Tag Archives: medical

Update November 2019 AKA I am still alive!

I didn’t continue Inktober from day 5 and I haven’t done anything towards NaNoWriMo this year either, my health has got quite bad in the past few weeks, for some reason or another I have developed something new where I am sleeping an average of 10 to 15 hours a day and when I am awake, I wished I was asleep and this is something strange for me, because I not a person who loves their bed (unless I am making love in it)!  I don’t find sleeping a productive venture, other than maintaining health (which I don’t have any more anyway).  I am living in constant pain too; painkillers aren’t cutting it anymore for me, not even the occasional co-codamol, I am having almost permanent nose bleeds and other strange bodily phenomena, such as the feeling that I have a glass splinter in my foot and my arms are going numb and losing strength at random unpredictable times.

My IBD markers have also risen and my rheumatic arthritis has decided to wake up again, it often goes away and comes back again, remission I think it’s called?

My depression had got better until last week I received a medical request which puts my ESA medical due around Christmas week again, just as I felt that Christmas might be financially impossible this year I get this as an added assurance, because I don’t think I will pass it this year due to the fact that my consultants are very laxed in actually giving me a name for some of the things that are wrong with me.  I knew my local NHS is struggling as it the NHS nationally, but yesterday on TV I finally learnt why my consultants are particularly lacking in their treatments of me – they are part of what the government consider the notorious Nuffield branch crisis.

I never heard of it before now.  I don’t really understand what it means, but there seems reason to be concerned according to the news I watched last night about being part of the Nuffield problem.

I don’t vouch any knowledge on the thing.

All I know is that someone advised me to take a certain person to my medical this year as it may help my claim, because I am a client of a specific charity and apparently this could give my claim some weight.  I just hope I don’t sink.

I haven’t been able to practise my recorder for a month either, because I have been getting a little chesty, I was expecting this, because every year between November and March I get bronchial issues – I have been given medication for asthma but the doctor declines calling me asthmatic, I don’t know what that is about, but there is no name for my breathing problems when I get them.  When they get really bad the doctors say I might need to stay in the hospital as I always seem to get bad enough that they feel I am borderline of pneumonia or pleurisy.  Hopefully that won’t happen this year; I am tired of the fact that I haven’t had a decent healthy Christmas in almost 7yrs.  It is starting to make an Ebenezer out of me. 

I haven’t written anything other than 9 poems since my last post and I don’t think I like them enough to share.  Some of them touch very delicate subjects.

I have also managed to list whilst in bed, all of the story ideas I have had had over the years and number them, 187, that is scary and I felt instantly depressed that more than half will likely never be started let alone finished.

I noticed that I shouldn’t really call myself a horror writer too, as most of my stories are comic fantasy or dystopian, I think all in all there are only 6 non-vampiric horror stories in the list, about 12 vampire stories in the list, but mostly comic fantasy.

I have an idea for a sequel of a top Broadway musical, but I know I wouldn’t rightfully be able to write it as it will be an infringement of copyright and it is a shame because I really think that this sequel would be amazing.  The musical has always been one of my favourites, Annie.  I love most musicals anyway, but that one is special to me as I remember watching it the first time when I came out of hospital for the first time aged 5.

I won’t say my plans, but if anyone needs a sequel to it, please let me know – I am not a dunce, I will know if you are of genuine sources or not.  I have often thought about writing a letter to the source of the musical or current copyright holders, but not sure when I will take the plunge – as I am embarrassed, because of my health I may not be able to deliver on a strict dead-line.

Another thing I need contact from is from anyone who knows how to get my Henry onto junior MasterChef, he really wants to be a chef when he grows up, he has decided – he also wants to do a baking marathon for Children in Need next year, but I have no idea how he can do that, I can’t afford to give him ingredients for 100k of cupcakes, ha-ha, he will be 10 at the time too.

Wasn’t it amazing what Rylan did as well this year?  Henry always thought the guy was awesome, but now he is inspired to do a 24 hour baking challenge because of it, I said he won’t be allowed he is too young!  So then he thought of a specific number of cakes – though he says they have to be gluten and lactose free so I can have a couple!  Isn’t that lovely?  He thinks of his mummy?

I don’t know if it is a sign, but I have nearly finished a novel, when I get the energy back to continue it I will have about three chapters to do before I consider it done and coupled with this, I have been getting dreams.  Those dreams are of me moving house, every night I am in a different house in a new dream, what is weird is I accidentally found a house that is identical to my dream in Derby with identical surroundings in the town, specific shops and maps, it has blown my mind away about how I found that.  Thing is, I don’t think I want to leave Rugby.    I think it’s a nice little town, the people know me well like I have always been here and it is really is in the centre of everything you need in the UK – an hour from London, 45 minutes from Birmingham, 90 minutes to Manchester, it’s just a great spot to be!

