it focuses on a charity I never heard of before but on a subject close to my heart (mental illness and mental learning difficulties and brain injuries) – hope this won’t turn against me?

I am so used to London benefit offices that I worry about every visit.  Unfortunately my husband is unemployed since the National Wildlife Trust could no longer afford him and made him redundant, this is unfortunate because I’ve always had health problems which have made problems with me keeping a job down (auto-immune problems, operations, and rheumatoid arthritis, vertigo and anemia problems as well as panic attacks), needless to say as soon as he became unemployed we had no choice but to go on benefits and they wouldn’t allow him to go on it and support the family I have to go for the interviews too.  Unfortunately even voluntary placements get funny if you have too much time off (even if you’re known to be sick), so I don’t have much of a life as far as social commitments go.

On the positive note my husband is doing home-based voluntary work for seismologists, if at the end of a 9 month period they feel he knows what he is doing he could get employed by them – hopefully the job center will be considerate about this, meanwhile he is trying hard to find work in other places but being aged 57 he is struggling to find anyone who’ll take him seriously, despite his educational and employment history being, Naval engineer, art tutor, customer services, photographer, and having an ecological degree with engineering.

I think my health problems are one of the main contributors to why I am afraid of being published, I cannot commit to anything because of it and really will publishers sympathize with a sick/disabled writer, even if they seem extremely good at what they’re doing?  I doubt it, but I hope I am proven wrong in time.

 

 

 

 

 

Leave a comment

Filed under My life