Tag Archives: disability

Art, Life, Goals and Disability

It is not just writing that has gripped me as a creative person; over the years I have tried to practise art, but never seriously and I also have an interest in wildlife photography – again, I have never taken this seriously. 

I am a self-taught artist who practises a few days every few months, so I do not practise daily and I have been doing this for the first time in my adult life since around 2012.  I have decided to change this.

I have decided after watching a video on YouTube by Love Life Drawing https://www.youtube.com/watch?v=qzhVOU47aSo  to practise art daily for just one hour per day because it is said that if you practise doing something for 1000 hours you will become quite good at it, so an hour a day will make it approximately 3yrs before I become a much better artist and to me that is enough to prompt me into action.  Three years is really such a little time.

I have never stopped learning something daily, so therefore I have the ability to continue learning new skills, some people when they get to a certain age give up learning altogether as they feel it is not necessary for them to be learning new things or because they feel that they are too old to change radically which I personally think is (excuse the language) bullshit; I am going to be thirty seven on my next birthday and I am already making radical changes in my life.

The changes are to learn how to become a better writer, learning grammar and punctuation, something ironically I have never bothered to learn before, shocking I know!  Learning math, because I was mostly home-educated and math was a weak point for my main teacher (mum) so therefore after the age of eight I hardly learned math at all.  Practising art, which is something my adult self never took seriously as well as wildlife photography – Paul is a former photographer so he is thrilled I want to take this up!  Also I have a life-long goal that I have never taken seriously and that is to learn five languages before I die, I know enough French and Japanese to survive as a tourist in those countries if I ever go on holiday abroad, but I also started to learn Italian last November.  So my five chosen languages to learn in life fluently are French, Italian, Japanese, Spanish and German.  I am on the cusp of level 2 Italian right now. 

So those are my goals, also my goal is to try and find some way in defeating my auto-immune problem or at least trying to work my way around it so I can actually get a life, a life I want as I am tired of merely existing to keep doctors in their jobs. 

I am also determined to offer myself up to medical science whilst still alive, to find a way in repairing lost hearing, because I am nearly completely deaf and I am scared of losing the tiny bit of hearing I currently have.  Recently I have lost enough hearing that I no longer hear certain beats and rhythms in music that I knew existed before and it really makes me depressed as I lived my life in music before the left ear started to fade away too.  I learned the piano by ear (no pun intended) I can’t read music; I started to learn the guitar just months before my left ear started to play up.  Music composure is another goal I always had and I have done some composing in the past; but when I learned I could be completely deaf by the time I am fifty and I was told I should learn British sign language, I decided to give up music and I don’t care about how Beethoven did just fine with his hearing loss, to me, I love hearing, I love language, I love music and it is hard for me to know I will hear less and less over the years.

I should really add a sixth language goal, to learn British Sign Language but I am afraid that the universe will take this as a resolution that I will go deaf and would make it happen faster.  Stupid I know, I suppose I should give up Italian to learn BSL but I am denying things will get that bad… idiotically no doubt.

So I have decided to post up some art whenever I make it, I will try daily, but you know me, Procrastinator Extraordinaire.  Well here is what I have done today and I want to tell you quite honestly, this is my second attempt at drawing a hand, my hand.  Paul says that hands are notoriously difficult for artists to draw and he insists I have a natural talent for hands, I don’t know what to think about that, but O-K that’s amazing!  I think my hand looks hideous on paper drawn by me, but the hand in itself is deformed slightly, my left hand has a tendon problems that leads up through the forearm and it is twisting more than just my baby finger these days and its becoming painful, something the doctor needs to be alerted on soon as Paul is terrified that if I fall over or support myself the wrong way the baby finger is just going to snap, seriously it is getting that bad!

Sorry for being so graphically cringe worthy.

 

 

 

 

 

 

 

 

Advertisements

2 Comments

Filed under About my work

Sunday word count 3

This week’s grand total of writing towards my novels is…

2500 words to be exact!

You what?  I normally write that amount in a day!  True, true, but not this week, this week has been a hard week all round for the family.  So therefore I inevitably got to go to…

THE WALL OF SHAME!

dreaded wall of shame

Says some random booming monstrous voice from goodness knows where!

“Yes and I feel so ashamed”.  Said the author of this blog with a huffy laugh and without any hint of conviction in her words;

I didn’t get anywhere near as good as I did in the first week of doing this, let alone my minimum of 10,000 words as you can clearly see. 

