Tag Archives: health

Other hobbies

What do I do when I am not writing?

Quite a lot actually, because I don’t write much at all these days; I have lots of ideas for things to write but I think illness has made me lose focus and passion for it.  I was a lot more passionate about writing than I am nowadays.  It is simply because pain distracts me and makes me lose where I am heading – coughing fits and a severely runny nose are the biggest contributors for throwing me off course, yanking me out of the zone, as it were.  As I have said before in many posts, I live with a perpetual chronic cold, with ear, nose and throat infections thrown in.  It isn’t just a sniffle, I wish it were, but I can get through five hundred individual tissues on a bad day, two hundred being the norm for me.

Since the 21st December 2019 the only things I have written are what are on the blog and approximately 5000 words of non-posted works of other things, but nothing contributing to my novels.  Hand written notes of other ideas are not included in this, I am spending more and more time in bed these days as I can barely move.  All these problems are giving me severe insomnia and hypersomnia.  What do I mean by that?  Well I don’t sleep at night, I seem to sleep better during the day, for some reason my chest and sinus is worse at night.  When I do eventually sleep during the day I sleep between 7 and 16 hours in a stretch, to wake up for 2 hours in a choking fit with a dry crusted mouth.  Not a pretty visual I know.  I can go 30 to 40 hours without sleeping, purely because I am too busy clearing mucus from my system.

So it isn’t any wonder why I lack focus and concentration really.

Basically, everything I do when I am not writing, are things I can do at home, in the bedroom.  Primarily with my desktop computer, as I have recently had it moved to the bedroom due to the fact I am often too sick to get downstairs these days and I have moved my laptop downstairs for the rare occasion I am down there for more than an hour.  Because my legs swell a lot sitting at the computer desk, I can only sit here for an hour before I have to rest with legs up for thirty minutes, to get the swelling down, so even if I am on a roll, my ankles start burning and that throws me off course and I have to go and put my feet up.

I read approximately 30 to 80 pages of a book per day and about half a magazine too.  The types of things I read the most are fantasy, sci-fi and comedy fiction with a lot of non-fiction thrown in; the non-fiction I enjoy are self-help books, nutrition books, history books, theological research, mythology, folklore and cultural studies.  My current reading list is Time Song by Julia Blackburn, The Toll by Neal Shusterman and Roy Vickery’s folk flora. 

I do puzzles such as codebreakers, arrow words and gardening magazine crosswords – before my chest got too bad I used to love doing 1000 piece jigsaw puzzles, but it is frustrating having a coughing fit and losing pieces across the room all the time!

If I am not too busy fighting mucus, I get to knit, crochet, sew or practise my recorder and keyboard. 

I watch TV only if there are documentaries I am interested in, I mostly watch Smithsonian and BBC four with some Drama channel thrown in.  I will watch anything with Lucy Worsley, anything about the history of jazz, soul and classical music, nature and wildlife documentaries, documentaries about farming and country life.  I like science too, so I will watch sky at night and space science programs as well as things in the past such as time commanders, gladiators and the occasional wrestling show.  I love comedies, I only watch the comedies on the Drama Channel, but I am picky about which ones to watch.  I like only connect and some quiz and puzzle shows like Countdown, but I don’t watch them all the time.  I have to be in the mood to watch TV and before I was sick I watched around three hours of TV a week, these days it’s about two hours a day.  We never miss Michael McIntyre’s Big Show if we can help it, nor do we tend to like missing gardeners world or shows such as the RHS show, cruft’s and BBC Proms.  I’m pretty old fashioned I suppose for someone who is thirty seven.  I dislike soap operas and drama llama stuff – yes I mentioned the drama channel, but there are three hours a day where it is strictly comedy and I tend to only watch that channel (at the comedy times) or food network when there is nothing else on.  Sometimes I put on a DVD and I will often choose vampires or family animations and comedies. 

The main things I do these days are play games online.  I don’t even socialise that much online anymore, because I lose concentration and people who know me are starting to think I have memory problems.  Because a coughing fit will make me forget what I have said or what I was on about.

The online games that grip me are… Roblox, yes Henry got me onto it and to be honest, Roblox has saved my relationship with my son!  Because I find his kind of games hard to do since becoming sick – Roblox has opened a whole new world for us and we play hide and seek and various other games together.  When Henry is at school, I still sneak onto the site and play bee swarm simulator, Ripull mini games and fairy simulator.  Bee Swarm simulator especially!

Other online games I play are ovipets it is a cute breeding game on facebook and I have been addicted to that for nearly 5yrs. 

Flightrising is another breeding game, but I go in and out of phases with that.  Primarily I have played this for a whole eight months without a break, purely because Henry wants to see what dragons I breed and he loves to name them and do what we call “Dragon Lottery”.  Dragon Lottery is where I look through the offspring possibilities scrying menu to see what will happen if I pair certain dragons up, sometimes I can’t decide, so I make a list of all the best ones that go with my chosen female that day and I number them, then Henry, Paul and I will choose a number from the list and put it through random.org and sometimes someone gets the number right, in which case that person must get a treat of some kind or get to choose to do something; I breed five pairs of dragons every five days, because that is how long it takes for the eggs to hatch and we have a limit of five breeding nests on this game. 

I used to play online scrabble but I have got accused of cheating because I know too many unusual words.  I don’t cheat on that game, I don’t see what purpose that serves other than the joy of creating misery on another person who loses and I am not a vindictive person like that.  I really do have a broad vocabulary, though I rarely use it outside of scrabble and I love doing anagrams for fun, so I see a lot of seven letter words and I am a dictionary and language addict, so I know words that are weird to normal people.  Here is a list of words I know for high scoring on scrabble, which have got me accused of cheating when used previously – plus, I have read books written by scrabble champions.

ZEBU – QAT –  QUARE – SEQUIN – AWK – EUOI – AIA – QI – KIMCHI – VEX – VAV – TAV – EAU – UVEA – AEON – OXIDE – POXY – QIN – QINTAR – FATWA – QABALA – QADI – SJOE – KHAKI – EUOUAE to name but a few.  I have to admit I was shocked when SEQUIN was considered a questionable word, the others I can understand, but I was sure almost everyone knew what sequins were?

I love words and word play so much I have considered about having a word of the week thing, but I am unreliable with keeping to things like that, as you can clearly see from past efforts or lack of.

Other than sketching with pencils or sharpies in bed and/or colouring in and story planning, I don’t do much else on a bad day.  On a good day I can add about an hour of light gardening to the list but not much else anymore.

I’m pretty boring I suppose, by my peers.  I can’t even cuddle the rabbit lately because I cough too much it terrifies the poor thing!  I suppose I sound like some big barking bear or something to the poor creature.

I have gone out to the doctors and walked past dogs when I am like this and the dogs think I am barking at them, they react accordingly, it is embarrassing!

 

 

 

 

 

 

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Filed under Getting to know me

Money free world

Money’s a problem all over the world

It’s a simple solution and not in a dream world

It used to be reality, for everyone around

But men fell in love with shiny rocks in the ground

It’s a funny old thing, love, but it does astound

We all have to have currency, the shiny tokens of gold

It’s to help everyone, or so I am told

But I just see greed and exploitation

Unfairness and hunger and lots of discrimination

It shouldn’t be like this, in a human world

We are smarter than this, our minds have been swirled

I have heard of a time where everything was free

Money is an illusion, you just can’t see

Warmth, food, water and a place to call home

Are all basic needs which everyone should own

You can’t put a price on good quality of life

So why has humanity invented this strife?

It’s a puzzle, it really is

I hope we’ll soon all work out the quiz

But suffering world over would end in a jiffy

If everyone thought that money was whiffy

Everyone all living a life they deserve

With food, warmth and water, what a learning curve

Imagine how far we could all progress if price wasn’t an issue we always had to address?

Money is a barrier in this modern world

Money needs to go now, a new system should unfurl

A system of voluntary work and good will

A system where people go to work still

But system where freedom is always a choice

A system where people in their lives could rejoice

A system with a world united where barriers should fade

A system where teamwork is always displayed

Yes there will be some who won’t do their share

But society is good at not keeping people there

People are good at motivating the herd

People who are lazy would be considered absurd

Even the sickest has their worth

But whilst there is still money, plenty resent their birth

It is a horrible fact, but it is quite true, whilst money is still around

It’s imprisoning you

Not just you but all of mankind

Money is very, very, unkind

Imagine your life without money there, what would you do?  What would be your cares?

How would you live?  Who would you help?

Please do think about this, it might self help

It will open your mind to what you can become

I wish more people thought that money was dumb

This poem was written quickly, I know it can come across a little uncomprehending but it was written at 5:45am on a cold foggy, frosty January morning and I have a bad chest infection and I tend to think about too many points at once and my brain gets scrambled at the best of times – but this is an important message I think.  One that really should be shouted as loud as climate change awareness, because I think, if money was eliminated and people worked together in teams and progressed without the need of money incentives, things like climate change would reserve rapidly – the cure for cancer found – the ability to terraform Mars would have already been done and so many other things.

