Tag Archives: sickness

Bedlam, chaos and disorganisation

Bedlam has taken over my creative space and moved it around the house.  Naughty Bedlam, I shall punish it later.

Bedlam has its way in bringing out The Evil Queen in me. 

Bedlam puts my work both writing and art into strange unconnected folders and boxes then distributes these folders and boxes all around the house in random crevices and nooks, playing hide and seek with my work is not fun!

What is this bedlam of which I speak?  My family, primarily my loving husband who tries to keep house when I am bed bound sick, when I get well again it can take up to two weeks sometimes more to find my work so I can get back to it again.

So far I have found my vampires mingling with my fantasy stories and even my paleo recipe folders.  I guess human blood can be thought of as a paleo food, but still, it’s in the wrong place!

I have found trolls in my box of pagan things hiding underneath packets of patchouli incense and dried agrimony and dragons playing with unicorns in my learning how to read music bag.

I have even found a baby ogre in my knitting kit – and please do not mention the flying octopus!  For some reason I found that partially hiding underneath the chest freezer.

And then there are the eyes, eyes, eyes everywhere!  Hanging on the bedroom wall, hidden on a bookshelf, under the bed, on top of the rabbit cage and in a shoe box!  The eyes have it!  Or rather I have had had enough of the eyes! 

Of course I am talking about my various works, whether it be fiction writing or pieces of art I have done, I am not talking about the imaginary friends I have, not yet anyway – why are you looking at me like that?  Every writer has them.  Imaginary friends that is, how else do you think you get stories?  Though sometimes I wonder if my imaginary friends are all that imaginary as weird things are noted around my house by guests, but we never speak of those, do we?  You could say I am insane and I accept that opinion of yours because what is normal to me is ludicrous to you.  I can stay at home for three months solid and forget that it’s not normal and be quite happy actually and very occupied with various things, whilst Joe Bloggs down the road goes insane after forty eight hours.

The biggest work for me at the moment in gathering all my work back into its former place is the fact that two of my vampire folders have  fallen off a sideboard and behind it and has intermingled with other papers in an attempt to try and gather them for me.  This had meant that the four drafts I have done of one particular story is meshed together and I have to work it out like a jigsaw puzzle because I have done all four drafts to the seventeenth chapter and the novel is not finished.  What makes it worse is I am ever so slightly absent minded as a trait I was born with, so therefore many things have been printed twice and are not noted until an accident like this happens… yes I am a nightmare.  But honestly, when people leave my work alone, I am actually very persnickety about filing and organising, it is really hard living with someone who will store anything anywhere and doesn’t have a system.  It really messes my time and system up – unfortunately I live in circumstances where I don’t have a spare room all to myself and I do not have the funds to organise a heated shed in the garden for work, so I have to fight to work, literally, every day, not only my health, but the flipping disarray in the house and have to blooming accept my work being meddled with on a daily basis!  Because my husband, bless him, is a recovering hoarder. He is recovering because whilst living with me he doesn’t have a bloody choice!

So when I get bed bound sick, I have the added stress of knowing that he will slip back into his hoarder care-free ways and its muggings here that has to clean it all up again, when I get the good days back, rather than working or gardening.  It’s all made worse by the fact that he doesn’t work outside of the house, he is home almost all the time.  Love him, but I wished I had time to sort things out for a few hours a day without him following around me in a panic all the time.

I am desperate to paint, I love to paint as often as I read and write, but again, I have no specific place to paint.  I have to rely on a clean dining table to paint and often it’s cluttered with my husband’s essentials and bottles of condiments and a laptop.  So when I have the energy to leave the bedroom to go and paint, it takes me an average of 45 minutes to tidy away enough space and find my paints and materials in order for me to work, often by that time, if I am still sick, I am too knackered to work immediately after clearing that I need a rest and then by the time the rest is over, its dinner time.  Creative people will know how I feel about living like this and you are right, I do feel that way too!

It’s a battle with my health but it is also a battle with my living arrangements and housemates.  My work productivity suffers greatly because of these things and it isn’t because I don’t try, because I do, even on my sickest days, but you have no idea how hard it is to live with these battles day in and day out, I will admit that I have mental health problems normally anyway, but since having my work affected as a result of this lifestyle (if you can call it that), I have for the first time in my life around five years ago, become suicidal as a result.  It is something I have discussed with my husband and he does acknowledge the cause, but what can you do with someone in their mid-sixties who has never lived any other way?

