Tag Archives: hearing

Art, Life, Goals and Disability

It is not just writing that has gripped me as a creative person; over the years I have tried to practise art, but never seriously and I also have an interest in wildlife photography – again, I have never taken this seriously. 

I am a self-taught artist who practises a few days every few months, so I do not practise daily and I have been doing this for the first time in my adult life since around 2012.  I have decided to change this.

I have decided after watching a video on YouTube by Love Life Drawing https://www.youtube.com/watch?v=qzhVOU47aSo  to practise art daily for just one hour per day because it is said that if you practise doing something for 1000 hours you will become quite good at it, so an hour a day will make it approximately 3yrs before I become a much better artist and to me that is enough to prompt me into action.  Three years is really such a little time.

I have never stopped learning something daily, so therefore I have the ability to continue learning new skills, some people when they get to a certain age give up learning altogether as they feel it is not necessary for them to be learning new things or because they feel that they are too old to change radically which I personally think is (excuse the language) bullshit; I am going to be thirty seven on my next birthday and I am already making radical changes in my life.

The changes are to learn how to become a better writer, learning grammar and punctuation, something ironically I have never bothered to learn before, shocking I know!  Learning math, because I was mostly home-educated and math was a weak point for my main teacher (mum) so therefore after the age of eight I hardly learned math at all.  Practising art, which is something my adult self never took seriously as well as wildlife photography – Paul is a former photographer so he is thrilled I want to take this up!  Also I have a life-long goal that I have never taken seriously and that is to learn five languages before I die, I know enough French and Japanese to survive as a tourist in those countries if I ever go on holiday abroad, but I also started to learn Italian last November.  So my five chosen languages to learn in life fluently are French, Italian, Japanese, Spanish and German.  I am on the cusp of level 2 Italian right now. 

So those are my goals, also my goal is to try and find some way in defeating my auto-immune problem or at least trying to work my way around it so I can actually get a life, a life I want as I am tired of merely existing to keep doctors in their jobs. 

I am also determined to offer myself up to medical science whilst still alive, to find a way in repairing lost hearing, because I am nearly completely deaf and I am scared of losing the tiny bit of hearing I currently have.  Recently I have lost enough hearing that I no longer hear certain beats and rhythms in music that I knew existed before and it really makes me depressed as I lived my life in music before the left ear started to fade away too.  I learned the piano by ear (no pun intended) I can’t read music; I started to learn the guitar just months before my left ear started to play up.  Music composure is another goal I always had and I have done some composing in the past; but when I learned I could be completely deaf by the time I am fifty and I was told I should learn British sign language, I decided to give up music and I don’t care about how Beethoven did just fine with his hearing loss, to me, I love hearing, I love language, I love music and it is hard for me to know I will hear less and less over the years.

I should really add a sixth language goal, to learn British Sign Language but I am afraid that the universe will take this as a resolution that I will go deaf and would make it happen faster.  Stupid I know, I suppose I should give up Italian to learn BSL but I am denying things will get that bad… idiotically no doubt.

So I have decided to post up some art whenever I make it, I will try daily, but you know me, Procrastinator Extraordinaire.  Well here is what I have done today and I want to tell you quite honestly, this is my second attempt at drawing a hand, my hand.  Paul says that hands are notoriously difficult for artists to draw and he insists I have a natural talent for hands, I don’t know what to think about that, but O-K that’s amazing!  I think my hand looks hideous on paper drawn by me, but the hand in itself is deformed slightly, my left hand has a tendon problems that leads up through the forearm and it is twisting more than just my baby finger these days and its becoming painful, something the doctor needs to be alerted on soon as Paul is terrified that if I fall over or support myself the wrong way the baby finger is just going to snap, seriously it is getting that bad!

Sorry for being so graphically cringe worthy.

 

 

 

 

 

 

 

 

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Sunday word count 1

I will try to remember every Sunday to post up my weekly word count towards novels and short stories I am working on. 

This past week I have added words towards one short story and three novels. This is not including writing down ideas of new stories I have planned, nor is it including research notes, blog posts, poetry or anything else – just novels and short stories.  The word count is not spectacular, but I am working on improving it.

The grand total this week is….

5679 words

Disappointing huh? 

Well here comes the excuses; this is actually a slow week for me because I haven’t done much writing this week at all in comparison to my normal writing week.  Why?

My desktop computer monitor decided to die on me for two days.