I mean come on, think about it – do you really need the incentive of a few shiny coins a month to make you make this world a better place?  Do you really need the incentive of earning little fake tokens of your supposed value in the world in order to give you the life you want and deserve?  It is a belief system that you do need these tokens as an incentive to go to a job you hate, being stuck in situations you hate, that have you enslaved, slavery is never ever truly over, until the fat cats decide to change it.  Though how many fat cats are there in comparison to the slim?  I am talking money here not the supposed “obesity crisis”.  I have always struggled with the concept that I can’t do this, I can’t do that, basic little things that most people in the Western World take for granted, because of lack of money.  I have never ever had the ability to be extravagant – I can tell you what I think the most extravagant thing I have ever done financially has been outside of special occasions – bought, shock and horror a book that cost me £25 that to me is an extravagance!

I have never had the ability to afford to get my hair done at the hairdressers when I became an independent adult, living away from my parents, I cut my hair myself!

There are so many things that would change in my life, if money was removed from the social system.

I have been told several times by many doctors that they can treat my problems, it is easily treatable with basic surgery, however, it is too expensive for a struggling NHS right now, so therefore, until the illness infringes my life to the point it becomes life threatening, they will not help me.  Money, I am afraid to say, does determine how moral and humane a doctor will be and from my experience, it means that money makes them carefree, it makes them monsters; not just them, but everyone, people kill for money for fucks sake!

People need to learn that money is evil.  Yes, money saves lives and all of that too, but that is just an illusion – really many people would never have got to the extent of needing charitable donations if it weren’t for the problem that money exists in their world.  Most people’s relationships are affected by six core things; money tops it the other four things are, lying, political and sport debates, religious differences and general discrimination (racism, disability discriminate, age discrimination, fashion critics etc.) – people argue about those six core things a lot and that usually determines how well you get along with a person or not.  Money being the biggest factor because not only do families argue about the lack of it or the want of it, but people generally avoid creating relationships with new people in case they might become their victim in some way financially.  People become more uptight socially if they are wearing expensive clothing and have the latest mobile, than those who are poorer in the community towards strangers socially approaching them. 

People also judge you by your supposed wealth or lack of wealth.  I have been in situations of worse poverty than I have now and the general public; do treat you differently, either with sympathy or with contempt, especially if you are known to be unemployed due to chronic illness.  I have also been in a situation where I have been considered quite wealthy (though the money was never mine, I was dependent upon someone for a time) and again, society treated me differently.  I became more human the more I showed to others that I might actually be better off than them and I have had friends who are super rich or of celebrity status tell me that it gets worse the more you have, you become almost godlike and infallible and this particular person who told me this said that she hated it, because she just wanted to be recognised as plain old normal Sue; she adored me because I never treated her or anyone else any differently to anyone else.  I won’t tell you her whole name because I don’t like name dropping.  But I will say she is a very respected and talented British celebrity. 

Going back to complaining about the doctors again; When I have been too sick to dress properly or fuss over my hair, I get treated like a piece of fermented meat in which the doctor is even reluctant to physically examine.  I am clean, but I wear a baggy grey jumper and black leggings those days with trainers and my hair is in a messy bun. 

I go back to the same doctor a few months later after coming from a funeral in a dress suit with the same messy bun might I add and they treated me as though I had a brain and they spent ten more minutes with me than usual and examined me thoroughly.  Why the snobbery?  Same patient, same doctor, different clothes and class appearance!

I am going to number and list everything I can’t have because of my financial situation – then I am going to number and list what I would do and have in a world without money.

  1. I can’t have an operation to remove unusually large adenoids which makes me long-term unable to breathe through my nose and smell, it also causes severe post nasal drip and breathing problems, it affects my voice and larynx and I get throat infections 8 times a year and living with constantly ear infections due to Eustachian tube blockages purely because of the adenoids. Because of this, I have severe insomnia and hypersomnia, depends on how much my body will let me sleep before I literally wake choking on the entire gunk in my body, this has gone on nearly eight years now.  One of the biggest factors of why I cannot work, because it affects my breathing, my voice and my hearing levels.  I also live with vertigo because of sinus and ear pressure and almost constant sinus migraines.  Because of the amount of antibiotics I need, I have been developing antibiotic resistance and my digestive system is collapsing as it is affecting my gut flora.  As an added bonus because of my health problems, I am self-conscious going out, because I have been accused of infecting everyone, because I come across as having perpetual flu like symptoms, cough and cold.  It is especially difficult to go out since this new Chinese virus is going around.
  2. I can’t have an operation to stretch my tendons in my left hand which renders three of my fingers almost immobile due to how tight they are, despite how twisted my fingers are that when I fall down I am constantly at risk of breaking my hand.
  3. I can’t afford to get rid of old furniture and broken televisions, computers, cookers and washing machines via a skip, so have to store them in a corner in the garden and I hate that, because I am extremely house proud and as far as the neighbours are concerned by our back garden, we must be pack rats in the house, the nasty hoarding sort – but we’re not. We don’t have a car or anyone who has a car who would be willing to help for a day.
  4. I can’t afford to get my son to socialise outside of school, because I can’t buy him the rugby kit he wants and I can’t afford the membership for the marathon club. Though there is light at the end of the tunnel for his marathon club, Henry has been seen doing so well at free running events around town that we have been told as soon as he is 10yrs old (which is May 2020) he will be eligible for sponsoring and free membership!
  5. I can’t have a balanced diet which meets my needs; even the food bank struggles with someone like me – gluten and lactose intolerant with a few other allergies thrown in like certain herbs and fruit allergies. At least once a week I have to consider eating something I am intolerant to, because our budget can’t stretch for the whole week.  It’s either that or having an entire day of just meat and potatoes with hardly any or no veg and maybe some sauce.  When money was better 2yrs ago I was having an 80% paleo diet and my health bloomed, I had more good days than not.  But when the government cut that evil thing – money, I had to cut the food and my body isn’t responding well to that.
  6. I can’t afford a fish tank and supplies, a dog or some chickens.
  7. I can’t afford certain gardening tools and supplies which will help me grow more food.
  8. I can’t afford to get a gardener to help me when I am on a run of bad health. I regularly get bed bound sick where I can’t do anything for 6 to 8 weeks at a time, by that time, my garden is ruined when I get back to it, by aggressive bindweed.  The bindweed in my garden are triffids – I was ill for 9 weeks last summer and it managed to pull down and break an entire 7ft cherry tree I had put in.
  9. My husband knows I need to get out more and see the doctor a lot more than I do, but I don’t go to see him more than once a month (though it is essential) because it costs us £12 a time in transport. Therefore, we can’t afford a car and we can’t afford to pay for me to go out, so unless I can walk somewhere, I can’t go out, so I am even more isolated now.  I am also not eligible for a disability scooter for free, because my problems are not mobile, it is mostly breathing problems due to enlarged adenoids so they don’t take that seriously at all mobility.
  10. I am struggling to be able to pay for the amount of tissues and symptom relief things I need. Such as throat lozenges, vic rub, Vaseline, sanitary towels because my coughing fits have weakened my bladder severely.
  11. I have lost a lot of weight since becoming very ill, losing weight because coughing fits have made me become involuntarily bulimic and with the lack of affordable food I can eat which fits into my dietary needs, it is hard. I have lost nearly 50 pounds in the past four months and I can’t afford to get smaller clothes, so I am wearing clothes that are ridiculously big on me.  I know there is gumtree and all of that, but really it is hard to travel to pick things up and the women getting rid of their clothes don’t like the idea of a man (my husband) picking it up for me without me present, tried.
  12. I need a wig because my trichotillomania has got worse, but I have to make do without one and tolerate the whispers behind my back when out.
  13. My bed is broken and needs to be replaced because the frame broke when Henry jumped and pulled on it last summer. I can’t afford it, so we are literally trying to hold it all together with planks of wood and gorilla tape.
  14. We’ve lived with a leaky roof in our biggest bedroom for eight years now, we can’t have the roof fixed that would be 4k, heavy rains with a northerly wind causes havoc. Also our utility room roof has caved in too.
  15. Our toilet is coming away at the wall, again we’ve had to resort to gorilla tape and sealant to try and make do until we can afford to replace that too.
  16. Henry needs new clothes too, he is growing fast, but he has my problem at the moment too – having to wear clothes too big, because he is wearing his father’s hand me downs to keep him warm this winter. Thankfully Paul is a stick and is the smallest man’s size in clothing and doubly thankful that Henry is taller than most for his age. 
  17. Our sofa is broken and that needs replacing, we don’t sit downstairs anymore because of it. Also because it is winter and we had our gas fire taken out and gas supply to the fireplace removed because it was unsafe four years ago, so we have no heating in the living room except for an electric fan heater and we can’t afford to use that more than an hour a day.  We put it on whilst we eat our dinner, we don’t eat dinner in the dining room anymore because that is even colder than the living room.
  18. I can’t afford my psoriasis shampoo and wash, so have to tolerate discomfort as the NHS has refused to prescribe me again for more, told me to buy it for myself if I need it. Also they don’t fix hearing aids in our hospital anymore; I have to go to boots, so I have a malfunctioned hearing aid now, which means I am completely deaf a lot of the time. 

