Tag Archives: disability

I’m not your therapy

Yes I am insane, insane because lots of people have bashed my brains

They tried to mould me to be like them, to control me and hold the reins

I don’t take it any more, this is why I rant

I know the fantasy in this blog is becoming more and more scant

But I need to release this strain of mine

Because my brain I need to find

I need to release it to the wind

I need to be free and untinned

I need to go my own way, not lean upon vagrant strays

I can’t stand upon my own two feet, when I am tying knots with those who deceit

I can’t be me when I am trying to be, something YOU expect of me

I’m not what you want, you see

I am not here for your therapy

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Filed under Poems G - I

Daily goals as a lifestyle

I no longer want to be in the league of procrastinating artists and writers, things are going to change.

For the past three weeks I have been living my life on a goal based lifestyle, thanks to some very motivational videos I have found on YouTube and the book I purchased last month called “Think and grow rich” By Napolean Hill.  Now I don’t fool myself for one second that art and writing is going to make me “rich” at all, don’t get me wrong – I am not just focusing on the money aspect, I am focusing on the aspect of happiness and feeling like I am achieving something, even if the rewards are purely emotional.

Obviously money would be nice, but ultimately, health and personal achievements for me, leads to a happy life and that is more important to me right now than financial gain.

I have had these talks before on my blog, the “No longer procrastinating personal prep talks” and they have always reached a point of returning back to old comfortable habits with excuses after excuses after excuses – I am sick and tired of failing myself and I watched on one of these videos last week that when you reach a point of being sick and tired of being sick and tired that’s when your life will start to change and I have reached that point in my life.

Living life day to day with goal based intentions for every day, is working out for me.  On the nights I forget to give myself a goal for the next day, I notice I go back into old habits, so I am almost paranoid that the last thing I do before I go to sleep each night is to list my goals for the following day, so I don’t slip up again.

Most of my goals are simple and may seem like nothing to anybody – how much do you think you are going to achieve in a day by doing these things which in their eyes, could be procrastination anyway – but for me, it is constructive.  It keeps me doing the “good habits” which make me a productive person.

My usual day to day goals are;

To write my morning pages via a site called 750words.com – this is non-negotiable, this is a must do, everyday forever.

Revising at least two pages of my old NaNoWriMo attempt from 2016, this was abandoned and forgotten in my drawers since 30th November 2016.

Writing two poems for advanced schedule posting on my blog, I am a month in advance at the moment, so the poems you are currently reading were written approximately a month before you are actually reading them.

Practise some sketches and art pieces in my sketch book, at least half a page a day.

Then there is a fifth random goal, it could be anything, such as take a walk, do something particular in the garden, bake a cake, visit someone, anything really.

This isn’t all that I do in my day, this is part of my daily goals, the idea is to get me into the habit of having something to wake up for, something to do.  I lost my purpose in life by allowing sickness to dominate me, but now I am trying to take back some kind of control in my life again and so far it is working.   I would never have thought about living my life in a goal based day to day way, if it wasn’t for the motivational archive on YouTube.

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Constant Pain

My head is swelling up

My ear is getting sore

My head starts to thump

Tinnitus begins to roar

I feel sick and lazy

I feel tired and in pain

This constant pressure in my ear is driving me insane

Every day is different, every day the same

I live in constant variations of suffering and pain

How’s your ailments?  People ask

How’s your breathing I want to say?

But I keep quiet and carry on

Like nothings in my way

One infection, one week

Another in a fortnight

A virus after that’s cleared up

I don’t need some psychic foresight

This is my life

Like it or not

I know you wouldn’t if you were me

Living in a useless way

In pain and suffering

Knock me out I often ask

Throttle me right now

Help me out of this rotten life

Please make a solemn vow

But no one wants to

So I live on

In pain and agony

I am not strong

I have no choice but to suffer this

Each and every day

Be brave others tell me

And I think more about the grave

I have no choice but to be brave I say

I have no choice at all

You think staying at home all day in pain is lovely, like a ball?