Here are the words spread out throughout the week so you can see how much or how little I wrote on any one day;

4th of August – 784 words, quite bad really.

5th August – 0 words – you what?  Call yourself a writer? But the books over there look so pretty, so inviting!

6th August – 811 words – better, but not great, in fact quite awful actually, but not as awful as Sunday’s count.

7th August – 0 words – what again?  What act procrastination doth thou blame this on?  The shiny books?

8th August – 196 words – Oh you are really going to get writer’s cramp with that amount aren’t you?  Rolls eyes*

9th August – 0 words – can you have zero words?  Evidently you can, there is no words to describe how awful a writing (if you can call it that) day like this is!

10th August – 709 words – Yes, good, but I won’t praise myself too much here because this week was utterly disgusting as far as being a writer goes!

The overview is that this is a shockingly terrible week and whoever thinks they are a writer, writing like this ought to completely revalue if they are really a writer or not?

Well I would say to the over viewer (which is myself, so technically I am speaking – no arguing with myself here) is this; I am a writer, however school holidays make dedication to work difficult when I choose to write in the living room, not shutting myself off from the entire world.  Family is important to me, contrary to what certain cretins might say about that!  Not to mention that this past week I have set myself a challenge to read ten enormous books by the 23rd August, so therefore I am reading much more than I normally do and it has also been a bad week for depression; a very bad week in fact for depression.

I have a lot of worries about people that I love too.  Paul has been having difficulties this week as he has injured his arm, I found out recently that my cousin is in hospital for heart problems and he is the only cousin I can trust to emotionally support me in my time of need, the only person in my family other than my immediate household in which I trust has good and non-judgemental intentions towards me.  Also my aunt has been battling cancer for two years now and as much as people think I don’t batter an eyelid, I try not to dramatise anything about others and pretty much keep my thoughts and feeling to myself regarding their problems.  But I am finding that difficult lately and people really don’t know how much I do care about them, because I never turn their problems into my own personal dramas like most people tend to.  Often this makes me come across as aloof and uncaring, but I actually care very deeply about people who are related to me or within my social circle, more than they know, I am just not very good at showing support or love for them and I am sorry for that.  You see in the past I have been accused of being too loving or caring to the point of weirdness and then not enough and so I feel I can’t ever get the balance right, so recently, I guess I don’t even try anymore.  Sorry.  Also I have learned that someone in my family has made a decision to move far away from supportive relatives and isolate themselves and I know that they don’t socialise outside of the family at all and they are very vulnerable due to their disabilities and they are elderly and this is literally freaking me out, as I think to myself, oh my god, what have you done, you impulsive thing you, don’t you learn?  They’ve placed themselves so far out of reach for a lot of caring relatives, that if they need anyone, it will be incredibly difficult to get to them as most of the caring relatives who would help them don’t have their own transport and are on the poverty line and I have heard from the grapevine that they are not happy with their choice after all and there is nothing they can do now, the move has took a lot out of them.

Along with this, Henry has had some problems too and now we are receiving help from a certain charity, I won’t mention what the charity is and what Henry’s problems are because Paul would rather me keep that to myself, but things aren’t going well for us currently and that in itself is contributing to my depressive return; and with all of this too, I have far too many hospital appointments coming up and too many tests that need doing.

Personally I am struggling a lot with my disabilities to even write or read regularly, hence these stupid goals I am forcing onto myself – I am trying to make my life somewhat productive at least.  I might have a neurological problem other than the suspected MS, we don’t really know yet; the doctors are all on guess work right now.  All I know is I am scared of whatever it is getting worse, because lately reading and writing is becoming affected.  I am getting my words mixed up a lot and I don’t even notice it when I reread it half the time.  It could just be depression, who knows?  But I am scared.

When I get bouts of depression I tend to meditate too much to try and forget what got me there in the first place. 

Last week I watched a lot of YouTube videos, this week I haven’t even done that.  But I really should, I should force myself to watch things like the Motivational Archive when I get like this, it sometimes helps.

Well anyway, thank you for reading – you’ve all been an absolute gem to keep on reading.  I hope you all have a lovely day and have lots of fun and come back again soon.

Good luck with your own writing adventures and why don’t you send me a snippet for me to read?  I don’t read many blogs, I really ought to, and there are some amazing people out there.