Surprising isn’t it?  This is England.  This is the 21st century.  Bet you didn’t know people like me still live like that?  The funniest thing is, I am one of the better off ones – one of the least poor, there are others worse than me, I have known them.  If you think my situation is shocking, honestly, you are a very sheltered person who needs to get to know others outside of your social circle a bit better.  I have known people so poor, that despite sugar tax, it is cheaper for them to get more calories into their child with a packet of haribo sweets than to cook them a veggie dinner.   I am not that poor yet and thankfully Henry has manageable allergies.  My Henry does however, live on sausages, mash, cucumber, carrots and baked beans more often than I would like, but that is the cheapest food I can get him that he is guaranteed to eat in full.  Some of the nation’s poorest can’t even afford to give their kids beans on toast, so I really can’t moan that much I suppose!

I am not poor enough in the eyes of the government to need charity help or help from the council, because we own our home outright and therefore we must fix things ourselves.  We’ve been told that if things are so bad, why not sell up and rent?  Because our money will only last five years, I would lose benefits and security in one fair swoop and we have no means to pay the rent, it’s unlikely that I will ever get well enough to have a proper job and Paul retires in three years.

In a world of no money my life would be bearable, it would be happier, it would be easier and our needs would be met; because people are more humane to those in need when they are equal to them.

Here is my no money list.

  1. Even though I am sick, in a world of no money I would have to contribute to society like everyone else.  But society would be more understanding that not everyone can cope with long hours and hard labour.  I would help places grow food or advise people on gardening for food, even on my sickest days I could sit on the internet on live chat, helping some gardening in need with various issues.
  2. I can help the world with aesthetics, by giving people my artwork to decorate their homes with, giving people my poetry and stories in books for them to enjoy. I could even get a group of actors together and we can make plays and movies based on my ideas.
  3. I would go to a workshop on my good days and help teach people how to make preserves, jams, chutneys, allergy free cakes and breads.
  4. I could do motivational talks.
  5. I can help sew and repair local peoples clothing from home, if they deliver.
  6. I can teach people about which flowers are edible, to help broaden peoples diet.
  7. I can do the occasional arts and craft workshop to help people recycle and upcycle things.
  8. I can help people learn French.
  9. I am a good massager and manicurist.
  10. I am very good with people who are suicidal or going through a dark time. I have had several people say that if it weren’t for me they wouldn’t be around anymore.  I have often thought about becoming a therapist, but in the last five years it is debatable whether or not I will be a hearing person in the future or not.  In fact, I have been told to prepare myself for becoming profoundly deaf to becoming totally deaf with a deaf dog support.  So I gave up my course as soon as I heard this.
  11. All my household problems would be solved, no dangerous stuff, more respect from neighbours and warm living room that is comfortable.
  12. I would be able to live the diet that is optimal for me as an individual.
  13. My operations would have been done before my health got this far and I would probably be able to do more things than what I listed above.
  14. We would have an electric car.
  15. We would have a dog, a full fish tank and some chickens in the garden.
  16. We would have tools for the garden and help in the garden.
  17. I would be able to wear appropriate clothes and so would Henry.
  18. We would have a safe bed.
  19. I would probably need to apply for a house extension so I could have an extra room to use as a library.
  20. I would be able to get out more.
  21. I would shave my hair off entirely and get a wig, so I learn to stop pulling.
  22. I’d go to the cinema once a week.
  23. We’d go for a pub family meal on Sundays like we used to.
  24. I’d take Henry to the big televised rugby matches.
  25. I’d adopt four kids and concentrate on getting my body healthier, rather than push my body to get that second child I want.
  26. We’d go out on a big family day out once a month at least – a zoo, a museum, a steam train ride, a bowling day out etc.
  27. Because a world without money would be more cooperative and free, I would be free to lend my services to certain people. I would be able to assist the local elderly, cook for them, visit them to keep them socialising, take them out, play games with the playful ones, and do the same for the severely disabled. 

It is all just hearsay I know.  I am down to earth enough to realise that I may still be struggling day to day with my own needs, like I am today.  But even in a world of no money, I could manage to help society from home, in my bed with online talks.  I could go out for one half day a week doing any of those things above and still be a worthy member of society who does her bit.  Basically, I would have a better life than I do now.  But because of my current needs, ESA will not tolerate someone who can do half a day of something, without pulling the carpet from under them and saying “well in that case you can work, we will take your money from you henceforth”.  They don’t care that my illness is such that I can go out for one half day a week, but I will be bedbound for four days after it and so therefore will not function around my own home – that to them, doesn’t matter.  What matters is getting me off benefits at any cost!

I am saying, in a world of no money, I can volunteer to be present outside of the home every 4 to 7days, if society tolerates someone who has a permanent streaming nose and allergies when she does it – I often feel that people recoil from me a lot when I am out about and this leads to me thinking things such as “Well why not just euthanize me now, then?”.

I burden too many people with my presence, they make it all too obvious and people who work in benefits don’t help matters!

Money is evil, it makes us heartless.

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Filed under Opinions and beliefs

Not a poem, food food thought

The world is a confusing place.

Everyone wants acceptance and yet they all criticise others.

Everyone wants peace of mind and yet they will still hold grudges and set themselves up for failure or arguments.

Some people want a better life, yet instead of trying to find a way to make their lives better they would rather end it instead.

It is easier to hate than to love for many.

It is easier to ignore than to question.

Everybody wants a better world but no one is ready for the effort and strife to make it better.

A single person has a lot of power, yet they choose not to use it, because they have no time, energy, health, they have other commitments – so they sit and watch TV or play online games for three hours without fail every evening; instead of doing something constructive that will either improve their lives, the lives of their family members, a sad friend or their environment, it is strange, but true.  They would rather poison their bodies with junk food, alcohol and drugs, than spend that extra fifteen minutes in the kitchen to make something healthier for them, something that will prolong their life and give them better mobility or health.

A lot of people would rather not see that they are doing this because then that would mean that they have admitted to being a failure in some way; they can’t pass the buck, they can’t blame anyone but themselves if they realise and admit it.  People can’t stand being wrong or thinking that they are more ignorant than they know.

People would rather walk out in difficult situations rather than solve them, they would rather break up or divorce someone than work it out – because of the time and energy and self-satisfaction factor.  If you want a relationship you need to look first at how much you get along with the person in a non-romantic setting, are you good friends?  Then you have to question whether or not you both have the same life goals, morals and ethics, then after these things are established and known, you should have a relationship together and once in that relationship it should be easy to focus each other on remaining with each other, supporting each other as friends, working things out like a team – not abandoning ship.  If you feel you are a person who cannot be strictly monogamous for goodness sake be honest about it before you let someone get too deep with you – the world is more liberal than you think!

People have got to start becoming more open with the people who are involved in their lives.  They have to work together, work things out, they have to get out of the habit of this throw away culture – because people are treating other people like material possessions too much – this will eventually lead to us all losing our humanity, it is bad enough as it is with the millennial generations mobile device addiction, let alone allowing ourselves to continue how we’ve always been.

Humanity needs to concentrate very deeply on their psychology, on the way that they think, how they handle things.  No more should people just simply walk away when the going gets tough, because that will never solve anything and will only poison your spiritual environment more and more, attracting more negativity to you.

We are probably the loneliest generations ever known to human earth.  More and more we are cutting ourselves off from others.  It was said once that the average human was close to 120 people at all times with around 1000 known acquaintances – but recently that figure has dropped to a contemporary socialite having only 26 close contacts and around 300 acquaintances – online people you have never met do not count – if it did, I would be extremely gregarious!

Fifty years ago it would be normal if a friend knew you were sick and lived in the same street, to come and visit you and make sure you didn’t need any help and would make a fuss about helping you even if you didn’t want it – these days, they could care less.  So long as visit and visiting is exactly 50/50 split, like tennis, taking turns one after the other, they couldn’t be bothered to come and see how you are – even family life is becoming like this.  I have never liked the concept of a nuclear family, I always wanted to have a lot of children, but ill-health dictated that to me as well.  I do not like it, I would love nothing better than to have around five children and a little organic smallholding in a suburban place somewhere as I can’t do strict rural again.

