Tag Archives: social media

A plan, lost time and mindless jealousy

Going back to my post about social media from the other day, I have decided today to make a list of people to watch on social media to try and make me more social with the people I love speaking to and getting replies from.  It will help me manage things better, I am a person surrounded by endless lists for things because my illness can make me too preoccupied with trying to manage my symptoms such as coughing mucus several times an hour and that sort of thing, that I can often forget to do important things such as drinking fluids, eating and even socialising.   

Paul has suggested in saving up to get an Alexa for me, so that it can remind me every half an hour to take a sip of my drink because it is becoming a big problem for me and he thought as well that this can remind me to eat and even socialise.  I sometimes go two weeks between reading emails too, because on bad days (and I am getting more and more of them) two weeks can feel like two days to me, there are times where I haven’t spoken to my favourite cousin online for six months, but to me it feels like two weeks, when I look at the last time stamp I apologise profusely for the time span between our last chats and overcompensate by talking for three hours when I do finally get to contact them again.  It is bad to consider that I make more posts for my blog than I do in contacting people I know in reality.

I really do lose such big chunks of time because of my illness, I go into a groundhog day whilst the entire world moves on and have normal different days and they get to partake in the events of the future whilst I am still struggling to breath and thinking its Sunday.  Henry comes into my bedroom to shake me awake as I am too deaf to hear him say good morning until I put my hearing aids in and I ask him;

“Why are you wearing your uniform on Sunday”? 

“It’s Thursday mum” he says.

“Oh that happened quickly”, I say whilst trying not to fall back to sleep.

But a lot of the time I don’t go back to sleep for twenty minutes because my chest needs clearing and I have to go to pee, but it is a struggle to get there whilst choking and I have a bucket midway between the bedroom and the bathroom because I often choke so bad I vomit.

On bad days those coughing fits don’t calm down for nearly two hours before I can rest again.  It is difficult to be like this when my personal doctors surgery is only opened for 8am to 4pm every day and they prefer to use after 12pm as emergencies only – I never really had a planned appointment from the doctors because my personal GP rarely works the emergency shift and if I want to see him I need to wake up around 5am just to clear my chest, get dressed and eat then rest for an hour after eating just to get to see him for 10am, they are aware of this but I am sure they think I exaggerate!

If I get the flu it lasts for 4 to 8 weeks on me because by the 5th day it always turns into bronchitis and by 2 weeks it goes into borderline pneumonia or pleurisy, doctors are worried by this, it is happen too often and I am showing signs of antibiotic resistance too!  

To all those people who work full-time and hate on people like me who rely on benefits to live and often say venomously how they wished they had my life sitting back watching TV all day instead of working – well I beg your pardon, most of the time I am too deaf to watch too much TV because of severe ear infections and I can’t hear music either during my bad days, all I get to do is read or be online and sitting at a desk is tiring, so you want my life huh?  You can have it if I can have yours!  I’d love nothing better than to work if it means I get great health with it and a great social life!

Welcome to my life for the last seven years, pretty isn’t it?  Yes, please do be jealous of this so-called lazy fat bitch, because my life is great isn’t it?

 

 

 

 

 

 

 

 

 

 

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Filed under Getting to know me

Social media following corps

This post is about what I call “The social media following corps” and how I feel about social media in general – it is not a rant, it is just an opinion and one that many people find both interesting and strange regarding my view of it all.

I have many social media accounts purely to try and network if I can, usually my time whether sick or not, dictates that I don’t really have time to squeeze in too much conversation with people who may not ever actually be involved in my offline life.  Many people, who follow me on the social networks I am on, are lucky to get a reply from me about once a month, but certainly over two thirds of my followers don’t even get that much attention from me.  It is confusing for me to understand how many people in the world of social media have full-time jobs, families, write as a side-line and still have time to spend twiddling away on mobile phones talking to thirty individuals a day and manage to remember and even get upset if someone has not replied to them for a set time frame and will go to the extent of deleting the said individual.  Where do people find the time to do all this and remember thousands of individual on their social media following page?  I can’t be like that – no more than I can do what my aunt and cousins constantly request of me, which is to take photographs and videos all the time on my mobile phone to prove to them that this certain day was as great as I said it was, that I did indeed go to the Severn Valley or Dudley Zoo, they want photographic proof all the time and I am just too busy living the moment to remember to pull out my phone every five minutes and I am made to feel alien because of it.  Is it really so weird to enjoy the moment without pushing buttons and capturing it all for the world to see?  Must I really take a photograph of that gluten and lactose free cheeseburger I found in Rugby that time?

I feel the world of social media can sometimes become too silly and compulsive.  By trying to capture the moment it often ruins the moment and makes the moment less personal – it’s that way for me anyway!