Hopefully next week will be a better week?

Leave a comment

Filed under About my work

Sunday word count 1

I will try to remember every Sunday to post up my weekly word count towards novels and short stories I am working on. 

This past week I have added words towards one short story and three novels. This is not including writing down ideas of new stories I have planned, nor is it including research notes, blog posts, poetry or anything else – just novels and short stories.  The word count is not spectacular, but I am working on improving it.

The grand total this week is….

5679 words

Disappointing huh? 

Well here comes the excuses; this is actually a slow week for me because I haven’t done much writing this week at all in comparison to my normal writing week.  Why?

My desktop computer monitor decided to die on me for two days.

I don’t cope well with the heat, prone to heat stroke and breathing problems.

My son is off from school for the next six weeks, so my writing count is usually cut by half on school holidays.

I have been reading and researching more.

I have been learning about make-up application and have been addicted to watching Nabela Noor and Jeffree Star on YouTube, I discovered them last week.  When I gave up being Goth around 15yrs ago I never really learned how to use make up and never wore make up since and I am getting to the point I need coverage, ha-ha.

So there are the excuses, I only watch an hour of YouTube a day this past week, so it’s not stealing that much from me in regards to writing time, considering I rarely watch TV, so TV is rarely a distraction for me – I tend to watch programs whilst writing, programs that doesn’t need me to look at the screen too much such as The Proms, radio channels, or the occasional glimpse at nature documentaries such as David Attenborough or the Spring Watch team.  I lose my hearing too much at random times, so I have learned not to make my life revolve (or is it evolve?) around TV, because I often have to use subtitles and get to hear virtually nothing a lot of the time anyway.  So I have learned to be a reader/writer/researcher, unless my eyes go on me, then I am going to be OK regarding entertainment.

It is because my hearing levels are so random from one day to the next, that I can no longer keep my secretarial and classroom assistant jobs that I used to have.  Hearing loss is a big bother because I can’t do much independently regarding going to a doctor and hearing them, I need someone with me who can interpret via lip syncing to tell me what the doctor has just said, it is even worse when dealing with things on a confidential front such as banking, particularly telephone banking when online banking goes wrong – you have no idea how many companies out there do not accept a speaker on a deaf persons behalf, I am only glad I am not a deaf mute, because then I would seriously have problems.  I often have to try and talk to someone I can’t hear on a phone, hoping my husband or someone else can interpret for me as long as I give them verbal permission over the phone, my goodness, I feel for the mutes.  Especially as three years ago I had a throat infection that lead into the ears that was so bad I had laryngitis for 4 months solid, so I have experienced temporary muteness and I did have a banking problem then, that I couldn’t solve until I could speak, 6 weeks to get a fraudulent act on my online payments sorted out, because I could not voice that I gave my husband permission to handle it over the phone for me!  For 6 weeks my account was blocked because I could not verify that I gave permission, I am only thankful that my account doesn’t pay any major bills.

Well anyway, going back onto my writing I could have written a lot more if it weren’t for the interruptions, I would say as much as 16k more words and I don’t expect my word count to be beyond 10k a week whilst the school holidays are here.  I do most of my writing in the living room on a desktop computer and my son rarely leaves the room and is often loudly shouting about his robots in the robot wars arena he has made on the carpet and his robot wars videos he watched on YouTube overtakes the music I put on to get me into the mood for writing fiction.  It is easier to write poetry and research and make research notes or further synopsis’s of new stories than it is to write towards novels or short stories for competitions during the day.  Most of my writing at the holidays happens between 11pm and 1am, but Henry is suffering from some emotional issues right now which mean that my days can be very challenging and tiring by the time night falls.

When the holidays are over I write sparsely throughout the day because of my ADD and therefore I can often get 3k words done on some days.  Well anyways, the future will show and tell if I can remember about Sundays.  You will see patterns of no writing at all some weeks, because I get health problems which mean I can’t even read a book at times, such as a chest infection with a running nose, where I am busy literally every single second trying to keep myself together and alive without choking.  Sad but true, I have an immunity issue that is much better since having a radical diet change but I still get long illnesses. 

Anyway, I will update my weekly word count towards short stories and novels every Sunday. 