I’m really very lucky at growing vegetables in particular, they seem to yield more than average for their type and are always bigger than expected, I have often been told I should attend vegetable shows, but I would feel silly doing that, sometimes people in those contests get a bit daft.  Now if I was to show anything, it would be dogs and guinea pigs, I would love to do that eventually.

The purpose of this post and like many more to come is to broaden your mind and help you see how you can try to have a better and happier life.  I am going to stop writing more to this now as I have noticed I am losing focus and it is 5am when I am writing this on 19th January 2020.  I will schedule this for later in the week, because I have a lot of things going on at the moment.  I am not yet over the pneumonia though I feel better today, but in the next few days I have several medical appointments to get to as well as an ESA medical and another minor operation (not sure they’d entertain that if they know I have a chest infection, it has been cancelled 6 times before because of serious sinus, throat and chest infections, it takes 6 months each time to get a new appointment).

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Filed under Brain Drain & Dribbles

Considering non-fiction

A common piece of advice in the writing world is “write what you know” and although I do like to write a lot of things for research and so forth I have never really completely considered writing non-fiction before, but now I feel I would like to, for magazines eventually.  I have contemplated writing for a couple of specific hobby magazines because I have extensive knowledge on their main subjects.  I am going to list what I feel I know a lot about here and I may or may not share posts in the future of these subjects just to give you a taste of what I know.

Gardening

More specifically no dig, organic, permaculture, poly-culture style gardening.  This also includes wildlife gardening and creating mini-ecosystems, building a pond and dry stone walling.

I am also very knowledgeable in wild food foraging, where plants originated from and native British species, this also includes an interest in garden ornithology, and I wouldn’t say I am a bird watcher, but I pay too much attention to the wildlife and bird life within my own personal property that I have gotten to know their numbers as well as their habits.

I would also say that regarding garden pests and flora disease I am also a very knowledgeable biological warrior, using only nature against nature, nothing man-made, to benefit my plant-life, this means I will sometimes grow things I don’t specifically want, simply to provide my garden what I call “Sacrificial” plants.

Along with this I have had an avid interest in flora folklore/superstitions and ancient medical uses and my flora Latin is quite good, almost Carol Klein like.  I keep up to date with the gardening world as much as possible and before my health and benefit cuts happened I was a subscriber to four of Britain’s most renowned gardening magazines amongst other magazines I was interested in – bit of a magazine addict I was/am.

I have a huge amount of experience gardening a lot throughout my life (not professionally) but in the past three years specifically it has been only in dribs and drabs and the garden is looking a mess to put it lightly, namely because of health complications.

American professional wrestling between the years 1990 and 2003

I was an addict of watching wrestling when I was 10yrs old right up until I met an ex-boyfriend who didn’t approve of how much I loved wrestling.  I watched every kind of wrestling that was available to me, I bought every VHS and DVD I could afford at the time and I was even planning to go to America to learn how to wrestle – upon reflection it is a good thing I didn’t considering my career would have been over aged 30 because of these health problems!  I read a lot of wrestling magazines and body building magazines because I was so into it, then aged 21 I kind of grew up and loss contact with wrestling almost completely until last year.  I now sparsely watch TNA and AEW.

I am not sure I could write very much about what I knew from that long ago because it would be considered too ancient for anyone to care, I suppose?

Dogs, dog breed histories and dog training and grooming

I have been considered by people who know me as being the female British version of Cesar Milan as I seem to be a dog whisperer and have helped several people understand their dog’s behaviour!

I know it sounds absolutely awful but a few weeks ago on TV there was a show on it called train your baby like a dog and I have to say it is absolutely true – I see no difference whatsoever in training a dog than I do a baby and vice versa, it is very similar!  Every social creature has an innate desire to become dominant within its social circle and this usually is the worst during infancy, every social creature eventually learns through infancy and good guidance from its elders that it has to follow rules or there will be ramifications, it is not different to humans at all.  Humanity has to get over this silly idea that humans are different to animals.

You get a neglected child and they tend to grow up off the rails and they attack authority at all costs in many cases, you get a well nurtured child and they are more likely to fall in line and be a good citizen.  I know from personal experience not every child who is neglected grows up to become an anarchist, because not every child in the world has the desire to control others.  Children like I was simply wanted the world to be a lovely peaceful place and this in turn, made me quite a submissive and quiet individual.  My brother on the other hand was the type to go off the rails and fight authority all his life.  My other brother was nurtured pretty well because he was a love child and was wanted, unlike me and the other brother, consequently he is a neutral person who has a good relationship with his mother and is socially stable with very little emotional problems.

It is the same with dogs in my opinion.  You nurture that dog like it is your personal baby and depending on how much discipline you demand of it, it will either take advantage of you and become a nasty biting little dog, or it will grow up a stable individual who loves his mama and will obey at all costs.  By discipline I don’t mean shout and yell or kick and hit, that is disgusting behaviour which will eventually become a habitual behaviour in whatever creature you are nurturing as it will become a normality for them.

With a dog, like a baby and a toddler you command and teach with as few words as possible that you repeat regularly so not to confuse them, so it sinks in and you give them infinite patience no matter how you feel.

Superstitions and folklore around the world including cryptozoology

I have had a massive interest in all things supernatural and all things strange and unknown since I was around seven years of age.  I have studied extensively as many books on the subject as possible, particularly witchcraft and vampires, but there has been other creatures and situations I have been interested in hugely.  I have also been interested in peasant folklore and their beliefs, such as talking to the bees, bowing and saluting magpies and being aware of what colour and type of flower you bring to a person or a house.  I am interested in the Victorian art of the language of flowers, something I should have mentioned above in the gardening section.  I have been gifted beautiful bunches of flowers and often hide a laugh behind my polite thank you smile, when I notice I have been gifted red and white lilies as in some superstitions around the world red and white denotes death as well as lilies being the flower of death.  I don’t hold with the superstitions myself, but I love learning about them.  For example, I have bought lilacs and hawthorns into my home as part of my cut flower display for the dining table, many superstitious people would say that my health is my own fault then, because those plants bought into the house will make the head of the house sick and even kill them within a couple of months.

World History primarily European and Chinese history

This is another subject that I am interested in, particularly my own personal genetic history and the history of aristocrats, royalty and gypsies, also ancient warfare and combat.  The history I am interested in is vast, I also love reading about architecture too and fashion from the ages.  I have a lot of useless information in my head if I wasn’t a writer, but as I am a writer these so-called useless bits of information that seem to serve no purpose are actually polished gems which will help me create real feeling worlds in my novels.

Food is another interest of mine

I am knowledgeable in vegan and vegetarian dishes (but not a vegetarian or vegan myself), the paleo lifestyle and the diet known as The Wahl’s Protocol, Mediterranean diet, Indian and Chinese diet, as well as desserts and pies and so forth.  I love cooking and baking, sugar crafting and making homemade sweets, cakes etc. you name it, I love it.  Despite my allergies, which adds another skill to my list, all these things above I can do gluten and lactose free!  I don’t just research recipes and share them either, I am so interested in the world around me and how to keep healthy (because let’s face it I need to try and stop being ill) that I can tell you the sorts of vitamins and minerals you will find in each piece of food you eat as well as tell you the best way to grow it and it’s best companion plants in the garden to grow it next to and the type of soil it needs for the highest of nutritional benefit!

I make compotes, jams and chutneys, soups, pies, pastries, cakes, bread, I am just very versatile in the kitchen, but I must warn you… I am one of these strange people in life who can’t do anything simple like omelettes or frying sausages, without burning them or myself, the more complicated the recipe, the better I am!

Chickens too

Yes you heard it; I am knowledgeable about keeping chickens and how to keep them healthy, including any plants you must avoid around them and using their chicken manure as well as making excellent homemade chicken stock and soup.

Gemstone healing

I used to be into this big time, but lately I am so ill with so many things going on that unless I lay down for three hours a day I really don’t benefit much from these anymore, simply because I can’t lay down for more than 3 minutes on a bad day without choking.

But the stuff I know seems to work for others.

Religion and religious history from around the world

Despite being renowned as a person with humanist leanings and having no precise religion, I am actually quite obsessed about learning about religion in all its forms and researching intensively.  I don’t have a religion because I don’t like to commit to something which could actually be what I call a “deceivers religion”, I am paranoid about getting it wrong.  In a lot of my research material I have discovered amazing things that have surprised me so much I have been absolutely stupefied at how little so-called pious people know about their own faith and its origins.