I don’t cope well with the heat, prone to heat stroke and breathing problems.

My son is off from school for the next six weeks, so my writing count is usually cut by half on school holidays.

I have been reading and researching more.

I have been learning about make-up application and have been addicted to watching Nabela Noor and Jeffree Star on YouTube, I discovered them last week.  When I gave up being Goth around 15yrs ago I never really learned how to use make up and never wore make up since and I am getting to the point I need coverage, ha-ha.

So there are the excuses, I only watch an hour of YouTube a day this past week, so it’s not stealing that much from me in regards to writing time, considering I rarely watch TV, so TV is rarely a distraction for me – I tend to watch programs whilst writing, programs that doesn’t need me to look at the screen too much such as The Proms, radio channels, or the occasional glimpse at nature documentaries such as David Attenborough or the Spring Watch team.  I lose my hearing too much at random times, so I have learned not to make my life revolve (or is it evolve?) around TV, because I often have to use subtitles and get to hear virtually nothing a lot of the time anyway.  So I have learned to be a reader/writer/researcher, unless my eyes go on me, then I am going to be OK regarding entertainment.

It is because my hearing levels are so random from one day to the next, that I can no longer keep my secretarial and classroom assistant jobs that I used to have.  Hearing loss is a big bother because I can’t do much independently regarding going to a doctor and hearing them, I need someone with me who can interpret via lip syncing to tell me what the doctor has just said, it is even worse when dealing with things on a confidential front such as banking, particularly telephone banking when online banking goes wrong – you have no idea how many companies out there do not accept a speaker on a deaf persons behalf, I am only glad I am not a deaf mute, because then I would seriously have problems.  I often have to try and talk to someone I can’t hear on a phone, hoping my husband or someone else can interpret for me as long as I give them verbal permission over the phone, my goodness, I feel for the mutes.  Especially as three years ago I had a throat infection that lead into the ears that was so bad I had laryngitis for 4 months solid, so I have experienced temporary muteness and I did have a banking problem then, that I couldn’t solve until I could speak, 6 weeks to get a fraudulent act on my online payments sorted out, because I could not voice that I gave my husband permission to handle it over the phone for me!  For 6 weeks my account was blocked because I could not verify that I gave permission, I am only thankful that my account doesn’t pay any major bills.

Well anyway, going back onto my writing I could have written a lot more if it weren’t for the interruptions, I would say as much as 16k more words and I don’t expect my word count to be beyond 10k a week whilst the school holidays are here.  I do most of my writing in the living room on a desktop computer and my son rarely leaves the room and is often loudly shouting about his robots in the robot wars arena he has made on the carpet and his robot wars videos he watched on YouTube overtakes the music I put on to get me into the mood for writing fiction.  It is easier to write poetry and research and make research notes or further synopsis’s of new stories than it is to write towards novels or short stories for competitions during the day.  Most of my writing at the holidays happens between 11pm and 1am, but Henry is suffering from some emotional issues right now which mean that my days can be very challenging and tiring by the time night falls.

When the holidays are over I write sparsely throughout the day because of my ADD and therefore I can often get 3k words done on some days.  Well anyways, the future will show and tell if I can remember about Sundays.  You will see patterns of no writing at all some weeks, because I get health problems which mean I can’t even read a book at times, such as a chest infection with a running nose, where I am busy literally every single second trying to keep myself together and alive without choking.  Sad but true, I have an immunity issue that is much better since having a radical diet change but I still get long illnesses. 

Anyway, I will update my weekly word count towards short stories and novels every Sunday. 

 

 

 

 

 

 

 

 

 

 

 

 

 

           

 

 

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Going deaf to your misery

 

royalty free image from pixabay

DISCLAIMER – 

The below poem is not meant to be offensive – I am personally a sensory impaired member of society, I am very short sighted with astigmatism and I am totally deaf in my right ear with only 35% hearing in my left ear and I could potentially lose that, considering I have auto-immune inner ear disease.  I have only learned to develop a sense of humour with the cards I’ve been dealt with in life, please understand.

 

Though I walk through the valley of the shadow of deaf

I shall hear no evil, but see a lot I might

Though I hear not the barks that scold me, I see the awful sight

Evidence of those who hate me are seen everywhere

And they sit back and they think that I really, really care

But yea, the mind is full of ego

And they shall think of themselves

I shall sit in wonderment, why they don’t put the hate on their shelves?

I wonder why every day, why they think of me?

