Tag Archives: disease

Update 13th January 2018

Hardly any writing done for anything has been done this week due to the fact that I’ve had a very painful and persistent ear infection again and a slight cold.  I found out in more depths what is wrong with me, what is wrong with my immune system though I am still being investigated for suspected two or three other things that are more severe, I won’t know the outcome of these tests for another three months at least.  But part of the parcel of why my immune system is weak is because of the pernicious anaemia I’ve had since I was a young teenager (nobody really bothered to explain to me what that is, I presumed (like my mother) that is was just chronic anaemia, but it is more than that).  Pernicious anaemia can cause deficiencies in the body and can affect the lining of the stomach and the whole digestive system if left untreated, triggering irritable bowel syndrome eventually.

Because my mother never really bothered to pay attention to doctors or ask them questions we just made our presumptions and this has developed into reflux and irritable bowel syndrome causing me to have intolerances these days that are so severe I have to completely avoid lactose and egg, though I can nibble a little at gluten without too much problems now I have solicited a fodmap diet to eliminate IBS triggers and I am getting a little bit better for it.  I can eat a small amount of gluten twice a week, but I do try and stay away from it as much as possible so not to trigger a bigger reaction like I used to have.  The other suspicions are still suspicions regarding the spleen, chrohns disease and inflammatory bowel disease which is entirely different to IBS.  Fodmap diet means I have to eliminate foods that I think would not be harmful to IBS; I have found it astounding the types of food to avoid because it triggers a response in the digestive system to play up.  Foods such as apples all high fructose foods and cruciferous vegetables, which is a shame as red apples and broccoli form part of my staple.

On a positive note I have heard rumors from a lot of people that if I have a very tightly regimented fodmap diet high in blueberries and soya and probiotics then I could effectively cure my IBS within a few months.

My husband is very supportive about this new diet change and has even adopted a household approach to eating healthier and lowering everybody’s risk of developing a digestive disorder, though he hasn’t cut out lactose and gluten for him and Henry as they don’t need to.  We are now eating more fish, chicken and rice than we used to and we ate more of that than an average British family before this anyway!  Our diet now resembles more Mediterranean meets the Caribbean, which makes me happier anyway, never did have the British palate.

Now instead of potatoes with bland steamed vegetables and sausages, we now only have that rarely say once every couple of months and now our more usual diet is rice mixed with tomatoes, sweetcorn, peas and basil with salmon and a small Greek salad (no cheese or olives due to triggers).  Our idea of a Greek salad is rocket, spinach, red onion, sweetcorn, red peppers, and cucumbers, tomatoes, on average with the occasional chopped avocado or beetroot (but that is a sparse addition).  Our usual puddings after dinner is now coconut & raspberry jam gluten free cake with custard or skip it until an hour later where we have popcorn or honey nuts.

Our most British dinner is the chicken Sunday roast with gluten free alternatives for Yorkshire puddings, stuffing and gravy.

Our most likely weekend breakfast is kippers with tomatoes and gluten free bread, weekday breakfast porridge alternating with fruits on it, cinnamon or various flavours of jam.

Usual snacks need to be amended because I go for nuts and salt and vinegar crisps, which vinegar is a trigger, but it is hard to find gluten free and lactose free snacks that are off the fodmap.  So I tend to go hungry a lot of the time these days, particularly as I never feel hungry at breakfast or lunch so often skip those dinners and I don’t have a large one at the end of the day anymore because I simply can’t eat big anymore, my stomach just can’t cope with anything bigger than a large jacket potato with tuna in regards to meal size.

I am losing a lot of weight since going on the FodMap diet; I have lost almost a stone in weight in 10 days and I don’t recommend how you can do it, because for a lot of the time I am starving hungry, but have no room in the stomach for anything else it is strange.

So that’s an update on little ol me.

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Droid Pox

In a previous post last year, I mentioned that I play scrabble to rev up my brain for writing each day and also to assist me in writers block; some games take on a life of their own and bring about themes or stories unwittingly.
This happened to me again on my last game.