I try not to preach to people when religion is bought up (only inform so they can make their own decisions about things) but I am shocked about how little they know of their own faith, it is hard, but I have made a point that as far as religion and politics are concerned, I can air my beliefs online on social media but I will not engage on any debate about it, because once you commit to something like that, it will become a never ending argument as neither side tends to relent.  For some religious people, when I simply state “each to their own and lets agree to disagree” they simply won’t leave it at that.  I have extensive knowledge of Judaism, Catholicism and Christianity in all its forms as well as Hinduism and Buddhism; I haven’t much knowledge just yet on Islam or Sikhism unfortunately.  But I also know a lot about ancient religions such as Norse, Greek, Roman, Egyptian and especially Sumerian beliefs.

It is interesting to read the origin of Christianity too; a lot of the original beliefs are not upheld in Christian communities of today, a Christian from the time of Christ’s death around the time it first started, would have a problem digesting a lot of what goes on in Christian communities of today.

For me personally God is gender-less, they do not have a name simply as being known as a creator or more specifically the creator, I cannot give them an image nor assume that they are in human form just because I am, I will not presume what he deems is good and evil, but I do believe he will give me the innate instinct of knowing what he thinks about certain things I am pondering before I do them.  If I think I would feel bad or remorseful after doing something, I generally consider that as a sign I must not do it and I have had this belief for nearly 18yrs.  It is naughty to presume anything about God or the creator, no one must think they can speak for him or make laws based on what they believe he wants – because I do also believe there is a deceiver who works against the truth and that is the evil in the world.  If anything hurts or kills or hates or does anything remotely negative, it has been influenced by the evil in the world or the deceiver as I call them.  I will also state that I do believe billions of people can be wrong, because billions of people can be duped, look at the concept of fake new for one thing – fake news is not new.  I must admit I have been planning a book on this, but I am scared I will become the new Salman Rushdie with death threats and so forth.  Paul believes he has never met a more pious person in his life, pious but without religion, pious but without an explanation to the world and he would never dare call me religious in a mainstream sense, because that would be very wrong, there is no religion in the world which is remotely pure enough that it cannot be tainted in some way and I believe I am by far from perfect, no one can be perfect in a world where evil resides so freely.

Some people in the past have considered me to be a Satanist, simply because I quoted something that Satan was reputed to have said once.  I am trying to remember the source where I read it from, but he was quoted in saying “I do not hate God, but I hate the God of man”, which in my opinion tells me a lot, it tells me that the God of man is what man has made for himself either by humanities own design or by the design of a great deceiver, which also shows me that Satan is not someone who is at war with God if I were to believe the Judo-Christian concept – it means there is a different devil at work, someone who has cleverly kept his name unknown and has spread bad media against those of the truth, whilst endeavouring over the centuries to conceal, hide and destroy the truth, to confuse humanity with false knowledge.

It is very deep stuff, but it is worth thinking about.

I believe wholeheartedly that there is a balance in the universe and at present the balance is tipping hither and tither good and evil, there is definitely a power struggle and I have no idea why humanity is key in it all nor whether or not humans are the only creatures on earth who have a religion, because I am not Dr Doolittle.  But we can’t presume that animals don’t have a religion no more than we can presume what the truth is.

You can find the truth in a lot of lies, because a liar can never remember their own lies and will often slip up.  If you read many conflicting religious ideas over the centuries you do begin to see a pattern of both inconsistencies and consistencies.

I know I am religious in my own way because five years ago a person in the street yelled next to me at some Jehovah Witnesses in Birmingham this “God is dead”! and for me, that was a knife through the heart and stomach and it made me feel quite ill, it affected me badly enough that Paul had to stop me ranting at them about how wrong and evil they were to state it.

I know some of my poetry seem to attack God directly, but you have never asked which God I am writing about.  Usually when I write about God so venomously I write about the God of man or the deceptive God and I will tell you something extraordinary and you may not be inclined to believe it.  But when I was 25yrs old I spoke a lot about my beliefs on four religious and spiritual forums and I was researching for the truth, I discovered many things, many so-called secret societies and secrecy in general, I was shocked to find in my private message box, a message from the Vatican telling me that what I say may or may not indeed be true, but I must stop talking about it, lest I have problems from them.  Thinking nothing of it, for a short while in my life I noticed I was stalked, primarily by priests and nuns which is unnerving and a strange coincidence.  When I decided to stop vocalising about it all, they stopped following me.

Now is this a coincidence?  I was never really sure.  But it is food for thought.  Coincidentally, seven people I knew from the forums that refused to be quiet on the same subjects, died in accidents in less than two years after my silence and a further two people were arrested for apparently nothing and was never released, weird enough their families and friends are unable to visit them which has caused big stirs with the authorities.

It is a strange world out there, stranger than you think and more secretive and deceptive than you think.

Arts and crafts

I have a  broad scope of knowledge regarding arts and crafts, from doing 1000 piece puzzles, to knitting, sewing, embroidery, decoupage, greeting card making, scrap-booking, felt making, making Christmas and Halloween decorations, you name it, I have probably done it for a time. 

Learning languages and having an interest in the origins of words and names

For some of my friends I can come across as a bit of a Susie Dent from Countdown to them, I will explain the name and origins of their chosen names for their babies and I will bring up words they’ve never heard of before because they have recently been removed from the English dictionary and I am vainly trying to popularise those words so that they can get back into the dictionary once again.  I had a huge debate three weeks ago with a bunch of online friends about the new username I have on a game site we use, the word was Eventide, a lot of people misunderstood this as being Eve as in Adam and Eve and some others thought what does ide mean?  Because they thought I meant event ide as some thought perhaps I loved fishing!  Well no, eventide is old English for evening and they can’t understand why I just didn’t name myself Evening instead.  How boring.  A lot of people are forgetting the use for the words dawn and dusk and even twilight, you say the word twilight now and they instantly think shitty teen vampire movie.  Twilight by the way is my most favourite time of the day, it is so beautiful sometimes and I have often thought about naming a daughter Twyla because of it, though the meaning of the name Twyla is old English for two or double, usually given to a twin daughter a lot like the name Thomas for boys, which also means twin.  I know quite a bit of Latin, I am currently a level 3 Italian students, fluent in French, tourist ability in Japanese and Spanish and I have learned excellent methods of learning languages at an incredible speed.  If I practise a language an hour a day I am usually fluent within the year at most, regarding languages I am a fast learner, astute, adroit, you name it!  It can be difficult to speak in all the words I know because I still have that working class way inbuilt into me, but I can shift the manner of which I speak very well to whomever I am talking to at the time.  I don’t mean my voice, I don’t mean my personal mannerisms or accent, I am simply talking about going from tabloid to broadsheet whenever the situation needs it!  I often sit there, with my semi-working-class accent talking to people of upper middle or high class talking to me, they think working class, OK, I use some big words here to make myself sound smarter and I sit there and grin because I can use big words too, it is a lovely feeling to have, smarm.

That’s about it really.   That and general literature, but that is mostly useful for quizzes or recommendations rather than being a piece of worthwhile knowledge.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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Filed under About my work

Munchhausen victim

Trying to be bright and happy is a hard thing to do

When you are ill and ailing and feeling very blue

I put a smile on my face for all the world to see

How my smiles lie to you, you have no idea you see

I learned to lie awhile ago about how I truly feel

Because if I didn’t do it, I would be stricken ill

You don’t understand the metaphors or words I am using here

And I don’t expect you all to; you’re all such lovely dears

So I leave it all to the imagination and a clue is in the title

It is a representation of my past, something you should know it’s vital

So now I will end my poem, opening up your minds

I hope you get the message; getting someone’s understanding is hard to find

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Filed under Poems M - O

A plan, lost time and mindless jealousy

Going back to my post about social media from the other day, I have decided today to make a list of people to watch on social media to try and make me more social with the people I love speaking to and getting replies from.  It will help me manage things better, I am a person surrounded by endless lists for things because my illness can make me too preoccupied with trying to manage my symptoms such as coughing mucus several times an hour and that sort of thing, that I can often forget to do important things such as drinking fluids, eating and even socialising.   

Paul has suggested in saving up to get an Alexa for me, so that it can remind me every half an hour to take a sip of my drink because it is becoming a big problem for me and he thought as well that this can remind me to eat and even socialise.  I sometimes go two weeks between reading emails too, because on bad days (and I am getting more and more of them) two weeks can feel like two days to me, there are times where I haven’t spoken to my favourite cousin online for six months, but to me it feels like two weeks, when I look at the last time stamp I apologise profusely for the time span between our last chats and overcompensate by talking for three hours when I do finally get to contact them again.  It is bad to consider that I make more posts for my blog than I do in contacting people I know in reality.

I really do lose such big chunks of time because of my illness, I go into a groundhog day whilst the entire world moves on and have normal different days and they get to partake in the events of the future whilst I am still struggling to breath and thinking its Sunday.  Henry comes into my bedroom to shake me awake as I am too deaf to hear him say good morning until I put my hearing aids in and I ask him;

“Why are you wearing your uniform on Sunday”? 

“It’s Thursday mum” he says.