I like checking twitter and seeing who has made effort to try and communicate with me and I do try to reply to those I feel have something worth replying to.  Most of the time however I just say thanks for the heads up or thank you, or whatever it is usually just short and sweet and usually I hardly get anything back other than the same old same old.  I will always praise where I feel praise is truly due, I will not make a polite comment just to boost someone’s ego that is not me, I am very honest about my opinions of other people’s work.  I am not just nice for the sake of it, if I comment nicely to you, then you in my opinion are worthy of that comment and you should feel proud of yourself for doing great work.  My criticisms are there to help you along, improve you and I don’t usually bite that hard when I do so, I am tactful.  I am not like the guy who once told me that they believe that something I wrote was a one night bender after booze, that is just rotten and cruel and not very specific and constructive, it is just criticism for criticisms sake.

I have never understood the culture of follow Fridays.  I like and appreciate that people share my name with their followers, but I often wonder why?  I don’t do that myself and some people have unfollowed me for it as I rarely mention other people in my tweets unless I am specifically talking about them or to them.  I only follow people I find interesting and that goes for all social media and blogs, if I am following you, I genuinely like your work and I am interested in you as a person.  I am also quite an introvert with new people so it can take me awhile to try and make a conversation if I am the first one to start any kind of conversation.  I am a cautious person when conversing with new people because I have been raised in a very aggressive, uptight and insecure environment, where a relative of mine had their throat cut once just for looking at a person and allegedly smirking at them.  So you can understand my caution.

I am not anti-social, I just find it difficult to meet thousands of people’s expectations all of the time, every single day, when they are not actually involved in my personal offline life.  I always try to visit other bloggers who follow me here, but sometimes it is not always easy to get around some of their blogs and I am a bit of a luddite, if technology is difficult I don’t give it much time before I think “ugh, I can’t get my head around this, I have to go” because complicated technology makes me quick to anger.  Some people over complicate their blogs and that is where I think a lot of bloggers go wrong.  They hide things behind this tab and that tab and every time you go to their page their oldest introduction page is the first thing you see – whereas really it should be your latest post.  Because some people have so many tabs that their latest post could be hidden behind any twenty of those tabs, not the one you think it might be.  It is a crying shame as there is a lot of talent out there with people who just don’t know how to present their work appropriately.

Another thing which sort of upsets me regarding social media is the idea that because I am a writer, I must have had a book published somewhere, anywhere and that I must promote it to these other writers who are following me and if I never do that (and I never have) they question my authenticity as an author.  “Oh, but your profile says you are a writer and you follow me and you have retweeted my promotions I need to do the same for you”, yes but the problem is I am unpublished formally and I unlikely to have anything published within the next two to three years, realistically.  So they start to tell me how Amazon is a great medium for becoming published or other self-publishing places, I keep telling them I am not yet ready for this because there are some personal issues I need to clear up first but they never understand.

You see, I have been told that there are some medical conditions the doctor suspects I have, but our area has a two year waiting list to investigate anything let alone get to have a first appointment with a consultant – nobody is ready to hear that because they want my work and they want it now and these are just other writers, they are not even agents, publishers or anything like that.  It is both confusing and frustrating.

There are agents and publishers who know of me and like what little they know of me so far and they do try to send me prep talks from time to time, but really they know my situation too.  For the past several weeks I have been confined to my bed and house, my illness, whatever it is, is taking such a big toll on my body I can barely move these days.  So, I am fearful of many things because of this – as I spoke about yesterday, I am fearful of death.  I do fear that something has a tight grip on my body that maybe nobody will see the novels I have finished or half finished, the only thing the world will ever see is whatever I can manage to stick here on my blog. 

I am that sick that I am not even planning a future anymore.

Things should improve in about two or three years’ time, I don’t know why I have this idea that it will, because there is something at the back of my mind which keeps telling me that in 2023 everything will improve.  I don’t understand what it is, maybe it is the subconscious realisation that in three years’ time I will be forty and I have always heard people say and I have always believed it to be true as I have witnessed several women in my past, that life begins at forty.  So, maybe it is that, maybe it is something in the universe telling me it is just a health blip which will correct itself in three years’ time or maybe I am just being dumb.  But there is definitely something biting at me that my life will vastly improve by 2023.

 

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Filed under Brain Drain & Dribbles

15 minutes of fame review

The notion that everyone has 15 minutes of fame must to a greater extent be increased due to the use of social media and self-promotion these days, surely?
I am not incredibly famous yet, but I do know that there are over 10,000 people who know who I am from various sites and what I stand for, possibly more.
I think therefore, there should be a new study on just how many minutes of fame a person has today.
I believe it can be limitless if you know how to self-promote on the internet and that is a skill that’s fast increasing around the globe, especially because other people will promote you too, if they like you. So, to me, it should be easy to be famous in almost anything if you run a blog, use social media sites a lot and focus on forums and communities that stand for the same or similar things as you do.
Obviously for more success, you should aim to socialise and broadcast something interesting or skilful; otherwise you might become famous for being an idiot, like Katie Hopkins.

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Filed under Cultural Stuff