The theme seemed to be robots, technology and disease; it gave me a wonderful idea for a story that I don’t think I can pull off because it’s too technical and I am not a very technologically minded person.

The words played were “Droid”, “Pox”, “Robot”, “Death”, “Fail” and the idea these words gave me were…

A futuristic tale based on robotic advancements that are so great, robots take on a life of their own and a new computer virus is designed by outcast Eco-warrior type people who live rurally around the cities, specifically designed to kill off the new robotic race; quite similar to the idea behind the cyber-men in doctor who; this made me think of a droid pox that affects metals, electric and robots irreparably as it sort of corrodes the metal, this will also affect the infrastructure of the world – basically things that aren’t robot specific.

Obviously such a thing will cause a collapse of buildings, bridges, transportation, trade, importation, and society, as humans will have to start relying on their own manual labor as they did centuries before the collapse and they can’t cope – some can’t cope emotionally because some of the droids affected were disabled relatives that were given lifesaving or life enhancing robotic organs and limbs etc.

I really have no idea how to pull this off as I am not scientific or technologically minded at all and I really want to write this, but I think this will be an abandoned idea.

Shame really.

I am willing to discuss this with people who are science/technology savvy on this subject and perhaps we can work together on this story?

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recent issues

Having second thoughts about taking up NaNoWriMo, I struggle with 250 words a day these days, let alone trying to squeeze in 50,000 in a month – reason?  Migraines, frequent for months now, also I’ve been told that I am showing mild signs of pneumonia which is a worry.  I’ve been ill for weeks now and I am getting progressively worse, been practically bed-bound though for two days, thankfully I have a new laptop so I can do things when I can semi-think.

My main concern is I am unsure how the job center will react to the fact I haven’t gone to the voluntary placement interview yet, particularly as it was supposed to be for the next day and they saw me happy and healthy, but I woke up really bad and it’s not left me for almost 3 weeks now.  I am worried; I wanted to do the voluntary work too as it focuses on a charity I never heard of before but on a subject close to my heart (mental illness and mental learning difficulties and brain injuries) – hope this won’t turn against me?

I am so used to London benefit offices that I worry about every visit.  Unfortunately my husband is unemployed since the National Wildlife Trust could no longer afford him and made him redundant, this is unfortunate because I’ve always had health problems which have made problems with me keeping a job down (auto-immune problems, operations, and rheumatoid arthritis, vertigo and anemia problems as well as panic attacks), needless to say as soon as he became unemployed we had no choice but to go on benefits and they wouldn’t allow him to go on it and support the family I have to go for the interviews too.  Unfortunately even voluntary placements get funny if you have too much time off (even if you’re known to be sick), so I don’t have much of a life as far as social commitments go.

On the positive note my husband is doing home-based voluntary work for seismologists, if at the end of a 9 month period they feel he knows what he is doing he could get employed by them – hopefully the job center will be considerate about this, meanwhile he is trying hard to find work in other places but being aged 57 he is struggling to find anyone who’ll take him seriously, despite his educational and employment history being, Naval engineer, art tutor, customer services, photographer, and having an ecological degree with engineering.

I think my health problems are one of the main contributors to why I am afraid of being published, I cannot commit to anything because of it and really will publishers sympathize with a sick/disabled writer, even if they seem extremely good at what they’re doing?  I doubt it, but I hope I am proven wrong in time.

 

 

 

 

 

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Dramatic life

drama

You have dramatized your life so much that you are trapped within its tragedy

You cannot see clearly what you’ve done your life is seen as a rhapsody

I feel for you and your miserable life

I see every day you struggling against strife

But no, you say it’s not how it goes and I’m wrong, so wrong

But I see your life is a different song

One of pain, one of sorrow, one of violence will you live tomorrow?

Suicide and adultery, sex and drugs and treachery

This soap of yours I cannot live let me free from your movie script

Your life is a mess when it’s at its very best so please

Release me from your disease

 

 

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