“Oh that happened quickly”, I say whilst trying not to fall back to sleep.

But a lot of the time I don’t go back to sleep for twenty minutes because my chest needs clearing and I have to go to pee, but it is a struggle to get there whilst choking and I have a bucket midway between the bedroom and the bathroom because I often choke so bad I vomit.

On bad days those coughing fits don’t calm down for nearly two hours before I can rest again.  It is difficult to be like this when my personal doctors surgery is only opened for 8am to 4pm every day and they prefer to use after 12pm as emergencies only – I never really had a planned appointment from the doctors because my personal GP rarely works the emergency shift and if I want to see him I need to wake up around 5am just to clear my chest, get dressed and eat then rest for an hour after eating just to get to see him for 10am, they are aware of this but I am sure they think I exaggerate!

If I get the flu it lasts for 4 to 8 weeks on me because by the 5th day it always turns into bronchitis and by 2 weeks it goes into borderline pneumonia or pleurisy, doctors are worried by this, it is happen too often and I am showing signs of antibiotic resistance too!  

To all those people who work full-time and hate on people like me who rely on benefits to live and often say venomously how they wished they had my life sitting back watching TV all day instead of working – well I beg your pardon, most of the time I am too deaf to watch too much TV because of severe ear infections and I can’t hear music either during my bad days, all I get to do is read or be online and sitting at a desk is tiring, so you want my life huh?  You can have it if I can have yours!  I’d love nothing better than to work if it means I get great health with it and a great social life!

Welcome to my life for the last seven years, pretty isn’t it?  Yes, please do be jealous of this so-called lazy fat bitch, because my life is great isn’t it?

 

 

 

 

 

 

 

 

 

 

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My lifestyle for food, skin and health (or what little there is of it)

A few people will be astounded to learn I am nearly forty as a few people believe that they think I am in my mid-twenties, I don’t look my age apparently.   Have been told by a lot of people that they believe me to be incredibly young, three or four years ago were the last time I tried to buy alcohol and was asked for ID because the seller felt I was seventeen, which wowed me.  Maybe he just fancied me?  But I have had straight female friends who are much younger than me have their mouths drop open when they realise I am fifteen years their senior.

I believe it has something to do with how I treat my skin and what I like to eat and drink.  I took Honour Blackman’s advice when she was on a show when I was around eleven years of age that she has never washed her face, she uses only moisturiser with some cotton which she dabs and never rubs.  I do indeed wash my face but never put soap on it ever, I wash with plain filtered water, hot first then ice cold, I do use a moisturiser about once a week which is Nivea crème, I use this crème on my face, elbows and knees, my elbows and knees are as smooth as a child’s.  I drink cranberry or raspberry juice twice a day, I drink a lot of water with very, very watered down fruit juice concentrates, I have never really been one for tea or coffee, I never grew up.  I drink around six pints of fluids a day if I am not having a bad day, on bad days my body can’t keep fluids down.  I drink green tea about three times a week and a hot honey and lemon most days.  I love berries and eat them daily, prunes, raisins, dates when I have sugar cravings.  Chicken and fish being my main meats with lamb once a week if I can afford it; lately lamb is a once a month treat.  I love pickles and sauerkraut and I aim to eat a whole cup full of green leafy vegetables per day.  My diet has to be gluten and lactose free because of intolerances which make my illnesses much worse, two years ago I was hospitalised with bronchitis only to find out that with other symptoms I had, I had severe intolerances and my health has improved vastly since shifting onto a free from diet.  I consider my diet to be a semi-paleo, Mediterranean and Asian diet these days.  I say semi-paleo because I like beans and pulses and I will eat gluten free rice, pasta, oats and potatoes, hard-core paleo dieters will slap my wrists for those.  Despite all of this I am very overweight still, though slowly losing the weight since the shift.  I am around forty pounds lighter than I was before the lifestyle change.

I will admit that temptations do set in and I often sneak in gluten and lactose into my diet with severe ramifications which affect me for three to five days after eating them, I have done this around once a month since the change.  I am getting tired of this and getting to the extent that if I don’t have enough fruit and vegetables in my day I actually feel really ill, so it has got to the extent that I need to eat around five pieces of vegetables and a fruit a day in order to feel relatively ok in comparison.  I am happy recently that I have found free from Paninis, hot dog rolls, burger buns, naans and tortillas which don’t take like cardboard, so the idea of becoming totally gluten free permanently is more doable.  I have found lactose free whipped cream and single cream, which also helps and the other day on TV I learned that Hotel Chocolat does lactose free options which is exciting, because I love truffles, which they do lactose free – I generally don’t like chocolate much though because it clogs my ears up sometimes, so chocolate is a once a month treat and it is usually only about three or four mouthfuls. 

I am impossible to cater for food wise because of my allergies.  I am intolerant to gluten and lactose, allergic to pineapple, flax/linseeds, camomile, thyme, shouldn’t really eat eggs as it gives me wind, should avoid binging on chocolate due to ear blockages, there is an unknown spice at the local take away which also causes my mouth to burn and swell, never knew what that was!  Beef can affect me in a bad way if I eat it more than once a week; I eat starchy foods but not too much because that affects my body too.  Certain candies can make me extremely hyperactive mentally and sometimes physically which can be dangerous when ill.  I am really difficult to cater for since discovering these allergies and reactions.  When explaining to a friend at Henry’s school a few months ago called Dee, she shook her head looked at me and asked “what do you eat”?  At the time I was good for seven months solid, without breaking my free from diet at all and I had 9 weeks of what I call, normal health, then I caught a cold and thought fuck it all!  I never did get that streak back.  Purely because the government cut our benefits by £200 a month, so the above diet I had is no longer possible!  At the time it was very strict, I only had gluten free products once a week to satisfy beans on toast cravings or ham and pickle sandwich cravings.  I still ate eggs a lot though, but it was a windy time.  I had health, but I stank, but that was OK for me, unless I was on a bumpy ride on a bus.  I ate fish, poultry and lamb, salads and vegetables, I made sauerkraut three times a week, I had lactose free cheese and omelettes with samphire and spinach.  It was tasty, but boring and predictive and being on benefits I can’t afford to eat as regularly as a normal person should.  I can’t afford it on a strict paleo diet, whether it benefits my health or not, I do not have the money for three prime optimum meals per day.  My doctor is concerned with the lack of certain vitamins my body isn’t having because of food cost.  In fact so much so, we’ve recently become members of a food bank, referred by my son’s young carers group.  They’ve recommended the only food I should buy is the food I need, the food for my son and Paul should come from the food bank.  It is a sorry arrangement, but something we can’t refuse at this stage. 

That’s my situation. 

It baffles me that I eat all these fruits and veg with a piece of meat or fish a day and yet I am still not getting enough nutrients.  I can’t afford nuts, I can’t afford to have meat more than once a day, I can’t afford, seeds, I can’t afford red meat, or canned fruit, or exotic fruits which are highest in vitamins.  I can’t afford avocados, or shrimps etc. 

What I can afford and have almost always in my kitchen available to me are chicken legs, cans of tuna, sweet potatoes, potatoes, gluten free pasta, gluten free rice, gluten free porridge, prunes, dates, apples, bananas, grapes, oranges, spinach, kale, carrots, peas, onions, ham for sandwiches, gluten free bread, sweet pickle (not entirely allergy free), mayonnaise, baked beans, parsnips and sweetcorn, swede and cod fillet.  That’s all we can afford for me.

I have eaten this diet and only this diet with the occasional food from Paul and Henry, such as crisps, biscuits and fish fingers (not allergen free) for about a year and it is sending me insane.

I could afford better food if my doctors were able to get a grip on many of my symptoms.  My illnesses dictate that I need tissues for my sinus problem and I need an average of 12 to 20 boxes a week just for the sinus and chest problem!  That is how much mucus I produce in a week, 20 boxes worth; I get no extra financial support for this.  I also need regular sprays for sore throat, Vaseline because my nose gets sore and dry, hay fever tablets because of my other allergies; I need approximately 12 to 20 painkillers a week.  I was told by my consultant that I need to have Canestan ear drops (as they do them as ear drops too) as often as possible but they said they won’t pay for more than a certain amount but you can buy them over the counter at £5 a week on average.  I need to have these drops all the time and I am not overusing them apparently, despite my fears.  Because my ears seem to have a permanent inner skin infection, which in layman’s terms means I have a permanent ear infection, try living with that!  Because of my digestive problems I was told to bulk up on specific vitamin pills which the NHS cannot provide, so again, I need vitamin C, calcium, for some reason kelp and zinc primarily and have been recommended to double doses per day.  I need a psoriasis medicated specific shampoo and body wash, again unavailable on the NHS and this costs me £12 a fortnight for the strength I need.

So when you look at all that, you can see how I can easily come into debt and cannot afford a better diet, whilst being on benefits.