 

 

 

 

 

 

 

 

 

 

 

 

 

           

 

 

Leave a comment

Filed under About my work

I’m not your therapy

Yes I am insane, insane because lots of people have bashed my brains

They tried to mould me to be like them, to control me and hold the reins

I don’t take it any more, this is why I rant

I know the fantasy in this blog is becoming more and more scant

But I need to release this strain of mine

Because my brain I need to find

I need to release it to the wind

I need to be free and untinned

I need to go my own way, not lean upon vagrant strays

I can’t stand upon my own two feet, when I am tying knots with those who deceit

I can’t be me when I am trying to be, something YOU expect of me

I’m not what you want, you see

I am not here for your therapy

Leave a comment

Filed under Poems G - I

Daily goals as a lifestyle

I no longer want to be in the league of procrastinating artists and writers, things are going to change.

For the past three weeks I have been living my life on a goal based lifestyle, thanks to some very motivational videos I have found on YouTube and the book I purchased last month called “Think and grow rich” By Napolean Hill.  Now I don’t fool myself for one second that art and writing is going to make me “rich” at all, don’t get me wrong – I am not just focusing on the money aspect, I am focusing on the aspect of happiness and feeling like I am achieving something, even if the rewards are purely emotional.

Obviously money would be nice, but ultimately, health and personal achievements for me, leads to a happy life and that is more important to me right now than financial gain.

I have had these talks before on my blog, the “No longer procrastinating personal prep talks” and they have always reached a point of returning back to old comfortable habits with excuses after excuses after excuses – I am sick and tired of failing myself and I watched on one of these videos last week that when you reach a point of being sick and tired of being sick and tired that’s when your life will start to change and I have reached that point in my life.

Living life day to day with goal based intentions for every day, is working out for me.  On the nights I forget to give myself a goal for the next day, I notice I go back into old habits, so I am almost paranoid that the last thing I do before I go to sleep each night is to list my goals for the following day, so I don’t slip up again.

Most of my goals are simple and may seem like nothing to anybody – how much do you think you are going to achieve in a day by doing these things which in their eyes, could be procrastination anyway – but for me, it is constructive.  It keeps me doing the “good habits” which make me a productive person.

My usual day to day goals are;

To write my morning pages via a site called 750words.com – this is non-negotiable, this is a must do, everyday forever.

Revising at least two pages of my old NaNoWriMo attempt from 2016, this was abandoned and forgotten in my drawers since 30th November 2016.

Writing two poems for advanced schedule posting on my blog, I am a month in advance at the moment, so the poems you are currently reading were written approximately a month before you are actually reading them.

Practise some sketches and art pieces in my sketch book, at least half a page a day.

Then there is a fifth random goal, it could be anything, such as take a walk, do something particular in the garden, bake a cake, visit someone, anything really.

This isn’t all that I do in my day, this is part of my daily goals, the idea is to get me into the habit of having something to wake up for, something to do.  I lost my purpose in life by allowing sickness to dominate me, but now I am trying to take back some kind of control in my life again and so far it is working.   I would never have thought about living my life in a goal based day to day way, if it wasn’t for the motivational archive on YouTube.

Leave a comment

Filed under About my work

Constant Pain

My head is swelling up

My ear is getting sore

My head starts to thump

Tinnitus begins to roar

I feel sick and lazy

I feel tired and in pain

This constant pressure in my ear is driving me insane

Every day is different, every day the same

I live in constant variations of suffering and pain

How’s your ailments?  People ask

How’s your breathing I want to say?

But I keep quiet and carry on

Like nothings in my way

One infection, one week

Another in a fortnight

A virus after that’s cleared up

I don’t need some psychic foresight

This is my life

Like it or not

I know you wouldn’t if you were me

Living in a useless way

In pain and suffering

Knock me out I often ask

Throttle me right now

Help me out of this rotten life

Please make a solemn vow

But no one wants to

So I live on

In pain and agony

I am not strong

I have no choice but to suffer this

Each and every day

Be brave others tell me

And I think more about the grave

I have no choice but to be brave I say

I have no choice at all

You think staying at home all day in pain is lovely, like a ball?

Oh if it were only so, but it’s not

I live in pain, my ear is hot

Burning inside, burning out

Making me dizzy, draining from my snout

I can’t have fun or laughter

I can’t have a life at all

For living in pain isn’t lovely

Try a day you fool

I would love nothing better than to do the school run and work

I don’t choose this life you scum bag, you idiot and you twerp

I know I’m angry that is true

But try living in my shoes

I try each day to keep myself sane

To keep my temper calm

But it’s hard to stick with politeness, when others show their qualms

She’s here to infect us again they say

But what I have isn’t contagious

I’ve had it all my life almost

Isn’t it outrageous?