Oh if it were only so, but it’s not

I live in pain, my ear is hot

Burning inside, burning out

Making me dizzy, draining from my snout

I can’t have fun or laughter

I can’t have a life at all

For living in pain isn’t lovely

Try a day you fool

I would love nothing better than to do the school run and work

I don’t choose this life you scum bag, you idiot and you twerp

I know I’m angry that is true

But try living in my shoes

I try each day to keep myself sane

To keep my temper calm

But it’s hard to stick with politeness, when others show their qualms

She’s here to infect us again they say

But what I have isn’t contagious

I’ve had it all my life almost

Isn’t it outrageous?

I try to live a normal life

But it’s hard to do it each day

I don’t often go out at all

Not even for play

It is a lonely life I have

It is a sad one too

But I don’t want your sympathy

That’s the worst thing you could do

I just want the pain to stop

And my nose stop running too

I want to live a normal life

And get to know a person or two

I want to do the school run

Get a part time job at Scope

I want to do so many things

I sit and wonder and hope

That someday my life will change

I will find a good doctor

A consultant who knows what is wrong

Someone to cure me of all my ills

Somebody who really feels

For their patients and kind too

Someone who knows what to do

So I can breathe normally

So I can hear just fine

So I don’t live my life in pain anymore

And live the life that’s mine

I want to be free to live my life

Be happy without sickness and pain

I want to recover right now

Because it’s driving me insane

I sit and wish it won’t be long

Before I get to heal

Because if it goes on for much more longer

I, myself shall kill

 

 

 

 

 

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Filed under My life, Poems A - C

Tornado Mind

My life is like a tornado

It’s been turned upside down, inside out and it’s spinning round and round

Like my mind, it’s unstable, insecure and unsound

Nothing can quite help it – nothing can calm it down

I’m just whizzing around doing nothing, someone make it stop, and someone hold me down

I skip from this to that, my mind’s just going to rot

I skit from thing to thing and most things I’ve forgot

I dance from one thought to the next; I’m trying to catch my thoughts with broken nets

But get this – I can’t slow it down, most things I’ve forgotten before I can write them down

My thoughts move too fast for me, it’s like they’re scared of me, they flee

And I just sit wondering… what the fuck just happened to me?

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Filed under Poems S - U

I need out of this painful shell

Morbid as it may seem, death to me is a dream

A way out of this painful shell, away from this constant Hell

I cannot make you understand

I cannot see that life is grand

When it’s accompanied by agony, hatefulness and tyranny

You see the end is best for me

As there’s more to pain than you can see

I need to go where I am free

From all this pain and verily, I am ready to go to sleep.

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Droid Pox

In a previous post last year, I mentioned that I play scrabble to rev up my brain for writing each day and also to assist me in writers block; some games take on a life of their own and bring about themes or stories unwittingly.
This happened to me again on my last game.

The theme seemed to be robots, technology and disease; it gave me a wonderful idea for a story that I don’t think I can pull off because it’s too technical and I am not a very technologically minded person.

The words played were “Droid”, “Pox”, “Robot”, “Death”, “Fail” and the idea these words gave me were…

A futuristic tale based on robotic advancements that are so great, robots take on a life of their own and a new computer virus is designed by outcast Eco-warrior type people who live rurally around the cities, specifically designed to kill off the new robotic race; quite similar to the idea behind the cyber-men in doctor who; this made me think of a droid pox that affects metals, electric and robots irreparably as it sort of corrodes the metal, this will also affect the infrastructure of the world – basically things that aren’t robot specific.

Obviously such a thing will cause a collapse of buildings, bridges, transportation, trade, importation, and society, as humans will have to start relying on their own manual labor as they did centuries before the collapse and they can’t cope – some can’t cope emotionally because some of the droids affected were disabled relatives that were given lifesaving or life enhancing robotic organs and limbs etc.

I really have no idea how to pull this off as I am not scientific or technologically minded at all and I really want to write this, but I think this will be an abandoned idea.

Shame really.

I am willing to discuss this with people who are science/technology savvy on this subject and perhaps we can work together on this story?

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Filed under My inspirations

I’m back

I am back after a long illness, still not fully recovered but missed updating this blog a lot.

I had a sinus infection in December which affected the chest too and by late April I got pneumonia because of the prolonged infection; thankfully pneumonia is no longer an issue, though I still have those infections even now and I have been told on Wednesday that there could be further health complications with my ears.

The sinus has caused pressure in my left ear which has affected my hearing due to making the ear drum deformed (hopefully temporarily); this is scary stuff as I am already completely deaf in my right ear and have been since 1997, so this is worrying news indeed.