If doctors got a handle on my symptoms I would instantly become £45 a week richer.  I was told recently that our local NHS is struggling to the extent they no longer do hearing aid repairs, so I was told to go to boots, so I guess I will be paying for that too?

Ho hum, there you go.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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Happy New Year & update

Happy New Year everybody!

This is just an update on what has been going on with me;

Today has been the first day since the 21st December 2019 that I have been able to actually leave my bed for more than an hour, flu hit me hard and fast and without warning and then it turned as it always does into a chest and double ear bacterial infection. (I pre-scheduled some posts for the holidays in anticipation for this) I have been on antibiotics but there are still bubbles in my chest so, I may have to go back to the doctor again on Friday about that.  Thankfully my chest has not been as bad as it usually is this time of year and that could be down to the fact that I am taking care of myself better – I literally did confine myself to my bed all this time and have been drinking something akin to 3 litres of fluids a day to keep myself hydrated.  My vertigo and asthma has been bad though.

I should be much better by the end of next week if all goes well – which makes this illness thankfully short in duration.

There has been a suggestion that my post nasal drip and chest problems could be COPD, a friend is convinced I have to have this looked into.  I wouldn’t be surprised if it turned out to be that because my mother and other relatives have this condition, though I have never known them to be so severe for so long.

I am also convinced that the lumps I get in various parts of my body are not what my GP calls “folliculitis” at all, because these lumps come up within hours or a day or two before I get hit badly with infections, colds and flus, I told this to them but they seem to be smarmy enough to know more than I do about my bodies reactions!  Whenever I get badly sick, doctors are always surprised at how swollen I am everywhere, but still, the warning lumps as I call them are only folliculitis, not a sign of anything else at all.

Goodreads.com annual reading challenge I set myself for 2019 was 75 books and I managed to read 119 (and a half). 

Goodreads challenge this year for 2020 will be 104 books.  Which, health willing, I should be able to totally smash by August.

This illness is making me go off of food lately.  I am really begin to dislike food, I don’t enjoy it anymore and I don’t think it is just the illness as this has been coming on slowly for the last couple of months – but since this flu started I have virtually not wanted a thing at all.  I think I have lost a lot of weight in the past two weeks, my pyjamas are very big on me and there seems to be gaps in places I haven’t had in a while. 

I don’t normally watch a lot of TV but this illness has dictated that I have watched an average of 10 hours of TV per day since the 21st – watching a lot of stuff that has been giving me a lot of inspiration but unfortunately too tired to write most of them down.  Mostly I have watched Minions and Shrek, fantasy movies and wildlife documentaries.  I like the new BBC Dracula series that’s on this New Year, but then again it is vampires, why am I not surprised?

Over the past few months I have been lulling over two ideas based on the novel Dracula, which is unusual for me, as my vampires are usually unique characters designed purely by me, but these two particular ideas I have are entirely based on the original novel by Bram Stoker.

One idea of which is based on the viewpoint of Dr Van Helsing and it is based on the future rather than the past.  It is based on a post-apocalyptic world.

The other idea I have is based on the viewpoint of the three brides of Dracula, there is a big twist though with one of the brides, based on European history and so forth, so it is more than I let on.

A couple of days before the flu struck me down, I did more genealogical research on my family and found out I am a descendant of someone in history I have always particularly hated – typical isn’t it?  I found out I am descended as a 23rd great granddaughter to Ralph DeNeville through his daughter Philippa.  Since discovering this, I have been getting ideas based on these times as well, with a fantasy twist of course.  I have been thinking about writing alternative historical fantasy fiction.  I am very keen on history so I think I could make it come across very realistic, the thing is, I will not leave fantasy out of the equation, so there will be a lot of strangeness to the stories and quite possibly comedy.

There is a lot of history in my vampire novels, particularly around the Roman, Tudor, Renaissance and Victorian times, so I already have some skill writing about that. 

I don’t want to lose the concept of comic fantasy though, I have recently heard that comedy fantasy is very sought after and hardly anyone is taking the bait for it – so hopefully if I took myself more seriously as a writer, I should have an open market for what I have to offer.  I am not cocky enough to presume that it will be a doddle for me to get published at all, I really don’t believe I am all that great – despite what people have said to me, but the market is appears to be less crowded?

Well I can only hope in the least.  I nearly forgot to write those six stories I wanted to do for the magazine as well, I will get on that in the next couple of days – I have settled on a mermaid story for that as my first entry.

Happy New Year Everyone!

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Filed under About my work

Stifled writing and a look into my brain! (WARNING – it is not for the faint-hearted)

People who write can often get bogged down with the concept of finding that great idea which will earn them money and quite often when they do this, they lose themselves and in some cases, even lose the love for writing itself.

I am at fault of doing this as much as anyone, particularly in the past five years, this is because financially I am suffering to the extent that birthdays and Christmases have been disappointing and not as traditional as I am accustomed to.  In fact recently I found an old Christmas shopping list, which included food, presents, games and décor and basic normal food to last for two weeks over the festive period so we can focus on more family time and that list was five pages long with two sections on each page; this year it was only 3 pages long with only one section as when I write in an excited state, my letters get bigger than my usual handwriting – which is a bizarre idiosyncrasy that I have.  My lists are quite methodical, I will list food from Tesco, Food from ASDA and food from other places separately within the list; I will list where to buy certain presents too and for whom, which shops, so we kind of plan a shopping map in our minds whenever we go to town.  Along with this list will be a separate length of what kinds of decorations or traditional Christmas stuff we need, such as crackers from B&M and purple bauble at Wilko, you get the idea?  We usually do a massive buffet on an old pasting table in our living room and fill it to the brim with food and drinks as well as the coffee table, because Christmas Eve is the only time in the year where we can guarantee an influx of visitors and we like to feed them – this year it is a no go and I am embarrassed that this may come across as too inhospitable compared to what they are used to, as everyone usually got a bag of food to take with them either for snacks at home that night or jars of homemade stuff, which we just can’t afford to do this year.

I hate pleading poverty, but lately it is getting me to a state of breaking down.  I went for advice on my ESA benefits two weeks ago to a lady who is very kind and runs a charity, I was so embarrassed detailing my struggles to her as she was helping me fill out the forms that I was shaking and my teeth were chattering so badly with the humiliation of it all.  She thought I was freezing cold, but I told her, it’s just that I am so embarrassed by it all and she said that it was OK, but it really isn’t though is it?

Usually I am very good at being calm and self-composed, despite anxiety issues, but lately I just can’t keep it together, I am struggling to hide behind a façade like my normal self would.  Most people can’t tell that I have anxiety issues because I masked it so well, but lately I break out in tears over the smallest of things and what is worse is that I am getting short tempered with it, with people I feel are cold or unfeeling and I have this awful feeling that I will say something out of character at my next medical which will make me lose the benefit.  I am very scared about it.

If I could get a job I would, but no one is going to employ someone with the health issues I have.  I did struggle a few years to get a job, before it got too bad seven years ago.  All of this makes me try to push myself to create something just to get out of this mess, but it isn’t working, it is stunting my creative growth badly because I am not writing what I really want anymore.  I am writing the lesser ideas I have which are the most popular amongst my nearest and dearest and unfortunately what I love to write about, they hate immensely.

What I like writing about are dystopian stories similar to Mad Max, I am Legend and Tank Girl.  I enjoy writing about vampires and their sired offspring as I call them and histories as a massive saga dating back to the Ancient Sumerians and contemporary times too, how they live and how they lost loved ones.  I enjoy writing inane pun infested comedy fantasies where you meet mermaids and trolls with a very Monty Python meets Discworld air to them and I enjoy writing horror that touches taboo subjects.

According to those who are in the know, the only type of book up there I have mentioned that they can barely stomach is the comedy fantasy, not my main love of in depth vampire soap operas and dystopian tribal warfare.

Yes I love my fantasy comedies, but whenever I discuss my writing with those who are privy to them, they always get more excited about any updates on that genre than anything else and I feel if I don’t write this genre more than the others, I am failing to please this specific audience.  I am one of these people who find it really hard to talk to people about my work, those I do are precious to my motivation, if I don’t talk about my work, I can’t do the work.  But unfortunately my discussion circle seems far too niche and not entirely me.

I used to mix and mingle my genres a lot and had a wider circle I trusted to talk about them to, usually as dinner party discussions but since moving to Warwickshire, I don’t have that anymore.  London is a very different place, with very different people with mind-sets very different to Rugby’s.

I have mentioned vampires and horror to people up here I thought I could trust with my writing, but they recoil or give sideways glances to those next to them and simply state “Oh, right, not my cup of tea really”; Then I share my fantasy comedy ideas and they feel that fantasy is strictly for children, surely I should write something nicer for them?  Not drunken elves and mermaids who rip eyes out and swear profusely with such corny puns as well!