I am not used to a house like this.  I don’t accept a house like this, but I have to make do.  So when I use the work bedlam I do not use it lightly.

I try to stay light hearted about things, but it is a BIG try.

It is gut wrenching to force yourself, as sick as you are, to cough and choke your way through two rooms to clear and tidy and clean, only for the very next couple of days, for it all to revert back, because your husband is motivated in another room unsupervised and doesn’t understand how to do it, he just moves things from one place to another and undoes your work in just a few hours.  Then you’re in bed exhausted, chest clogged up worse for all the dust and you can’t move for another week.

The thing is, writing this makes me feel guilty.  Because he is my carer, he cares a lot, he does a huge amount, and more than any man would really.  He is twenty seven years my senior, he does everything for Henry, everything for me.  He does the shopping, the laundry, the ironing, he cooks, he shops, he deals with all our problems and I have never known a man like him before.  Complaining like I have done, feels wrong.  But it is a big reason why I struggle to work lately.  I am fighting for a work space, but I have less than 3ft square to arrange things in and my art and writing stuff is much bigger than that little corner, the box room would be an ideal office, but it is Henry’s bedroom, the big bedroom can’t be used at all because we have a leaking roof we can’t afford to fix.  In an ideal situation we would move our bedroom into the big room, Henry into our current bedroom and I would use the box room as an office.  But at the moment I can’t.  We have had a survey on the roof it will cost us 5k to fix it, that is around 15yrs of savings for us currently.  Not feasible, especially with the storms we get up here.

Am I so wrong to need to get this off my chest and explain myself?

Tis bedlam here.

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Sunday Word Count 5

I have hit the wall of shame again.

The word count this week is…

4447

The above picture was taken by me and manipulated by me.  I took this image around 2yrs ago in the Summer when I went for a walk by the canal near Newbold Quarry, Warwickshire.  The daisy like flower was actually growing out of the crack in the wall just like that, sticking out of the wall about 8 inches on a single stalk.  It was strange because the whole area had just grass and dock leaves and there was no other little white flowers like this anywhere else!  

A huge slump, but then again, this week I have had a hard time with my immunity issues and other medical problems including a huge bout of unexplained depression, usually I can identify what causes the depression but for the past few days I cant.

I only wrote on three days, which were Sunday, Monday and Tuesday.

My body also hasn’t been working properly either, making me feel extra sleepy and my arms aren’t working properly for some reason.

Sorry this is a lazy post because I am so tired still.  Sorry if it looks like I really can’t be bothered, I want to be, but I just can’t think at the moment, too drowsy.

I get bouts like this that happen on and off at irregular and without a pattern times and it can last for just a day or several days, I had a bout once that lasted for nearly 4 months, doctors aren’t too helpful in trying to find out what the blazes is wrong with me.

I accidentally posted something that I had second mind to delete too, sorry about that.  I didn’t want to post it as it was a first draft and there were certain things I missed out or didn’t explain properly.  It was written on a very bad day, I get huge brain fogs and concentration problems where things come out wrong or half formed.  

Anyway, hope next week will be different.

Have fun with your writing folks!

P.S I apologise if this is at all incoherent, I am really struggling right now.  

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Sunday word count 3

This week’s grand total of writing towards my novels is…

2500 words to be exact!

You what?  I normally write that amount in a day!  True, true, but not this week, this week has been a hard week all round for the family.  So therefore I inevitably got to go to…

THE WALL OF SHAME!

dreaded wall of shame

Says some random booming monstrous voice from goodness knows where!

“Yes and I feel so ashamed”.  Said the author of this blog with a huffy laugh and without any hint of conviction in her words;

I didn’t get anywhere near as good as I did in the first week of doing this, let alone my minimum of 10,000 words as you can clearly see. 

Here are the words spread out throughout the week so you can see how much or how little I wrote on any one day;

4th of August – 784 words, quite bad really.

5th August – 0 words – you what?  Call yourself a writer? But the books over there look so pretty, so inviting!

6th August – 811 words – better, but not great, in fact quite awful actually, but not as awful as Sunday’s count.

7th August – 0 words – what again?  What act procrastination doth thou blame this on?  The shiny books?

8th August – 196 words – Oh you are really going to get writer’s cramp with that amount aren’t you?  Rolls eyes*

9th August – 0 words – can you have zero words?  Evidently you can, there is no words to describe how awful a writing (if you can call it that) day like this is!

10th August – 709 words – Yes, good, but I won’t praise myself too much here because this week was utterly disgusting as far as being a writer goes!