I try to live a normal life

But it’s hard to do it each day

I don’t often go out at all

Not even for play

It is a lonely life I have

It is a sad one too

But I don’t want your sympathy

That’s the worst thing you could do

I just want the pain to stop

And my nose stop running too

I want to live a normal life

And get to know a person or two

I want to do the school run

Get a part time job at Scope

I want to do so many things

I sit and wonder and hope

That someday my life will change

I will find a good doctor

A consultant who knows what is wrong

Someone to cure me of all my ills

Somebody who really feels

For their patients and kind too

Someone who knows what to do

So I can breathe normally

So I can hear just fine

So I don’t live my life in pain anymore

And live the life that’s mine

I want to be free to live my life

Be happy without sickness and pain

I want to recover right now

Because it’s driving me insane

I sit and wish it won’t be long

Before I get to heal

Because if it goes on for much more longer

I, myself shall kill

 

 

 

 

 

Leave a comment

Filed under My life, Poems A - C

Tornado Mind

My life is like a tornado

It’s been turned upside down, inside out and it’s spinning round and round

Like my mind, it’s unstable, insecure and unsound

Nothing can quite help it – nothing can calm it down

I’m just whizzing around doing nothing, someone make it stop, and someone hold me down

I skip from this to that, my mind’s just going to rot

I skit from thing to thing and most things I’ve forgot

I dance from one thought to the next; I’m trying to catch my thoughts with broken nets

But get this – I can’t slow it down, most things I’ve forgotten before I can write them down

My thoughts move too fast for me, it’s like they’re scared of me, they flee

And I just sit wondering… what the fuck just happened to me?

Leave a comment

Filed under Poems S - U

I need out of this painful shell

Morbid as it may seem, death to me is a dream

A way out of this painful shell, away from this constant Hell

I cannot make you understand

I cannot see that life is grand

When it’s accompanied by agony, hatefulness and tyranny

You see the end is best for me

As there’s more to pain than you can see

I need to go where I am free

From all this pain and verily, I am ready to go to sleep.

Leave a comment

Filed under Poems G - I

Droid Pox

In a previous post last year, I mentioned that I play scrabble to rev up my brain for writing each day and also to assist me in writers block; some games take on a life of their own and bring about themes or stories unwittingly.
This happened to me again on my last game.

The theme seemed to be robots, technology and disease; it gave me a wonderful idea for a story that I don’t think I can pull off because it’s too technical and I am not a very technologically minded person.

The words played were “Droid”, “Pox”, “Robot”, “Death”, “Fail” and the idea these words gave me were…

A futuristic tale based on robotic advancements that are so great, robots take on a life of their own and a new computer virus is designed by outcast Eco-warrior type people who live rurally around the cities, specifically designed to kill off the new robotic race; quite similar to the idea behind the cyber-men in doctor who; this made me think of a droid pox that affects metals, electric and robots irreparably as it sort of corrodes the metal, this will also affect the infrastructure of the world – basically things that aren’t robot specific.

Obviously such a thing will cause a collapse of buildings, bridges, transportation, trade, importation, and society, as humans will have to start relying on their own manual labor as they did centuries before the collapse and they can’t cope – some can’t cope emotionally because some of the droids affected were disabled relatives that were given lifesaving or life enhancing robotic organs and limbs etc.

I really have no idea how to pull this off as I am not scientific or technologically minded at all and I really want to write this, but I think this will be an abandoned idea.

Shame really.

I am willing to discuss this with people who are science/technology savvy on this subject and perhaps we can work together on this story?

Leave a comment

Filed under My inspirations

I’m back

I am back after a long illness, still not fully recovered but missed updating this blog a lot.

I had a sinus infection in December which affected the chest too and by late April I got pneumonia because of the prolonged infection; thankfully pneumonia is no longer an issue, though I still have those infections even now and I have been told on Wednesday that there could be further health complications with my ears.

The sinus has caused pressure in my left ear which has affected my hearing due to making the ear drum deformed (hopefully temporarily); this is scary stuff as I am already completely deaf in my right ear and have been since 1997, so this is worrying news indeed.

3 Comments

Filed under My life