I have discovered after reading several books in bed over the weeks that one of my main problems creatively, is that I overthink things.  I play too many ideas into others and eventually lose their uniqueness, I have learned to let go.  I have learned that it is ok to repeat themes in my writing in order to make things more interesting in places, but also learned that various themes can be used only once and there shouldn’t be any regret.  I have also learned that mentally I use the excuse of not having much experience in anything in life as a way of holding me back from having a life.

I am on a big learning curve right now, my mentality is changing and it is growing me.  I am also changing on a personal level – I used to be a very meek and obedient person who was afraid to make people unhappy even at the expense of it making me unhappy, but that too has changed.  I have started to learn that if I am not happy with something I will tell that person and I will try to maintain kindness as I do, but ultimately I won’t suffer anymore, not for others, especially as it was never appreciated in the past or even recognised.  I do however insist that I maintain kindness as much as possible and maintain a positive attitude, I have an intolerance for misery still, that is innate within me and I think that is in part the reason behind why I am more of a comic/comedy writer.  I know this blog doesn’t show that, as my poetry is often very dark, but my stories, when I eventually release them for the world to see, will be quite light hearted and funny – well I hope so anyway.  My poetry may still be dark and bleak in a lot of respects, because it helps release what is soaking my insides up, bad things from the past, my deepest yearnings, my tears and fears, I have to release this emotional cancer somehow, don’t I?

I never intended to be a comedy writer, it just happened.  I always intended to be a horror writer but as funny as it sounds, writing horror is horrible and I don’t like to do it anymore.  I used to relish in making people scared and feel sick to the stomach, but only certain people and now they are gone from my life I realised how neurotic they made me and how horrid they were making me.  So now I only want to make people smile, laugh is even better, inspire would be a jewel, but I would be happy with a slight upturn of the mouth from my readers and nothing more if only to make the world a bit more brighter.

(was written on the 14th November but only just got around to copying it for this blog – I have not been well, in fact the whole house has had the flu this week on top of everything else).

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One random thought

I drew a skeleton but it came out as a cartoon style skeleton, wasn’t my intention, I had hoped for it to look like some serious gothic artwork, but no, it’s comical instead.
Then a few days later I drew a cartoon style hedgehog and the expression on its face is more sinister than my attempt at the gothic skeleton, funnily enough I put both of these into a drawer and forgot about them for several months, then when I was sorting through my drawers I came across the two pictures and put them into the art pile I made, both were cut out and around. I didn’t realise it until I walked away and came back with a drink, that they both, together looked rather comical. The hedgehog was between the legs of the skeleton looking upwards at it, the skeleton looking nervous and the hedgehog sinister, made me think of a silly idea for a short story about a demon hedgehog gynaecologist and this skeleton being its patient – however, this idea is too dumb; I am not going to do it.

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Constructive Procrastination