The overview is that this is a shockingly terrible week and whoever thinks they are a writer, writing like this ought to completely revalue if they are really a writer or not?

Well I would say to the over viewer (which is myself, so technically I am speaking – no arguing with myself here) is this; I am a writer, however school holidays make dedication to work difficult when I choose to write in the living room, not shutting myself off from the entire world.  Family is important to me, contrary to what certain cretins might say about that!  Not to mention that this past week I have set myself a challenge to read ten enormous books by the 23rd August, so therefore I am reading much more than I normally do and it has also been a bad week for depression; a very bad week in fact for depression.

I have a lot of worries about people that I love too.  Paul has been having difficulties this week as he has injured his arm, I found out recently that my cousin is in hospital for heart problems and he is the only cousin I can trust to emotionally support me in my time of need, the only person in my family other than my immediate household in which I trust has good and non-judgemental intentions towards me.  Also my aunt has been battling cancer for two years now and as much as people think I don’t batter an eyelid, I try not to dramatise anything about others and pretty much keep my thoughts and feeling to myself regarding their problems.  But I am finding that difficult lately and people really don’t know how much I do care about them, because I never turn their problems into my own personal dramas like most people tend to.  Often this makes me come across as aloof and uncaring, but I actually care very deeply about people who are related to me or within my social circle, more than they know, I am just not very good at showing support or love for them and I am sorry for that.  You see in the past I have been accused of being too loving or caring to the point of weirdness and then not enough and so I feel I can’t ever get the balance right, so recently, I guess I don’t even try anymore.  Sorry.  Also I have learned that someone in my family has made a decision to move far away from supportive relatives and isolate themselves and I know that they don’t socialise outside of the family at all and they are very vulnerable due to their disabilities and they are elderly and this is literally freaking me out, as I think to myself, oh my god, what have you done, you impulsive thing you, don’t you learn?  They’ve placed themselves so far out of reach for a lot of caring relatives, that if they need anyone, it will be incredibly difficult to get to them as most of the caring relatives who would help them don’t have their own transport and are on the poverty line and I have heard from the grapevine that they are not happy with their choice after all and there is nothing they can do now, the move has took a lot out of them.

Along with this, Henry has had some problems too and now we are receiving help from a certain charity, I won’t mention what the charity is and what Henry’s problems are because Paul would rather me keep that to myself, but things aren’t going well for us currently and that in itself is contributing to my depressive return; and with all of this too, I have far too many hospital appointments coming up and too many tests that need doing.

Personally I am struggling a lot with my disabilities to even write or read regularly, hence these stupid goals I am forcing onto myself – I am trying to make my life somewhat productive at least.  I might have a neurological problem other than the suspected MS, we don’t really know yet; the doctors are all on guess work right now.  All I know is I am scared of whatever it is getting worse, because lately reading and writing is becoming affected.  I am getting my words mixed up a lot and I don’t even notice it when I reread it half the time.  It could just be depression, who knows?  But I am scared.

When I get bouts of depression I tend to meditate too much to try and forget what got me there in the first place. 

Last week I watched a lot of YouTube videos, this week I haven’t even done that.  But I really should, I should force myself to watch things like the Motivational Archive when I get like this, it sometimes helps.

Well anyway, thank you for reading – you’ve all been an absolute gem to keep on reading.  I hope you all have a lovely day and have lots of fun and come back again soon.

Good luck with your own writing adventures and why don’t you send me a snippet for me to read?  I don’t read many blogs, I really ought to, and there are some amazing people out there.

Hopefully next week will be a better week?

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Daily goals as a lifestyle

I no longer want to be in the league of procrastinating artists and writers, things are going to change.

For the past three weeks I have been living my life on a goal based lifestyle, thanks to some very motivational videos I have found on YouTube and the book I purchased last month called “Think and grow rich” By Napolean Hill.  Now I don’t fool myself for one second that art and writing is going to make me “rich” at all, don’t get me wrong – I am not just focusing on the money aspect, I am focusing on the aspect of happiness and feeling like I am achieving something, even if the rewards are purely emotional.

Obviously money would be nice, but ultimately, health and personal achievements for me, leads to a happy life and that is more important to me right now than financial gain.

I have had these talks before on my blog, the “No longer procrastinating personal prep talks” and they have always reached a point of returning back to old comfortable habits with excuses after excuses after excuses – I am sick and tired of failing myself and I watched on one of these videos last week that when you reach a point of being sick and tired of being sick and tired that’s when your life will start to change and I have reached that point in my life.