When I have left them long ago, yet they still want to torture me?

Then I realise that those poor dears, they do not have a life

So that is why they taunt me, with curses and poisoned words of strife

They of course have an ego too, that you can be sure

That they sit around every day gossiping of the times of yore

Becoming old and bitter, making their friends think that they are a bore

By choosing to focus on the dead past, the past that makes them sore

And I sit back still amazed, that they have chosen to concentrate

On things about me, each and every day, because poisoned words always finds a way

To go back to the victim

You see that’s the side effects of your conviction

Gossip not and leave the friction

 

 

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Ear infection and gem healing

HAPPY NEW YEAR

So I’ve currently got another ear infection in the left ear.  Something which usually deters me from reading or writing altogether and it can last sometimes up to two weeks, but I have decided if I keep allowing pain to dictate my life to me, then I will never really finish anything.  So though it is difficult to type with one hand at times or read a heavy 300 page hardback book one-handed, but I will somehow manage between my one-handedness and using my hand that I should write.  Why are you one-handed occasionally?  I hear you ask!  Because I am trying out gemstone healing and I have an amethyst pressed against my left ear!  Funnily enough it works and my amethyst is doing exactly what the gem healers say it would, it is going white.

I will be going to the doctor on the 3rd January, not tomorrow because I have to deal with a very urgent banking matter… again.

 

 

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Carnival of Lost Souls

This is NOT my personal work http://www.amazon.co.uk/Carnival-Lost-Souls-Nox-Arcana/dp/B000FOT9EE/ref=sr_1_4?ie=UTF8&qid=1436560945&sr=8-4&keywords=Nox+Arcana

A lot of my work comes about because of the thoughts that come to my mind when I listen to certain music; my inspiration changes with each kind of music I listen to, this is why I love instrumental music, particularly that from Nox Arcana.
I have all of their albums, they are essential for me to work effectively. Never before has a band affected me in such a way as Nox Arcana. Their music is exactly the kind of atmosphere I need to set my brain into for my work in fantasy and horror writing and art.

I might very well review each album or song separately someday, but the most listened to album for me is this one – Carnival of Lost Souls.

The amount of fantasy horror I’ve thought of. I have even thought about a comic series because of this music, this along with (sorry, something not Nox Arcana related) = The Honky Tonk Merry-go-round by Patsy Cline. Oh the things I have dreamt, thank you Nox Arcana, very much for this one. Johnny Depp is going to love you all the more if he ever reads my stuff and found out his new nightmares were inspired by you. *insert evil laugh here*.

Since I lost Cubase many moons ago, my computer isn’t hooked up with music composing software anymore (and I can’t read or write music, but I can play by ear and compose – with the software). My music was similar to Nox Arcana, that’s why I love it so much. I think the band must be within my soul group or something? Anyway, once I figured out how to configure my old Microsoft XP files onto my new computer (perhaps in Neverwhere) I will load up my old music and share it. Otherwise, if I really am in Neverwhere with that then my old music has been lost in the ethers of time forever. *Insert forlorn pierrot here*.

My creativity really is controlled by the type of music that’s around me at the time. In the times of no music, I tend to write flatly and that’s only suitable when I am writing non-fiction or essays.

Now being deaf, I rely heavily on vibrations, lip-reading and my two hearing aids and I am not looking forward to the day that my consultant said is in the near future, that I will lose my hearing altogether. Unfortunately at the time this was said to me, the consultant in question told me that there is nothing they can do to repair my hearing if the worst case scenario crops up, thankfully I know someone in the ENT department abroad who says that’s utter tosh. So fingers crossed that I will never lose my hearing completely.

I don’t know what I would do without my Nox Arcana!

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Filed under About my work, My inspirations, reviews