Procrastination is a part of a creative person’s life; something they get comfortable with and sometimes it seems that procrastination is an essential part of who we are and where we get out ideas from. For me, I am constantly procrastinating; this blog is a fine example because I often do not post a thing for weeks on end!
However, as procrastinating I can be, I am always doing what I consider to be “constructive procrastination” because whatever I am doing when it is not writing regularly for my blog, I am in fact, building myself up for other creative activities – usually writing things that aren’t meant for my blog, reading books, researching, filling my mind up with wacky art and images etc.
What have I done since the last post on my blog?
I’ve started and completed two jigsaw puzzles, one of them was a 1000 piece Ravensburger “Santa Express” Limited Edition 2013, the other was Christmas Quarter 500 piece puzzle, I have since started another one of those Christmas Quarter puzzles, despite it being mid-February. Now this seems like procrastination at its finest, but for me this closes my mind to everyday worries and opens my mind for new ideas – a type of meditation.
I have sketched several pieces of clothing that my characters like wearing in a fantasy story that is in planning stage.
I have also read two adult sized novels “The Light Fantastic” by Terry Pratchett and “Occupy Me” by Tricia Sullivan, I am a slow reader – an adult novel of approximately 300 pages will take me about five to eight days to complete because my brain insists on showing me everything that’s going on in fine details like a movie.
I have also read snippets of other books too, as I am a multi-reader, I can have about twelve books on the go at any one time and not get confused!
I have researched the history of the Cathars, Japanese folklore and Hammer movies.
I have done one or two pictures from an adult colouring in book, another form of meditation for me.
I have sorted out my much overdue papers into organised piles and backed my computer up.
I have watched online videos and looked at online images in regards to natural history, local nature, religious history, philosophy, Cosmic Ordering and been a member of some online Goth, geek and fantasy groups at Facebook.
I have researched to the best of my ability as to how I can get into comic book writing and how to sell my art.
My son has come down sick twice since the last post, so I had to take care of him.
I have watched the rugby and I have written the synopses of several stories I am about to write as novels.
Actual writing I have accomplished as part of a/or several novels – approximately 800 words – not a lot. But that’s fine when you consider I am actually writing an average of 800 to 3000 words per day, even if it is just a diary entry or my 750 words from 750words.com – I am actually writing a whole lot more than I used to!
I am writing in depths about the dreams I have at night. I have been writing down my ideas behind ethical behaviour and the changes that needs to happen to society for a better world. I have written how I feel about my family and circumstances. I have been making business plans and life plans. I have sat down for several hours in the last few weeks with my husband lulling over ideas about our life and even brainstorming my stories with him! I have also helped my son start writing his own stories and he is nearly 6yrs old!
A lot of what I am writing is not actually story based or for the blog. I have written several posts since the last time I have posted on this website, but the situation has been that I found it unsuitable for my readers here because I am either ranting about things or I am giving too many of my ideas away.
I have written notes on historical facts that I feel will help me with my stories. I am a self-student of the social sciences, since leaving the OU course for social sciences because I couldn’t cope with the demands in math and stats as well as having a teething baby on hand.
I have finally decided how one of the novels I am writing is going to end, so now I know this and have written the bullet points; it should be finished by April 20th, and yes, I am going to approach someone with it. The story is a horror with some Japanese folklore element to it, because I have studied the Japanese culture and language a lot in the last eight years as I love their comics and their sense of humour and horror; if and when I get published, I hope this opens a doorway to Japanese media, because I would love to travel to Japan and use the language skills I’ve developed. I should get on quite well in Japan speaking Japanese, as I have learned enough to get me by as someone who speaks the language a little better than the average tourist, though learning their script is near impossible for me at this stage!
I have also discovered through an ESA examination that I might have a neurological disorder I should discuss with my doctor, because I have been blacking out, phasing out, getting shaking hands and been getting a lot of problems with my upper body mobility. I have noticed that this is slowing my writing down a lot, because I am making huge errors such as forgetting how to use punctuation – writing different words than I originally wanted to and generally not making much sense at times, so if you come across this, please note it and let me know, thanks!
I write descriptions in depth or comedy scenes, but none of this is embodied into a story yet.
I don’t know if I am a proper writer and I don’t know if proper writers do exactly what I’ve been doing, but I am curious to find out. Is there more to being a writer than just sitting down writing poems and stories? Do we essentially write mostly about anything but those two main ideas society have about us?
I have never joined a writers group so I wouldn’t know. I would like to join my local writers group but the bus time tables make this difficult for me as the classes are twice a month at 7:30pm and the last bus to my village is at 8pm and I can’t walk that far home these days – I can’t drive either and have been advised not to with my medical conditions, such a shame really as I would have enjoyed it.
So that’s me since the New Year in a nutshell.

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An update on my health

Well I am taking steroidal antibiotics for my ear problem for the next week and my ENT appointment has been moved forward to two weeks’ time; I am very worried that it may be another mastoiditis and may need further mastoid surgery, especially as the last one turned out I had less than half a millimeter protecting me in some parts of the skull close to the brain – hope that’s not infected again, but to me it seems likely.  This mastoid and ear problem has been with me since I was about 10yrs old, I’ve had two big operations and four investigative ones over the years on my ears alone, in total my whole life I’ve had about seven operations, one removing tonsils and the other was intensive dental work that could only be done under a general.

What worries me the most is this is affecting my neck and jaw of the same side as well and the other ear is also starting to lose its hearing, I’m already completely deaf in my right ear and they tried to fix my hearing problem with an ossiculoplasty but it failed because two of the small inner ear bones were completely destroyed by the mastoid infection years before.

It’s scary because this can bring on meningitis so I was told, brain damage, Bell’s palsy or even death, I think it is the old problem I used to have as my ear and throat is constantly burning me and my ear is leaking watery smelly liquid again, which hasn’t happened since I was 17.

So that’s an update on my life.

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The sore throat

My throat feels ripped by a jagged edged sword

The healing makes it tight

Drinking water that feels sandy

These are the symptoms of my plight

Hardly anyone can hear me

My voice is almost gone

This is just a sore throat

To have it feels so wrong

I wish that it would leave me

And never ever come back

But viruses do these things

Your body it attacks

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Filed under Poems S - U