Living life day to day with goal based intentions for every day, is working out for me.  On the nights I forget to give myself a goal for the next day, I notice I go back into old habits, so I am almost paranoid that the last thing I do before I go to sleep each night is to list my goals for the following day, so I don’t slip up again.

Most of my goals are simple and may seem like nothing to anybody – how much do you think you are going to achieve in a day by doing these things which in their eyes, could be procrastination anyway – but for me, it is constructive.  It keeps me doing the “good habits” which make me a productive person.

My usual day to day goals are;

To write my morning pages via a site called 750words.com – this is non-negotiable, this is a must do, everyday forever.

Revising at least two pages of my old NaNoWriMo attempt from 2016, this was abandoned and forgotten in my drawers since 30th November 2016.

Writing two poems for advanced schedule posting on my blog, I am a month in advance at the moment, so the poems you are currently reading were written approximately a month before you are actually reading them.

Practise some sketches and art pieces in my sketch book, at least half a page a day.

Then there is a fifth random goal, it could be anything, such as take a walk, do something particular in the garden, bake a cake, visit someone, anything really.

This isn’t all that I do in my day, this is part of my daily goals, the idea is to get me into the habit of having something to wake up for, something to do.  I lost my purpose in life by allowing sickness to dominate me, but now I am trying to take back some kind of control in my life again and so far it is working.   I would never have thought about living my life in a goal based day to day way, if it wasn’t for the motivational archive on YouTube.

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Constant Pain

My head is swelling up

My ear is getting sore

My head starts to thump

Tinnitus begins to roar

I feel sick and lazy

I feel tired and in pain

This constant pressure in my ear is driving me insane

Every day is different, every day the same

I live in constant variations of suffering and pain

How’s your ailments?  People ask

How’s your breathing I want to say?

But I keep quiet and carry on

Like nothings in my way

One infection, one week

Another in a fortnight

A virus after that’s cleared up

I don’t need some psychic foresight

This is my life

Like it or not

I know you wouldn’t if you were me

Living in a useless way

In pain and suffering

Knock me out I often ask

Throttle me right now

Help me out of this rotten life

Please make a solemn vow

But no one wants to

So I live on

In pain and agony

I am not strong

I have no choice but to suffer this

Each and every day

Be brave others tell me

And I think more about the grave

I have no choice but to be brave I say

I have no choice at all

You think staying at home all day in pain is lovely, like a ball?

Oh if it were only so, but it’s not

I live in pain, my ear is hot

Burning inside, burning out

Making me dizzy, draining from my snout

I can’t have fun or laughter

I can’t have a life at all

For living in pain isn’t lovely

Try a day you fool

I would love nothing better than to do the school run and work

I don’t choose this life you scum bag, you idiot and you twerp

I know I’m angry that is true

But try living in my shoes

I try each day to keep myself sane

To keep my temper calm

But it’s hard to stick with politeness, when others show their qualms

She’s here to infect us again they say

But what I have isn’t contagious

I’ve had it all my life almost

Isn’t it outrageous?

I try to live a normal life

But it’s hard to do it each day

I don’t often go out at all

Not even for play

It is a lonely life I have

It is a sad one too

But I don’t want your sympathy

That’s the worst thing you could do

I just want the pain to stop

And my nose stop running too

I want to live a normal life

And get to know a person or two

I want to do the school run

Get a part time job at Scope

I want to do so many things

I sit and wonder and hope

That someday my life will change

I will find a good doctor

A consultant who knows what is wrong

Someone to cure me of all my ills

Somebody who really feels

For their patients and kind too

Someone who knows what to do

So I can breathe normally

So I can hear just fine

So I don’t live my life in pain anymore

And live the life that’s mine

I want to be free to live my life

Be happy without sickness and pain

I want to recover right now

Because it’s driving me insane

I sit and wish it won’t be long

Before I get to heal

Because if it goes on for much more longer

I, myself shall kill

 

 

 

 

 

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Filed under My life, Poems A - C

Curse rebound

I am going out of my mind with a body that won’t obey
I am being twisted up in all sorts of evil ways
The magic you weave around me, it will rebound on you
When you mess with evil magic, ensure you know what it is you do
It takes a witch to know one
And I know each and every one of you
So be aware my pretties for my demons are coming for you
I won’t be allowed to suffer, not anymore you’ll see
All the magic you’ve cast on me will rebound on you times three
As witches say, so mote it be