Apparently my personality must reflect my work and because I don’t lark around like some tomfool jokester all the time and I seem a pretty calm deadpan person in real life, I can’t be taken seriously in comedy surely?  Won’t I come across as some kind of fake?

Now that hurts, but it has been said to me before and I find it amusing that comedy must be serious… really?  I wonder how we all laugh at serious comedy!  Should we laugh at flippant tragedy then?  I don’t know what kind of world I have tripped into a hole of, but it is certainly quite different here to where I am from, I can tell you!

I think if I was to walk up to my favourite British comedian of today and say “Darling, you are not taking your comedy seriously” he would choke laughing and crying at how stupid that sounds.

*passes a dictionary to said people and points to the word “comedy” for reference*

So, though I am currently in quandary over my work, my main quander is this – “how can I develop a trusting relationship with people online so that they can become my beta readers and I can learn to trust the online community with my plans and outlines”? 

I’m not sure I can.  I am very protective of what I share with people because I have often had entire ideas stolen and published behind my back and that someone became very successful with my ideas and have not produced work since I eliminated them from my social circle a decade ago.

I have thought that maybe signing up to a free creative writing course with the OU would help me discuss work and improve my skills with an online tutor?  But not sure if that is really what I want – improved skills are always good, but not sure if I want straight laced professional opinions which are bias regardless of genre and content.

Meanwhile, I have been thinking about just writing whatever, whenever and go back to my scatty ways that were long lost a decade ago.  Paul tried to organise me too much I think?  Tried to get me to focus too much that I lost my way; I don’t really have a way.  I am higgledy-piggledy and mentally a mess when creating.  Paul often said if a hypnotist was to delve into my mind for just five minutes he would run out of the room screaming “get me out here, she is completely insane, she is such a mess, she is so confusing, help me, help me…. And oh, pass the paracetamol that gave me a headache!”

Why the drama?  Because I will have seven documents up at the same time, one is a horror about a cat, two are vampire novels concentrating on two entirely different characters, one is a comedy fantasy with tiny people, and one is a dystopian story based on a religious concept of the apocalypse and angels, the other document is writing notes to eventually put into any work in the future, along with research papers and notes, scribbled papers and notes off the computer, and Wikipedia up on the internet with another internet page looking for the history of Thracian warfare.  If that is not enough, I am also meddling with playlists on Amazon music flipping through them depending on which scene and novel I am working on in those few seconds, whilst daydreaming about food and what it might be like if I was the size of a peanut in my garden.

You get the idea?  That’s my brain in just five minutes.

I am like the dog who is in the garden playing fetch with you then all of a sudden I have ran away chasing squirrels, then coming back to you wondering where the ball is and oh look sausages!

With a mind like mine, it has been said by people before – is there any reason to wonder if I will ever find it possible to get anything finished?

I pass them some books I have indeed already finished and I do so quite proudly.  Then I announce, they are not for sale, they are not edited and they are not good enough.  The person looks through them, finds they do indeed need editing but are absolutely wonderful, why not publish them? 

Because they are mine!  Then I grab the books and hug them close to me with a snarl!

I am like this even with the art I paint too.

Thing is, there are ideas I do want to sell.  But I am scared that those private stories reveal too much about my inner workings.

I feel psychologically exposed, basically.  It brings about the kind of feeling in which I can only sit back and think, it would be better to be physically nakedly exposed than that, then Paul tells me to stop being weird and dramatic!

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Worrying about probably nonsense!

Other than the time back in 2003 I have never approached a publisher or an author’s agent, nor have I ever entered any kind of creative competition, whether it be for art or writing; I have never joined a writers circle either.  I have never had any real formal education on writing and not much schooling throughout my childhood.  Everything about me and my creativity is 100% self-taught and badly taught too in my opinion!

I have no idea where all these punctuation marks really should be, I have no idea about my grammar or where a paragraph should start and end, really it is all either dumb luck or a right mess, I don’t know which it is.

I don’t have much confidence in the idea of becoming a successful writer, I have said before and it is very true, I am scared that I will let people down a lot because of my health issues.  In my personal life, I let people down almost all the time.  I am afraid that I will have people wanting to publish my work but will have second thoughts about it because the writer will be a no show for at least 50% of the promotions, book signings and interviews.  In my personal life my health is so bad that a simple two hour shopping spree can set me physically back by three days.  I have more than one auto-immunity problem working against me.

I know in my heart of hearts it is unrealistic for me to have what many people would call a “real job”, writing is a real job if you get published isn’t it?  Despite publishers and agents alike stating they are working towards having more underrepresented writers, how ready are they for those who are bed bound for 10 – 16 weeks of the year?  How patient would they be in dealing with such a writer who is also deaf, too deaf to use a phone and relies heavily on face to face lip-reading, text messages or a representative to take telephone calls?

This is what holds me back in approaching publishers.  My own realism. 

I really don’t want to be told “you have a lot of talent but you are not working hard enough to promote yourself or take yourself seriously, it is a shame you are so sick, you could have gone far”.  This has happened before to me, not in the writing industry, but other forms of work, which is why I rely on benefits.

Is this something I should even put in my covering letter to an agent?  I mean, come on, if it really is like any other job, then who the blazes would ever look at my work twice if they knew that I am that sick most of the time?

Am I being too defeatist as well as a pragmatist, maybe there is light at the end of the tunnel – who knows?  Maybe there is an agent out there who can push someone like me into the limelight and support me in spite of the health problems?

I am writing this for two reasons today.  One is the fact that there has been quite a few people contacting me in the past five years in my email and on private messages on twitter and other social media, who support my work with all their heart and has asked me to send them some of the work and I have not done this.  Many have become active cheerleaders in trying to get me to write regularly and to state how my poetry amongst other things has helped them and other people through hard times in their lives.  The thing is I am too polite to verbally let people down and I don’t like dragging up my health as an excuse all the time, even though that is the primary thing.    So I let it all slide.  I don’t want to do this, I really don’t.  I really want my books out there, I really want people to enjoy my worlds, because I have put my heart and soul into my worlds for a very long time, in some of the series I have written, two decades of blood, sweat and tears have gone into them!  I need to see my characters come to life through actors and actresses on the television as this is the main motivation for me writing.  I have always written the things I have because I have always wanted to see them on TV.  They are things I want to watch.  I am a huge supporter for acting and have always wanted to get into theatre and television myself, as a writer/screenwriter and eventually producer and I know with my health problems that may never happen.  When I was younger I loved going to the drama classes during lunch break and playing with my friends various roles.  I love playing and I believe acting is the only way an adult can still play pretend with their peers and not be considered insane or childish.  The course I was doing back then was after I had a breakdown, my mother was really worried about me so signed me up for a general vocational skills course to boost what she thought was my confidence.  It wasn’t a confidence issue I had, it was severe depression due to something that had happened to me which was nasty and as usual swept under the carpet by her and never spoken about to the family.

When I went to those drama classes, my creativity ran riot.  I became a writer for short plays that we would do at the college together, I also wrote rap songs for my beat boxing friends and joined what was known as a rock choir with my gothic friends, I was a Goth back then too.

I find it really easy to write songs and poetry, it comes very quickly to me and this amazed my friends in the creative scene.  I would literally sit on the table with my legs up, write on my knees a song of any subject they chose and give it to them to sing within ten minutes max, never revised either.  I do this with all poetry even now.  It comes and in a few minutes it is posted or printed and ignored.

If I had someone tell me that I am now a full time poet, I would freak out about the ink and paper I would use daily, because I literally could throw out 5 to 10 poems an hour.

Similar things happening too since I took up my recorder practise; I can play by ear and I have composed several tunes since first starting out.  I can compose a new tune in around 90 minutes and lyrics to go with that within 10 minutes.  I am learning well in how to read and write the recorder music now.  It’s winter now and my chest is playing up, so it’s likely the recorder is going to be put away until April now, which is a shame.

The second reason I posted this, is that I am considering entering a writing competition for the first time in my life.  The Writing Magazine (which I am subscribed to) has a competition which has sparked six story ideas in my head – however, I can only afford one entry.  The competitions requires an opening line which is this “They weren’t like me”, closing date February 15th 2020.  It is a subscriber’s only competition. 

I am running short of money and I hope there is enough ink in the printer, as it is unlikely I can afford more ink before Christmas.  I know me, the story I will choose will be done and dusted within a weekend, then it will rest a week, then I will redo it and it will be sent a month in advance.

Thousands of people will be entering this contest so I know that my chances are slim, but though I am a pragmatist I am also an optimist and I have as good a chance as anyone.  But what I want to know is… is this the sort of thing I put into a writer’s CV when approaching an agent?  If I win, I mean?

Anyway, just some food for thought!

Merry Christmas everybody if I don’t post again beforehand!

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