time to start living

It is not unknown that I have a lot of health problems, in fact more often than not my ailments these days make me bed-bound with bacterial and viral infections and my left eardrum is collapsing, which could leave me totally deaf if it weren’t for the technology of hearing aids.
However, I had decided last week to restart doing my blog regularly and concentrating hard on writing, art and photography in general because I am tired of being dependent upon an insecure government; I am also bored of not being able to work away from home or volunteer anymore, but I can’t help that as I have auto-immune-inner-ear-disease aka AIIED, which means I get about a 2 to 5 days of normal health a month, not conducive to the workplace.
I will have several new sections coming up soon on this blog about Cosmic Ordering, because I am using this to turn my life around; I’ve always been a bit of a Pollyanna which is one of the main reasons I had a lot of problems as a child, so I just need to refocus a bit. I am especially interested in Cosmic Ordering and the methods behind Ho’Oponoopono because I have been told that it is likely I will need more surgery on my ear in the future, my roof is leaking, my health is getting ridiculously bad lately, I’m poor as a church mouse and… well, basically enough is enough and it’s time for a change.
I had another small pause to my blog from my previous post because I went down with a big bang with what my GP described as severe pharyngitis (diagnosed on the 3rd February) and was told that if this didn’t show signs of getting better in 48 hours I could find myself in hospital receiving treatment intravenously; scary, I am still ill as I am typing this – but not as bad as I was and I am thankful things are getting better.

 

I am trying my best to stick to my plans of the Ho’Oponoopono chant and the Cosmic Ordering guides from the Mohrs and various other people – especially my very good friend Richard Gentle who has written lots of material on the subject of Cosmic Ordering, negative miracles and crystal wand healing; in many respects it was he, who gave me the confidence to start doing this and he did this a few years ago, unfortunately my life back then was full of negative people who always undid whatever I tried to do to improve myself, that is no longer the case, in fact, quite the opposite.
One of the biggest steps to changing your life to a more positive stance and being your true self, is to leave the people who do not accept you, whether they are family or not.
So I will finish now with this post, to let you know I intend to get busy and post more often.
Thank you for reading
xxx

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I’m back

I am back after a long illness, still not fully recovered but missed updating this blog a lot.

I had a sinus infection in December which affected the chest too and by late April I got pneumonia because of the prolonged infection; thankfully pneumonia is no longer an issue, though I still have those infections even now and I have been told on Wednesday that there could be further health complications with my ears.

The sinus has caused pressure in my left ear which has affected my hearing due to making the ear drum deformed (hopefully temporarily); this is scary stuff as I am already completely deaf in my right ear and have been since 1997, so this is worrying news indeed.

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Crystallaphones and plans

My plans for after Christmas are to find distance or online courses to learn how to read music and actually start becoming proficient in a musical instrument that’s not piano/keyboard based; this is because my interest in song writing and composing is becoming almost unbearable to ignore, particularly as I don’t have anyone in my life who’ll cause me stress anymore (other than a 3yr old son, but he’s sweet and easily worked around). 

I have found a new instrument that takes my interest and I hope I am lucky enough to do a part exchange with my electric guitar to get one, but I’ve heard to find one even in a music shop is rare, the instrument is… a crystallaphone, or as some people will know it as a glass xylophone; however it’s very likely that I’ll end up with a left handed electric guitar as a replacement (as I didn’t take my disability into consideration – my left hand has short tendons).

I am still heavily interested in watercolor painting and sketching, but I have put that on a back burner since I’ve been ill for the last three weeks, also the house needs organizing as I need to prepare a workspace for the art and the music I would like to take up.  I am slowly introducing myself to small chunks of work a week, roughly two hours a time, three days a week to settle into it because I am regularly ill, hence the unemployment I am in, I can’t hold a job down, not even a voluntary placement these days.  The mind and heart is willing but the body will not comply.

I need to find something that I can do from home but does not require me to use the telephone (not because I am unsocial, but because I have fluctuate hearing and regular ear infections that even an amplified phone is useless with) and despite this being the age of texting, not a lot of professionals or customers like communicating with staff via text only and most forget your hearing problems because when they talk to you face to face and you respond (because you’re an excellent lip reader) they think oh it’s not so bad.

Yes I know it’s strange that a person who has regular hearing problems wants to compose music, but there’s been others out there who have done it proficiently, so why can’t I?  I believe I am right in stating that Beethoven was stone deaf wasn’t he?  And one of the bee gees, he was like me, partially hearing, wasn’t he? And their music is great, isn’t it?

I don’t want to be a singer, I couldn’t take the commitment there because I never know when I am going to be sick and most of my sickness is based around practically all the aspects of the ear nose and throat, which doesn’t help for a singing life.  When I was younger I trained in opera but after the age of 12 I couldn’t sing it regularly enough to be considered talented in it, because I developed regular mastoid infections which needed regular operations etc. and singing became quite painful for me literally.

So with that said, I am trying my best to make myself a creative life and I hope that when things take off I find people who are sympathetic to those who have health problems and will help me work around them in a non-stressful manner.

 

 

 

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