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Flu frustrations

On Sunday night I became very ill again, I went down with something flu like this time and I had a temperature with shivers so bad it felt like my whole body was going into a seizure and cramp all at once.
I think it’s typical because this thing always happens within a week of a new fitness and diet regime; I am beginning to wonder if I am allergic to healthy living!
This has pissed me off, as I was expecting from Monday to go to the ENT clinic (which couldn’t happen as I couldn’t get out of bed because of the shivery shakes and temperature) and I had hoped that by 5pm I would have been home and eating dinner and then starting my new horror novel that’s finally written down in excellent bullet points, that I am excited about.
I really am excited about that novel idea. I wish I could share it with you all, but unfortunately I won’t until it’s absolutely finished and then I will approach an agent or a publisher with it.
This story has been haunting me for weeks, literally, so much so in fact that I think I have often heard it threatening to send me insane if I don’t start writing it soon!

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I need out of this painful shell

Morbid as it may seem, death to me is a dream

A way out of this painful shell, away from this constant Hell

I cannot make you understand

I cannot see that life is grand

When it’s accompanied by agony, hatefulness and tyranny

You see the end is best for me

As there’s more to pain than you can see

I need to go where I am free

From all this pain and verily, I am ready to go to sleep.

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Filed under Poems G - I

Sorry readers

I’ve had a lot on lately. No excuse I understand, but I have had a bad prolonged virus and tendonitis in at least four of my joints, particularly my knees and ankles. I was stuck in hospital for 4 hours on last Monday evening having X-rays. I hate leaving this blog neglected for as long as I do, so I have decided to write at least one poem a day especially for the blog and pre-post it on that little nifty thing called scheduled posting and I aim to have something posted on this site every three days at the very least.

Writing as a whole hasn’t been put on the side-lines; reading however, has been put on the side-lines, which is annoying as this virus came upon me during the time I had specifically ordered and paid for six particular books from the library (which would have been read within 10 days) and now they’re nearing their maxed out re-borrowing time of almost nine weeks. Seriously, to me, to read less than 3 books a week is a serious let down on my part, though to many people they would probably see it as no Biggy.

Anyway, this update is going to be short and sweet as it’s bordering on depressing my readers which is something I don’t wish to do. Next posts will be the 9 or so poems I wrote in bed during my sickest days.

Enjoy.

 

 

 

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time to start living

It is not unknown that I have a lot of health problems, in fact more often than not my ailments these days make me bed-bound with bacterial and viral infections and my left eardrum is collapsing, which could leave me totally deaf if it weren’t for the technology of hearing aids.
However, I had decided last week to restart doing my blog regularly and concentrating hard on writing, art and photography in general because I am tired of being dependent upon an insecure government; I am also bored of not being able to work away from home or volunteer anymore, but I can’t help that as I have auto-immune-inner-ear-disease aka AIIED, which means I get about a 2 to 5 days of normal health a month, not conducive to the workplace.
I will have several new sections coming up soon on this blog about Cosmic Ordering, because I am using this to turn my life around; I’ve always been a bit of a Pollyanna which is one of the main reasons I had a lot of problems as a child, so I just need to refocus a bit. I am especially interested in Cosmic Ordering and the methods behind Ho’Oponoopono because I have been told that it is likely I will need more surgery on my ear in the future, my roof is leaking, my health is getting ridiculously bad lately, I’m poor as a church mouse and… well, basically enough is enough and it’s time for a change.
I had another small pause to my blog from my previous post because I went down with a big bang with what my GP described as severe pharyngitis (diagnosed on the 3rd February) and was told that if this didn’t show signs of getting better in 48 hours I could find myself in hospital receiving treatment intravenously; scary, I am still ill as I am typing this – but not as bad as I was and I am thankful things are getting better.

 

I am trying my best to stick to my plans of the Ho’Oponoopono chant and the Cosmic Ordering guides from the Mohrs and various other people – especially my very good friend Richard Gentle who has written lots of material on the subject of Cosmic Ordering, negative miracles and crystal wand healing; in many respects it was he, who gave me the confidence to start doing this and he did this a few years ago, unfortunately my life back then was full of negative people who always undid whatever I tried to do to improve myself, that is no longer the case, in fact, quite the opposite.
One of the biggest steps to changing your life to a more positive stance and being your true self, is to leave the people who do not accept you, whether they are family or not.
So I will finish now with this post, to let you know I intend to get busy and post more often.
Thank you for reading
xxx

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Filed under My inspirations, My life