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Crystallaphones and plans

My plans for after Christmas are to find distance or online courses to learn how to read music and actually start becoming proficient in a musical instrument that’s not piano/keyboard based; this is because my interest in song writing and composing is becoming almost unbearable to ignore, particularly as I don’t have anyone in my life who’ll cause me stress anymore (other than a 3yr old son, but he’s sweet and easily worked around). 

I have found a new instrument that takes my interest and I hope I am lucky enough to do a part exchange with my electric guitar to get one, but I’ve heard to find one even in a music shop is rare, the instrument is… a crystallaphone, or as some people will know it as a glass xylophone; however it’s very likely that I’ll end up with a left handed electric guitar as a replacement (as I didn’t take my disability into consideration – my left hand has short tendons).

I am still heavily interested in watercolor painting and sketching, but I have put that on a back burner since I’ve been ill for the last three weeks, also the house needs organizing as I need to prepare a workspace for the art and the music I would like to take up.  I am slowly introducing myself to small chunks of work a week, roughly two hours a time, three days a week to settle into it because I am regularly ill, hence the unemployment I am in, I can’t hold a job down, not even a voluntary placement these days.  The mind and heart is willing but the body will not comply.

I need to find something that I can do from home but does not require me to use the telephone (not because I am unsocial, but because I have fluctuate hearing and regular ear infections that even an amplified phone is useless with) and despite this being the age of texting, not a lot of professionals or customers like communicating with staff via text only and most forget your hearing problems because when they talk to you face to face and you respond (because you’re an excellent lip reader) they think oh it’s not so bad.

Yes I know it’s strange that a person who has regular hearing problems wants to compose music, but there’s been others out there who have done it proficiently, so why can’t I?  I believe I am right in stating that Beethoven was stone deaf wasn’t he?  And one of the bee gees, he was like me, partially hearing, wasn’t he? And their music is great, isn’t it?

I don’t want to be a singer, I couldn’t take the commitment there because I never know when I am going to be sick and most of my sickness is based around practically all the aspects of the ear nose and throat, which doesn’t help for a singing life.  When I was younger I trained in opera but after the age of 12 I couldn’t sing it regularly enough to be considered talented in it, because I developed regular mastoid infections which needed regular operations etc. and singing became quite painful for me literally.

So with that said, I am trying my best to make myself a creative life and I hope that when things take off I find people who are sympathetic to those who have health problems and will help me work around them in a non-stressful manner.

 

 

 

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previous post (soldier poem)

This was actually written two weeks ago and put on schedule for today, I forgot about it personally, in fact I forget most of what I’ve written, anyway… I felt that this poem is oddly apt considering what happened here in the UK yesterday with the soldier that was attacked by a suspected terrorist movement.

That’s spooky.

I originally wrote it because I know a lot of soldiers and navy guys who come home after serving a long time in a war situation, being shot at, injured and even disabled because of what they’ve been through, only to come back to this country and get stupid teenagers in the street making snide, nasty comments about their disabilities or looks (if they’ve been heavily scarred by fire) and I think it’s an utter disgrace!  What is wrong with youths of today?  Why are they lacking empathy so much?  I tell you why, in the last twenty years the educational system is focusing too much on the children that they are becoming emotionally spoiled and therefore losing the art of compassion and empathy, that’s why!

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Filed under About my work

Piano lessons

Is it possible for someone who has a disabled/unusable baby finger to find a piano tutor who’ll know how to work around that problem?

I have played the piano since I was five years old (at my grandmother’s house), but never done so properly, meaning, I don’t work well with both hands, I also can’t read music.  I am self taught, play by ear, I want to learn how to read and write the music, so I can learn other complex songs quicker and so I can become a songwriter more effectively.

I’ve always wanted to write songs, but I don’t know how to read music.  I understand I can learn how to read music without learning the piano, but I want to do both.  I want to learn how to use my hands properly, despite the loss of use in the baby finger of the left hand.

When I was younger I was given a copy of cu-base and this helped me compose some tunes, but then I was without a computer for a while and my brother nicked the cu-based and sold it, ever since I’ve always wanted to do songwriting.  I just lacked the courage to go to college about it, because I can’t play the piano professionally, or how people expect you to, also my left hand is slow and needs speed training.

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Filed under About my work